An essay that aims to reflect on the family experience of care in chronic situation, increasing the understanding of the family as the primary caregiver. It is based on comprehensive approach in studies conducted in three matrix searches from family care experiences. We have taken three axes to organize our reflections: a) conformation of family care in chronic situation, highlighting the multiple costs incurred to the family, which can exhaust the potential of care and establish or increase its vulnerability if it is not backed by networks support and sustenance; b) family rearrangements for the care, giving visibility to care cores in which many loved family members share the care, dynamic, plural and changeable way; c) self care modeling family care, pointing to the range of possibilities of the person taking care of diseased conditions supported by people close to them. We learn that the family takes care of itself in everyday life and in the illness experience, creating networks that can provide you support and sustenance. Thus, professionals in health practices should shape up in a longitudinal and very personal way, by reference to the family care, supporting him in what is his own.

Pesquisa Qualitativa; Pesquisa em Enfermagem; Pesquisa Metodológica em Enfermagem.

O adoecer e morrer de mulher jovem com câncer de mamaFalling ill and dying of a young woman with breast cancer

No abstract

Diferentes temporaliDaDes no aDoecimento por câncer De mama las Diferentes percepciones Del tiempo en la enfermiDaD por cÁncer De mama * Unpublished article originated in the master's degree dissertation, "experience of a young woman and her family in the sickening and dying process from breast cancer." the study is part of the matrix research called "Healthcare and justice institutions as mediators in health parental rights implementation: analysis of therapeutic itineraries of people/families at the UHs/mt," and was carried out within the scope of the "nursing, Health and citizenship research Group" (GPESC) of the Nursing College of the Federal University of Mato Grosso (FAEN/UFMT). The study was financed as a scientific initiation and master's degree grants. No conflict of interest was found. 1 nurse; master's in nursing, member of the nursing, Health and citizenship research Group (Gpesc). cuiabá, Brasil. 2 nurse; Doctorate in nursing; professor at the nursing college of the federal University of mato Grosso (faen/Ufmt), member of the Gpesc, cuiabá, Brazil. 3 nurse; Doctor in nursing, professor at the faen/Ufmt, Gpesc leader, cuiabá, Brazil. ReSumoEstudo de abordagem compreensiva, objetivou compreender os reflexos e contrastes entre o tempo experiencial e o tempo protocolar da terapêutica, na vivência de mulher jovem com câncer de mama. Conformando-se como estudo de situação, baseado na História de Vida de Beth, que adoeceu e morreu de câncer aos 34 anos, empregamos entrevista, observação e aná-lise do prontuário na recolha dos dados. A construção de quadro analítico-sintético, com base na cronologia da progressão clí-nica e fases do tratamento e a percepção temporal dos acontecimentos por Beth, possibilitou depreender que o tempo protocolar da terapêutica mostra-se linear, marcado pelo sequenciamento do diagnóstico e tratamento; já o tempo experiencial é marcado pela simultaneidade e não linearidade de acontecimentos mobilizadores de intenso sofrimento que o câncer produziu na vida de Beth. Tal compreensão afirma a necessidade dos profissionais de saúde considerarem o tempo vivido pela pessoa, conferindo pessoalidade à indispensável terapêutica protocolar do câncer. DeScRitoReS Pequisa qualitativa Câncer Eventos que modificam a vida Cuidados à saúde ABStRActComprehensive approach study aimed understanding the reflections and contrasts between personal time and medical therapy protocol time in the life of a young woman with breast cancer. Addressed as a situational study and grounded in Beth's life story about getting sick and dying of cancer at age 34, the study's data collection process employed interviews, observation and medical record analysis. The construction of the analytic-synthetic box based on the chronology of Beth's clinical progression, treatment phases and temporal perception of occurrences enabled us to point out a linear medical therapy protocol time identified by the diagnosis and treatment sequencing process. On the other hand, Beth's experienced time was marked by simultaneous and non-li...

RESUMO:Estudo objetivou analisar a contraposição entre os discursos do Poder Judiciário e do Poder Executivo, contendores em decisão judicial acerca do direito à saúde de criança em situação de adoecimento crônico com desnutrição grave. Trata-se de estudo descritivo de abordagem qualitativa, baseado em análise documental de decisão judicial do Tribunal de Justiça de Mato Grosso, demandando o fornecimento de insumo alimentar e medicamentos. A análise mostrou que o Estado, apesar de suas responsabilidades em garanti-los, nega concedê-los afirmando a necessidade de gestão na distribuição farmacêutica, o desconhecimento do risco de morte do bebê e limites nos recursos financeiros da saúde. O estudo evidencia a contradição do discurso do Estado brasileiro na proteção de seus cidadãos, especificamente as crianças. Esta contradição mostra que o Estado descumpre abertamente a legislação, considerando as questões administrativas como mais prioritárias que o bem estar de criança vulnerável. DESCRITORES: Direito à saúde; Decisões judiciais; Instituições de saúde; Saúde da criança.*Estudo vinculado à pesquisa matricial "As instituições de saúde e do poder judiciário como mediadores na efetivação do direito pátrio em saúde: análise de itinerários terapêuticos de pessoas/famílias no SUS/MT" (Pesquisa DITSUS), sob responsabilidade do Grupo de Pesquisa Enfermagem, Saúde e Cidadania -GPESC. This study aimed to analyze the contrast between the discourses of the Judiciary and the Public Authority, contenders in judicial decision-making regarding the right to health of the child in a situation of chronic illness with serious malnutrition. It is a descriptive study with a qualitative approach, based on documental analysis of the judicial decision-making of the Court of Justice of Mato Grosso, requiring the provision of nutritional intake and medications. The analysis showed that the State, in spite of its responsibilities to guarantee these, declines to concede them, asserting the need for management in the distribution of medications, lack of knowledge of the risk of death for the baby, and limits on the financial resources for health. The study evidences the contradiction of the discourse of the Brazilian State in the protection of its citizens, in particular the children. This contradiction shows that the State openly fails to comply with the legislation, considering administrative issues as having priority over the well-being of vulnerable children. DESCRIPTORS: Right to health; Judicial decisions; Health institutions; Children's health. DERECHO A LA SALUD EN EL DISCURSO DEL PODER JUDICIARIO Y DEL PODER PÚBLICO: ANÁLISIS DE DECISIÓN JUDICIAL RESUMEN:Estudio cuya finalidad fue analizar la contraposición entre los discursos del Poder Judiciario y del Poder Ejecutivo, responsables por decisión judicial acerca del derecho a la salud del niño en situación de enfermedad crónica con desnutrición grave. Se trata de estudio descriptivo de abordaje cualitativo, basado en análisis documental de decisión judicial del Tribunal de Justicia de...