Qualidade de vida e transplante de células-tronco hematopoéticas alogênico: um estudo longitudinal

Matias, Alberto Borges; Oliveira-Cardoso, Érika Arantes de; Mastropietro, Ana Paula; Voltarelli, Júlio César; Santos, Manoel Antônio dos

doi:10.1590/s0103-166x2011000200006

Cited by 21 publications

(22 citation statements)

References 20 publications

(25 reference statements)

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“…However, a review performed in Germany with the main QOL studies using the QLQ-C30 to evaluate the pre-and post-HSCT (11) , and another review performed in Chicago (USA) that compared the QOL of patients undergoing autologous and allogeneic HSCT in 105 participants with cancer, showed the patients' age was between 40 and 50 years (12) , which differs from the present study findings. The marital status and number of children in this study corroborate data found in national and international literature, i.e., patients with hematological malignancies are married or in a common-law marriage and have one to three children (12)(13)(14)(15)(16) . In a study on the bond between cancer patients and their families, it was observed that the main companions of patients with neoplasia are children, spouses and parents, and family involvement is critical during the disease process.…”

Section: Discussionsupporting

confidence: 87%

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Comprometimento social de pacientes submetidos ao transplante de células-tronco hematopoéticas

et al. 2016

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Objective: to evaluate the impairment of social and emotional domains of hospitalized patients undergoing hematopoietic stem cells transplantation. Method: an observational, longitudinal study with 25 participants evaluated in the period of pre-transplant, pancytopenia and pre-hospital discharge between September 2013 and September 2014, in a reference hospital for this treatment modality in Brazil. Two international instruments were used, both of which translated and adapted to Portuguese (Brazil): Quality of Life Questionnaire-Core 30 and Functional Assessment Cancer Therapy -Bone Marrow Transplantation. Results: patients have shown a statistically signifi cant decrease in the social domain, and stability of the emotional function along the course of treatment. Conclusion: hematopoietic stem cell transplantation changes the social function of patients with hematologic cancer during hospitalization stage. Thus, patients should receive guidance addressing the social domain in order that it can be less affected.

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Section: Discussionsupporting

confidence: 87%

“…A similar economic pattern was found in national and international studies (10,(12)(13)18) . Among the many negative events of neoplasia, the financial difficulty is responsible for vulnerable conditions.…”

Section: Discussionsupporting

confidence: 84%

Comprometimento social de pacientes submetidos ao transplante de células-tronco hematopoéticas

et al. 2016

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“…Trata-se de um procedimento altamente invasivo e que envolve risco de morte em decorrência de seus efeitos adversos (Matias, Oliveira-Cardoso, Mastropietro, Voltarelli, & Santos, 2011). Por isso, exige o envolvimento intenso de um cuidador familiar durante todas as suas etapas, o que expõe esse membro da família a estressores contínuos (Laudenslager et al, 2015;Rodday et al, 2012).…”

Section: Introductionunclassified

Espiritualidade E Religiosidade Em Mães De Crianças Com Câncer Hematológico

Freitas¹,

Cardoso²,

Santos³

2017

Psicol Estud

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RESUMO.Espiritualidade e religiosidade constituem fontes significativas de suporte emocional e social para familiares de crianças gravemente doentes, sobretudo no caso de doenças potencialmente terminais. O transplante de células-tronco hematopoiéticas (TCTH) é um dos tratamentos mais arrojados e promissores que surgiram nas últimas décadas para doenças onco -hematológicas. Trata-se de procedimento altamente invasivo e que envolve risco de morte em decorrência de seus efeitos adversos. Por isso, exige o envolvimento intenso de um cuidador familiar durante todas as suas etapas, o que expõe esse membro da família a estressores contínuos. O objetivo deste estudo foi investigar o sentido atribuído à espiritualidade e religiosidade por mães de crianças com câncer hematológico submetidas ao transplante de células-tronco hematopoéticas. Trata-se de uma pesquisa qualitativa, de delineamento descritivo-exploratório, com fundamentação fenomenológica. Foram entrevistadas dez mães. As entrevistas individuais foram audiogravadas e, posteriormente, transcritas e submetidas à análise compreensiva dos relatos. Espiritualidade e religiosidade emergiram nas falas das participantes, coloridas pelas diferentes crenças religiosas professadas, como fonte de apoio e alento para a cuidadora familiar, auxiliando-a a suportar as adversidades inerentes à situação de ser acompanhante de paciente submetido a procedimento de alto risco. Os resultados corroboram a importância da religiosidade e da espiritualidade como recursos de enfrentamento. Palavras-chave:Espiritualidade; família; transplante de medula óssea; psicologia fenomenológica. SPIRITUALITY AND RELIGIOSITY IN MOTHERS OF CHILDREN WITH HEMATOLOGIC CANCERABSTRACT. Spirituality and religiosity are important sources of emotional and social support for families of severely ill children, specially when it comes to potentially terminal illnesses. Hematopoietic stem cell transplantation is one of the most daring and promising alternatives that have emerged in the last decades to treat onco-hematological diseases. It is a highly invasive procedure and involves risk of death due to its adverse effects, therefore, it requires close involvement of a family caregiver during all of its stages, which exposes this family member to continuous stressors. The goal of this study was to investigate the meaning attributed to spirituality and religiosity by mothers of hematologic cancer patients undergoing hematopoietic stem cell transplantation. This is a qualitative research, with a descriptive-exploratory design and a phenomenological fundamentation. Ten mothers whose children had undergone hematopoietic stem cell tranplantation were interviewed. Individual interviews were audio -taped and later transcribed and subjected to the comprehensive analysis of the reports. Spirituality and religiosity emerged from the speeches of the participants colored by different professed religious beliefs as a source of support and encouragement for family caregivers, helping them to deal with the adverse situation of ...

