Validity of the DISABKIDS® - Cystic Fibrosis Module for Brazilian children and adolescents

Abstract

OBJECTIVES: to validate the health-related quality of life measuring instrument DISABKIDS® - Cystic Fibrosis Module (self version) for Brazilian children and adolescents. METHOD: methodological study in which a sample of 113 participants (54 girls and 59 boys; mean age 11.91 years and SD=2.79) was considered, from four Brazilian states, São Paulo, Paraná, Minas Gerais and the Federal District, 51 of whom participated in the pilot study and 62 in the field study. The answers to the questionnaire were analyzed, considering the frequency distributions with regard to the floor and ceiling effects, Cronbach's Alpha statistics, Pearson's Linear Correlation Coefficient, Mulitrait-Multimethod analysis and Confirmatory Factor Analysis according to Structural Equations Modeling. RESULTS: the instrument showed a high internal consistency coefficient (verified using Cronbach's Alpha) and construct validity, according to the Multitrait-Multimethod analysis. The DISABKIDS® - Cystic Fibrosis Module, self version, maintained the same factorial structure as in the originally proposed model. CONCLUSION: the instrument validation has been finished and indicates that the self version is validated for use in Brazil and can be included into the monitoring routine of this population.

Validation of the Comply with Post-Exposure Management Among Health Care Workers Instrument for Brazil

“…Results close to those reported in this study have also been found in instrument validation studies which also used MTMM analysis on samples of chronic patients (21,26) .…”

“…The presence of these effects was also verified in other instrument validation studies for Brazil (20)(21)(22)(23) , using other thematic approaches related to the health area and carried out using patient or health professional samples.…”

Psychometric Properties of Measurement Instruments: Conceptual Basis and Evaluation Methods - Part Ii

“…Construct validity was performed using convergent and discriminant validity in a study that aimed to validate the Cystic Fibrosis Module for children and adolescents (self-version) of the DISABKIDS® health-related quality of life measurement instrument for Brazilians. 31 Thus, for the analysis of the correlations between the items and the dimensions, we used the Multitrace-Multi-Method Matrix (MTMM), which provided information on the allocation of items on the scale and the percentage of adjustment for each item (scale fit). For the convergent validity analysis, this study found correlations between each item and its respective dimension, which, in most cases, was greater than 0.40, and only 10/14 items 5 (r=0.26) and 6 (r=0.37) had lower correlations.…”

Escala FACIT-Sp-12 de Bem-estar Espiritual: adaptação para adolescentes brasileiros com doença crônica, desenvolvimento da versão parental e suas validações

“…MCGRADY; ROSENTHAL, 2010). Outras pesquisas sobre qualidade de vida em saúde com crianças e adolescentes com diferentes condições crônicas têm utilizado a avaliação parental (DEON et al, 2011a(DEON et al, , 2011bFEGADOLLI et al, 2010;SANTOS et al, 2014;SCHMIDT et al, 2006).…”

“…Houve a atualização dessas diretrizes por vários autores, dentre eles Ferrer et al (1996) e Beaton et al (2000). Ferrer et al (1996) (DEON et al, 2011a(DEON et al, , 2011bFEGADOLLI et al, 2010;SANTOS et al, 2013SANTOS et al, , 2014. Esse processo é chamado de validação semântica ou entrevista cognitiva e pretende verificar a aceitação e compreensão dos itens da escala, de modo a fazer adequações para torná-la mais compreensível (DISABKIDS, 2004…”