Aim: To explore parents' satisfaction concerning their child's care during hospitalization and its determinants. Methods: A descriptive, non-experimental correlational design was used. The data collection was based on interviews using a 63 item questionnaire, the Swedish Pyramid Questionnaire. The parents of 206 children (hospitalized in two pediatric and two surgical units) participated in the study. Results: The independent t-test results demonstrated that the parents showed greater satisfaction with staff attitudes and medical treatment, whereas they were less satisfied with the information concerning routines and the staff work environment. The stepwise multiple regression analysis revealed that adequacy of care, adequate pain management, parents' involvement in care, a trusting relationship, and staff attitudes were the most important determinants of parental satisfaction. Conclusion: Interventions in pediatric care should include measurements of parental and child satisfaction as a tool to assess the quality of care.
Objective: The purpose of this study was to evaluate the quality of life of children and adolescents with any type of cancer in all phases of their treatment. Methods: Fifty-six newly diagnosed patients diagnosed with malignancy and hospitalized in a Pediatric Hematology-Oncology Unit in Athens were included in the study. Minneapolis-Manchester Quality of Life Instrument was used for data collection from July 2010 to December 2012. The assessment of children and adolescents' quality of life who were under treatment was performed in three different stages of treatment. Results: The results of the study showed that the quality of life of children and adolescents with cancer did not change notably during their treatment (F = 0.16, P = 0.86 and F = 0.03, P = 0.97). For the first measurement, at the beginning of the therapy, the score on the scale for quality of life for children and adolescents was 3.44 and 3.88, respectively, in the middle of the treatment 3.36 and 3.89, respectively, and 3.43 and 3.89, respectively, when therapy was completed. Children and adolescents diagnosed with hematologic cancer stated higher quality of life scores (z = −1.61, P = 0.05 and t = 2.64, P = 0.007). Moreover, teenage patients (F = 13.22, P = 0.001) and male patients (t = 2.31, P = 0.02 and t = 2.27, P = 0.02) expressed better quality-of-life scores. Conclusion: According to the results, children and adolescents with any kind of cancer have better quality-of-life scores at the end of their treatment, and when they are supported by their family.
Parental reports tended to underestimated children's pain, especially acute pain. The sex of children, the age and the marital status affect the perceptions of both children and their parents about pain. The parental quality of life is affected especially when the pain is caused by life-threatening diseases such as cancer. However, it improves as the treatment of their children is completed with no complications.
although the importance of the family-centred care model is well established, nurses did not that think that it was essential to apply all its aspects in daily practice.
This research has shown that the studied population scored a sufficient QoL, especially survivors of childhood cancer ones. Moreover, their QoL seemed to be influenced by the stage of treatment, the type of cancer, sex, age, family support, and their level of education.
Background: The aim of the present study was to evaluate any possible negative effect of diabetes on the self‐esteem of children and adolescents with diabetes.
Methods: Self‐esteem was evaluated using the Culture‐Free Self‐Esteem Inventory (CFSEI‐2) in 144 patients with Type 1 diabetes mellitus (T1DM; 7–18 years of age) treated in a diabetes center and compared against that of 136 healthy children and adolescents.
Results: Self‐esteem was correlated with age (P = 0.017), but not with diabetes (P = 0.886). The median CFSEI‐2 score for both healthy and diabetic children was 22. There was no significant correlation between self‐esteem and sex, body mass index (BMI), physical exercise, HbA1c or parental educational level. According to Spearman’s rank correlation coefficient (rs), there was a significant association between age and self‐esteem (rs = −0.15). Conversely, although BMI (rs = −0.09) and treatment duration (rs = −0.107) had a slight negative effect on self‐esteem and the duration of physical exercise (rs = 0.11) and parental education (rs = 0.07) seemed to have a positive effect, the associations did not reach statistical significance.
Conclusions: Self‐esteem in diabetic children is mainly affected by their age, level of physical activity and level of family support. These findings emphasize the need to discriminate between glycemic control and diabetic adjustment.
Introduction:Our aim was to investigate biomarkers of neonatal pain and their association with two pain scales.Methods:This prospective study included 54 full-term neonates. Levels of substance P (SubP), neurokinin A (NKA), neuropeptide Y (NPY), and cortisol were recorded and two pain scales (Premature Infant Pain Profile [PIPP] and Neonatal Infant Pain Scale [NIPS]) were used.Results:A statistically significant decrease in the levels of NPY (p= 0.02) and NKA (p= 0.03) was detected. A significant increase in NIPS scale (p< 0.001) and PIPP scale (p< 0.001) postpainful intervention was also detected. There was a positive correlation between cortisol and SubP (p= 0.01), NKA and NPY (p< 0.001) and between NIPS and PIPP (p< 0.001). A negative correlation was found for NPY with SubP (p= 0.004), cortisol (p= 0.02), NIPS (p= 0.001) and PIPP (p= 0.002).Conclusions:Novel biomarkers and pain scales may help in designing an objective tool for the quantification of neonatal pain in the everyday practice.
Oral Abstracts 39 4. Health economic modelling of the costs and effectiveness of CCTH models.
Results:The international evidence base on costs and effectiveness of CCTH remains weak. Three main models of CCTH are evident, with different organisational and delivery features and costs.
Conclusions:Children with complex, long-term care needs, as well as children with acute conditions that will resolve can be and are cared for safely closer to home. However, barriers and facilitators to further development of CCTH need to be addressed before we can understand 'how far we can go'. Background/aims: In family-centred children's services, it is critical to understand how mothers are responding to the challenges that childhood disability brings to the family. Some mothers will meet these challenges with resiliency and adequate coping; others will need more support and assistance from professionals to care for their child. Currently, there are no brief, psychometrically-sound measures of psychological well-being for use during intake to childhood disability services. The aim of this study was to evaluate two new measures designed to assess the need for psychological support in mothers of children with disability. Background: Nowadays, healthcare needs to be more evidence-based, patient-oriented and families´ perspectives must be taken into account in the appraisal of health services.
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