The family experience of care in chronic situation

Bellato, Roseney; Araújo, Laura Filomena Santos de; Dolina, Janderléia Valéria; Musquim, Cleciene dos Anjos; Corrêa, Geovana Hagata de Lima Souza Thaines

doi:10.1590/s0080-623420160000300012

Cited by 27 publications

(36 citation statements)

References 15 publications

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“…Furthermore, the creation of strategies favoring development of the ability to deal with stressful life events among family members is important, especially considering that the care necessities of chronic patients are continuous and permanent and should be individually tailored to guarantee the best prognosis (28) . Among the actions performed by the nursing team are attendance of individual family members and multi-family groups, which may favor effective family communication and, consequently, the functioning of the family setting.…”

Section: Discussionmentioning

confidence: 99%

Emoção expressa de familiares e recaídas psiquiátricas de pacientes com diagnóstico de esquizofrenia

Zanetti

Vedana

Gherardi‐Donato

et al. 2018

Rev. esc. enferm. USP

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Objective: Assess the relationship between psychiatric relapses of patients with a diagnosis of schizophrenia, the levels of expressed emotion among their relatives and related factors. Method: Prospective study carried out at a mental health outpatient clinic and two Psychosocial Care Centers, with patients and relatives responding to the Family Questionnaire -Brazilian Portuguese Version, a form containing socio-demographic and clinical variables and a structured script to assess relapses. A logistic regression model was used for the analysis. Results: A total of 89 dyads participated in the study. Of the patients investigated, 31% presented relapses and, among the relatives, 68% presented elevated levels of expressed emotion. The relationship between expressed emotion and the relapses was not significant. The logistic regression analysis demonstrated that when there were a higher number of hospital admissions in the two years preceding the study, the chance of the patient relapsing in the 24-month period is 1.34. Conclusion: Expressed emotion was insufficient to predict relapses. Thus, a relapse should be understood as a multifactorial phenomenon. These results provide support for interventions and investigations on the multiple factors involved in the evolution of schizophrenia patients in follow-up at community-based health services. DESCRIPTORS INTRODUCTIONThe concept of Expressed Emotion (EE) has long been used to investigate the family environment of patients with mental disorders. EE reflects the extent to which family members close to a patient express critical, hostile and emotionally over-involved attitudes or warmth when talking about the patient (1) . The main components of EE are critical comments (CC), which are related to negative judgment of patient conduct; hostility (H), related to the negative concept of the patient as a person; and emotional overinvolvement (EOI), which refers to feelings or attitudes, to despair, to self-sacrifice and to overprotection of the patient on the part of the family members. It is worth highlighting that hostility overlaps with critical comments. The family may be classified as having high EE if the family member that spends most of the time with the patient presents one or more of these components (2)(3) . Studies show that EE is a strong predictor of psychiatric relapses in schizophrenic patients, in different social and cultural contexts (4)(5) . A meta-analysis identified 27 articles reporting EE and psychiatric relapses in schizophrenia patients. These studies confirmed that EE is a good predictor of schizophrenia relapses, especially in patients in the most chronic phase of the disease (6) . Recent prospective studies have shown that patients with schizophrenia living with families with high levels of EE have higher chances of suffering relapses when compared to those that live in family settings with low EE (7)(8) .Relapses are defined by the exacerbation of symptoms related to the diagnosis of schizophrenia in patients with a stable condition (7)...

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Section: Discussionmentioning

confidence: 99%

Emoção expressa de familiares e recaídas psiquiátricas de pacientes com diagnóstico de esquizofrenia

Zanetti

Vedana

Gherardi‐Donato

et al. 2018

Rev. esc. enferm. USP

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“…According to the study participants, family health units, in most cases, are unable to provide the necessary support to confront the care demands of children with chronic diseases, corroborating other studies that showed that nurses stated this same difficulty (5,11,18) . However, according to the national health policy, the primary health care level has the function of coordinating the care of people with chronic disease throughout the care network (1,4,(19)(20) , whereas this care should be continuous, prolonged and permanent (21) .…”

Section: Discussionmentioning

confidence: 99%

Social network of children with cronic disease: knowledge and practice of nursing

2020

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Objectives:To identify the knowledge and practice of primary care nurses about the social network approach for fa milies of children with chronic diseases. Methods: Qualitative research, conducted by means of interviews with 23 family health nurses, from one municipality in Paraíba and one in Rio de Janeiro, from June to July of 2017. The data were interpreted using thematic analysis. Results: Social network meant institutional support offered by services outside the unit, and socioeconomic problems involved the family context. In practice, nurses find it difficult to provide comprehensive care and establish ties with families. When referring to other professionals, a weakness in the counter-referral to the family health unit is found. Final considerations: Some gaps were found regarding the knowledge and practice of nurses regarding the social network approach, which requires professional training to strengthen social relationships and the necessary support for families of children with chronic diseases.

