A mãe, o filho e a síndrome de Down

Abstract

Resumo: O presente estudo objetivou investigar, psicanaliticamente, as experiências de mães na criação e educação de filhos com síndrome de Down. A pesquisa consistiu na realização de entrevista aberta individual com quatro mães. Após cada encontro, foram redigidas narrativas psicanalíticas visando apreender os campos psicológico-vivenciais, no contexto dos quais se tornam visíveis eventuais movimentos de superação de dissociações. Foram encontrados dois campos: "O desaparecimento do filho perfeito" e "O que será de meu filho quando eu não mais estiver aqui?". O quadro geral encontrado evidencia que as mães entrevistadas desenvolveram estratégias de sobrevivência emocional diversas, o que lhes permitiu se manterem, por um longo período, no estado de preocupação materna primária especial.Palavras-chave: Síndrome de Down. Relação Mãe-Filho. Narrativas. Psicanálise. Mother, child and Down syndromeAbstract: The objective of this study was a psychoanalytic investigation about mother experiences in raising and educating children with Down syndrome. The procedures consisted of individual open interviews with four different mothers. After each meeting a psychoanalytic narrative was written with the purpose of apprehending areas of life-related psychology in the context of which the eventual behavior of overcoming dissociation becomes evident. Two areas were found: "The loss of the perfect child" and "What's going to happen to my child once I am no longer here?" The results showed that the mothers who were interviewed had developed different emotional survival strategies which helped them to maintain a special primary maternal preoccupation for a longer period of time.Keywords: Down Syndrome. Mother-Child Relationship. Narratives. Psychoanalysis. La madre, el hijo y la síndrome de DownResumen: Este estudio tiene como objetivo investigar, psicoanaliticamente, las vivencias de las madres en la creación y la educación de sus hijos con síndrome de Down. La investigación consistió en la realización de entrevista abierta individual con cuatro madres. Después de cada encuentro, narraciones psicoanalíticas fueron escritas con el intuito de captar los campos psicológicos vivénciales, a partir de los cuales fuera posible observar eventuales movimientos de superación de disociaciones. Encontramos dos campos: "El desaparecimiento del hijo perfecto" y "Lo que será de mi hijo cuando yo no estuviere más acá?". El cuadro general evidencia que las madres entrevistadas desarrollaran estrategias de sobrevivencia emocional diversas, que permitió a ellas mantener, por un largo período, en el estado de preocupación materna primaria especial.Palabras clave: Síndrome de Down. Relación Madre-Hijo. Narraciones. Psicanálises.

The First Experience of Clinical Practice on Psychology Students’ Imaginary

“…Following the research tradition that values group meetings (Duchesne & Haegel, 2005), we use the differentiated research framework called "group interview to approach the collective personality" (Avila, Tachibana, & Vaisberg, 2008;Corbett, 2009;Martins, 2007). This framework is organized around the use of the Thematic Drawing-Story Procedure, which was developed by AielloVaisberg (1999), from the diagnostic instrument designed by Trinca (1976).…”

“…We think that the supervision space must perform the same functions as the environment that is good-enough in childhood, encouraging well-being through respect for the pace of emotional development of the individual (Aiello-Vaisberg & Granato, 2006;Couto, Tachibana, & Aiello-Vaisberg, 2007;Granato & Aiello-Vaisberg, 2009). Considering the above, this study aimed to psychoanalytically investigate the collective imaginary of psychology students regarding the first clinical consultation.…”

Cuidado centrado na família no contexto da criança com deficiência e sua família: uma análise reflexiva

“…In the case of disabled children, the different spaces refer to the inter-relationships among the environments in which the child and family participate, which can either favor or hinder the family's internal functioning. 19 The authors of a study 20 investigating the experience of mothers in raising children with Down syndrome verified that professionals seem to have difficulties understanding the needs of families and in providing conscientious care and welcoming the families. Instead, they act in an evasive manner or restrict themselves to merely transferring information, not dealing with or becoming concerned with the family's emotional dimension.…”

Ludoterapia de Criança com Síndrome de Asperger: Estudo de Caso

“…Excepting the signifi cant differences in the clinical conditions and clinical evolution between Down syndrome and pervasive developmental disorders, we mention the study by Couto, Tachibana and Aiello-Vaisberg (2007), conducted with mothers of children with Down syndrome. The authors report two major concerns of these mothers that are also concerns of mothers of children with pervasive developmental disorders: the disappearance of their perfect child and a concern about what will happen to their children when they are no longer there.…”