Avaliação psicológica dos cuidadores de mulheres com câncer pelo General Comfort Questionnaire

Abstract

Resumo: Este estudo avaliou o bem-estar global de 133 cuidadores de mulheres com câncer genital ou de mama, na fase avançada da doença, pelo General Comfort Questionnaire (GCQ) e analisou a associação com ansiedade, depressão, variáveis sociodemográficas e encargos do cuidador. Foi aplicada a Escala Hospitalar de Ansiedade e Depressão, o GCQ e uma entrevista semi-estruturada. Foram utilizadas a análise de variância (ANOVA), Tukey e a regressão linear múltipla em stepwise para determinar correlações entre as características do cuidador e bem-estar. O Alpha de Cronbach foi 0,8315. Segundo os resultados, quanto maior a idade do cuidador melhor o bem-estar (p<0,01). Cuidadores do sexo masculino apresentaram grau de bem-estar significativamente maior do que cuidadores do sexo feminino (p=0,01). Maridos apresentaram grau de bem-estar significativamente maior do que todos os outros cuidadores (p<0,001). Ansiedade (p<0,01), depressão (p=0,02) e ser mulher (p=0,01) foram fortemente relacionadas com menor bem-estar. O GCQ mostrou-se eficiente para realizar uma avaliação abrangente e multidimensional do cuidador.Palavras-chave: psicologia, neoplasias, cuidadores, cuidados paliativos, ansiedade. Psychological assessment of the caregivers of women with cancer through the General Comfort QuestionnaireAbstract: This study evaluated global well-being of 133 caregivers of women with genital or breast cancer in the advanced stage of disease through the General Comfort Questionnaire (GCQ) and evaluates the association with anxiety, depression, sociodemographic characteristics; and incumbencies of the main caregivers. The Hospital Anxiety and Depression Scale was completed, followed by the GCQ and an interview semi-structured. To assess the effects of the caregivers' characteristics on GCQ scores, analysis of variance followed by Tukey were applied. Stepwise multiple linear regressions were used. The Cronbach's Alpha coefficient was 0.8315. Older caregiver presented better comfort (p<0.01). Caregivers male presented degree of well-being significantly higher than female caregivers. Patients' spouses showed significantly greater GCQ scores than other caregivers (p<0.001). Anxiety (p<0.01), depression (p=0.02), and being woman (p=0.01) were strongly associated with lower well-being. The GCQ was efficient to conduct a comprehensive and multidimensional assessment of the caregiver.Keywords: psychology, neoplasms, caregivers, palliative care, anxiety. Evaluación psicologica de los cuidadores de mujeres con cáncer según el General Comfort QuestionnaireResumen: Este estudio evaluó el bienestar global de 133 cuidadores de mujeres con cáncer genital o de mama en etapas avanzadas de la enfermedad según el General Comfort Questionnaire (GCQ) y analizó la asociación con la ansiedad, depresión, variables sociodemográficas y responsabilidades del cuidador. Fue aplicada la Escala Hospitalaria de Ansiedad y Depresión, el GCQ y una entrevista semi-estructurada. Fueron utilizados el análisis de variación (ANOVA), Tukey y la regresión linear múltiple ...

Relationship between wellness and sociodemographic characteristics of caregivers of people with cancer

“…10,11 Another study showed that male caregivers of people with cancer had a degree of welfaresignificantly higher than the female caregivers. 5 However, in this study, the welfare indices showed no statistically significant difference in relation to gender. It was observed that among caregivers over 60 years, 39.6% were men, while in other age groups this percentage drops to 5.45%.…”

“…The items written in the negative way were inverted during the data processing stage, ie, when presenting the score 6 were converted to 1, and so on. 5 The questionnaire of GCT evaluation has been tested, firstly, in the United States and recently translated into Brazil. 6 The analysis of the Portuguese version assessed the well-being of 133 caregivers of women with cancer, whose Cronbach's Alpha was 0.83 , which indicates the adequacy of the scale and excellent internal consistency among its items.…”

Intergenerational Solidarity and Satisfaction With Life: Mediation Effects With Emerging Adults

“…It has been suggested that it depends on the predominant values in society and most studies are focused on the impact of help recipients (Katz, 2009;Schwarz et al, 2010). It has been assumed that being a help recipient increases wellbeing, while being a provider can constitute a burden, further anxiety and depression and, therefore, reduce wellbeing (Rezende et al, 2010). Receiving help, however, can be perceived as a sign of loss of physical and fi nancial autonomy by the ageing parents (Merz et al, 2010).…”

Revalidation of the Holistic Comfort Questionnaire – Family for caregivers of people with advanced chronic disease

“…We obtained a Cronbach's α of .702 in factor 1, .769 in factor 2, and .854 in factor 3, and a total Cronbach's α of .795, which shows a good internal consistency (Marôco, 2014). This value (α = .795) is lower than that of the original instrument (α = .97), the studies conducted in Portugal (Matos, 2012) and Brazil (Rezende et al, 2010;α = .83), but higher than that found in a study in South Africa (Kim & Kwon, 2007) in which a short version of the instrument (with 24 items) was applied to a sample of 98 patients with cancer (α = .76). However, it should be noted that all studies, except the one conducted in Portugal (Matos, 2012), used a smaller sample than what is considered acceptable (Ribeiro, 2010).…”

“…The HCQ had internal consistency with Cronbach's α of .97 in the family's version, and .98 in the patient's version (Novak et al, 2001). The version for family members -HCQ (Family) -has been used and validated in a study conducted on a sample of 133 informal caregivers of women with advanced genital or breast cancer who were admitted to a hospital institution (Rezende et al, 2010). It was translated and validated for the Portuguese population using a sample of 271 relatives of terminally ill patients admitted to an oncology hospital (Matos, 2012).…”