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“…[8][9] The conditioning phase can be highlighted among the decisive steps throughout the HSCT process, in which the patient receives chemotherapy and/or radiotherapy to cause medullary aplasia and induce immunosuppression with the purpose of avoiding rejection of the new grafted bone marrow. [10][11] At this stage, the patient suffers from symptomatologies arising from the administered drugs, and gastrointestinal disorders are common.…”

Section: Introductionmentioning

confidence: 99%

Qualidade De Vida Nos Primeiros Seis Meses Pós-Transplante De Células-Tronco Hematopoéticas

Marques

Proença

Machado

et al. 2017

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Objective: to evaluate the quality of life of adult patients with hematologic cancers undergoing hematopoietic stem cell transplantation in the first six months and comparing the transplant modalities.Method: an observational longitudinal study with 55 participants followed during pre-transplantation, after 100 days, and after 180 days in a reference teaching hospital for this treatment in Brazil. Two international instruments were used for the evaluation, both validated and translated into Portuguese (Brazil): The Quality of Life Questionnaire-Core 30 and the Functional Assessment Cancer Therapy-Bone Marrow Transplantation. Results:The results showed that the average age of the participants was 36 years old; 65% (n=36) had a diagnosis of leukemia, and 71% (n=39) underwent allogeneic transplantation. Regarding the Quality of Life Questionnaire-Core 30 instrument, social function and fatigue were significant results, while the functional well-being and treatment outcome evaluation index for the Functional Assessment Cancer Therapy-Bone Marrow Transplantation questionnaire had significant domains between the first and the second stage.Conclusions: despite transplantation being a complex and aggressive treatment, it can be noticed that patients generally perceive their quality of life as satisfactory throughout the therapeutic process. The findings of the study show that a significant portion (69% of patients) recover their quality of life after the first six months of treatment. DESCRIPTORS: QUALIDADE DE VIDA NOS PRIMEIROS SEIS MESES PÓS-TRANSPLANTE DE CÉLULAS-TRONCO HEMATOPOÉTICAS CALIDAD DE VIDA EN LOS PRIMEROS SEIS MESES POST-TRANSPLANTES DE CÉLULAS-TRONCO HEMATOPOÉTICAS RESUMENObjetivo: evaluar la calidad de vida de los pacientes adultos con cáncer hematológico sometidos al transplante de células madre hematopoyéticas en los primeros seis meses y comparar entre las modalidades de trasplante.Método: estudio observacional, longitudinal, con 55 participantes, acompañados en las etapas pre-trasplante, después de 100 días y después de 180 días, en un hospital de enseñanza, referencia en Brasil para este tratamiento. Para la evaluación se utilizaron dos instrumentos internacionales, ambos validados y traducidos a la lengua portuguesa (

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Qualidade de vida e transplante de células-tronco hematopoéticas alogênico: um estudo longitudinal

Cited by 21 publications

References 20 publications

Comprometimento social de pacientes submetidos ao transplante de células-tronco hematopoéticas

Comprometimento social de pacientes submetidos ao transplante de células-tronco hematopoéticas

Espiritualidade E Religiosidade Em Mães De Crianças Com Câncer Hematológico

Qualidade De Vida Nos Primeiros Seis Meses Pós-Transplante De Células-Tronco Hematopoéticas

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