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“…As famílias cuidam de seus entes de modo amplo, abarcando as múltiplas dimensões do viver (Bellato et al, 2016). Tais cuidados configuram-se como permanentes e perduram ao longo do tempo e dos ciclos de vida, desde o nascimento, passando pela maturidade e velhice, até a morte; desse modo, a família oferece respostas às necessidades de seus entes das mais variadas naturezas.…”

Section: Discussionunclassified

“…Assim, diante da possibilidade de compreender a vivência familiar de um adoecimento raro, da juventude dos pais e de ser Theo o primeiro filho do casal, tivemos particular interesse em conhecer a família que foi, portanto, intencionalmente eleita como participante deste estudo. Desse modo, de antemão, admitimos e valorizamos a intencionalidade como elemento constituinte e direcionador da e na pesquisa de abordagem compreensiva; pois, o encontro com o outro conecta diferentes histórias e a pessoalidade do pesquisador também está envolvida quando nos debruçamos com uma atitude sensível frente às experiências humanas tão próximas de nossa realidade existencial (Bellato et al, 2016).…”

Section: Metodologiaunclassified

“…A família, independente de sua configuração, constitui-se pilar sustentador para o nascimento, crescimento e desenvolvimento de seus entes, caracterizando-se como lugar de apoio mútuo, onde o cuidado "da" e "para" vida acontece (Bellato et al, 2016). Isso significa dizer que a família oferece cuidados que perpassam as relações familiares e abarcam as múltiplas dimensões do viver, o que a torna a principal cuidadora de cada um de seus entes ao longo do tempo e das gerações.…”

Section: Introductionunclassified

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Cuidar na situação de adoecimento raro: vivência da família e sua busca por amparo dos serviços de saúde

2016

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Resumo Compreender a vivência familiar no cuidado à criança com síndrome rara, bem como, sua busca por amparo dos serviços e profissionais de saúde. Estudo compreensivo desenvolvido junto à família constituída, nuclearmente, por Pedro e Luisa, pais de Theo, que nasceu com síndrome raríssima e neurodegenerativa. As estratégias metodológicas incluíram a História de Vida operacionalizada pela Entrevista em Profundidade e Observação. O campo compreendeu junho de 2015 a janeiro de 2016 e o material empírico foi organizado no Diário de Pesquisa. Realizamos sua leitura atentiva, atribuindo diferenciação por cor aos significados dos trechos narrados. A pesquisa matricial a qual este estudo se vincula tem aprovação ética sob o nº 951.101/CEP-HUJM/2015. Os cuidados oferecidos pela família são preparados com esmero e de modo integrativo, tendo como foco o bem-estar de Theo e o seu desenvolvimento naquilo que lhe é possível. Essa perspectiva integrativa se distancia daquela dos serviços e profissionais de saúde que oferecem respostas estritamente pontuais, direcionadas ao que é demandado em dado momento. Para ampliar a capacidade resolutiva, os serviços/profissionais de saúde precisam pôr em movimento noções diferenciadas de tempo e temporalidade, de maneira a reconsiderar os tempos protocolares e rigidamente formalizados, num esforço de abarcar a temporalidade do viver e do cuidar de crianças com outras normalidades.

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The family experience of care in chronic situation

Cited by 27 publications

References 15 publications

Emoção expressa de familiares e recaídas psiquiátricas de pacientes com diagnóstico de esquizofrenia

Emoção expressa de familiares e recaídas psiquiátricas de pacientes com diagnóstico de esquizofrenia

Social network of children with cronic disease: knowledge and practice of nursing

Cuidar na situação de adoecimento raro: vivência da família e sua busca por amparo dos serviços de saúde

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