Background: Although participation of children with rare diseases in school is considered beneficial, it poses new challenges for the educational system, but also for the affected children and their families. The aim of this study is to identify which aspects of the schooling experience may have an impact on the health-related quality of life of children with rare diseases. Method: A qualitative study was conducted using the social-critical paradigm as theoretical perspective. Participants (n = 28) included children with rare diseases (n = 8), parents (n = 12) and school staff (n = 8). Data was obtained through in-depth interviews and focus groups and analysed through discourse analysis as methodological orientation. Results: Participants' discourses placed value on the social benefits of inclusion of children with rare diseases in schooling. Discourses also highlighted how the low numbers of children with rare diseases and the delay, or lack, of a clear diagnosis are among the difficulties experienced in the pursuit of the adaptations that children and teachers need to promote a healthy and normalized school experience. The issues identified in their health-related quality of life were summarized in seven categories: Attendance, Knowledge, Participation, Acceptance, Discrimination, Safety, Health-Related Support. Conclusion: Children with rare diseases remain, in many cases, invisible at the educational level due to the low numbers of children affected, limiting the kind of resources available to the child and teaching staff. This situation requires inter-disciplinary and inter-sector measures between health services and educational environments to articulate a comprehensive approach focused on children's clinical needs.
Most physiotherapy students chose their course because of an interest in physiotherapy. They were not familiar with employment possibilities for graduates, and believed that it is easier to find work in other EU countries. Both factors may further aggravate the problem of unemployment among physiotherapists.
Resumen Entre los aspectos que contribuyen a la calidad de vida familiar están los diferentes apoyos a las familias. Este estudio tiene como objetivo identificar el tipo de apoyos que consideran relevantes las familias de niños con discapacidad usuarios de servicios de fisioterapia en atención temprana y en qué manera la administración pública influencia la calidad de esos apoyos. Se trata de un estudio cualitativo fundamentado en un paradigma crítico social. Los participantes han sido 16 madres y 4 padres que han sido entrevistados, y sus aportaciones se analizaron con análisis de discurso. Entre las aportaciones se destaca la importancia de los apoyos familiares y de las redes de padres de niños con discapacidad. También se destaca el papel de los apoyos profesionales y por lo tanto cómo los recortes en servicios públicos de tipo sanitario y social han agudizado una inequidad en salud en relación a las familias que pueden o no disponer de servicios adicionales. Se sugieren otros enfoques en los servicios que pueden apoyar a las familias.
This paper explores the educational factors that underlie the poor collaboration between general practitioners (GPs) and physiotherapists (PTs) in Primary Health Care (PHC), from the GP's perspective. This study was conducted in Majorca, the Balearic Islands (Spain). Participants were nine GPs who graduated from different universities in mainland Spain. A discourse analysis study was developed employing the social-critical paradigm as theoretical framework and in-depth interviews for data collection. The perceived lack of knowledge about physiotherapy was considered by the interviewees as a major factor in the current poor communication between GPs and PTs. The individual learning during medical studies and poor interprofessional learning during clinical residency influenced their gatekeeper role, putting at risk the equity of the health system. Collaboration was considered beneficial for patients but challenging to improve in context due to multiple factors ranging from individual to systemic. The latter encompasses inadequate resources and organization for interprofessional learning. There is a need to further explore other factors influencing the poor collaboration, including PTs' views on this process.
[Purpose] The purpose of this review is to identify which preoperative physiotherapy
interventions are applied in patients undergoing Coronary Artery Bypass Graft.
[Participants and Methods] A literature review was carried out using the databases
EBSCOhost, Pubmed, LILACS, IBECS, Cochrane and PEDro. Taking into consideration the
inclusion and exclusion criteria, 14 studies published in 2006–2017 about preoperative
physiotherapy to Coronary Artery Bypass Graft in adults were selected. [Results]
Preoperative physiotherapy included interventions such as inspiratory muscle training,
aerobic exercise, education in breathing exercises and counselling. Most of the studies
described a combination of these interventions illustrating benefits for patients as
decreasing the risk of developing postoperative pulmonary complications, reducing the
length of hospitalization as well as time to extubation, anxiety and depression.
[Conclusion] Preoperative Physiotherapy in patients undergoing Coronary Artery Bypass
Graft includes different interventions, and their effects have been evaluated mainly
through a combination of them. These combined interventions, particularly those with an
inspiratory muscle training component reduce postoperative pulmonary complications. More
studies are needed to identify their impact for patients.
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