Assessment of quality of life in adolescent patients with cancer and adolescent survivors of childhood cancer

Vlachioti, Efrosini; Perdikaris, Pantelis; Megapanou, Efstathia; Sava, Floria; Matziou, Vasiliki

doi:10.1111/jspn.12154

Cited by 12 publications

(13 citation statements)

References 40 publications

(133 reference statements)

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“…Female body dissatisfaction appeared more prominent than male body dissatisfaction. This is consistent with evidence from general and cancer populations (Ata et al, ; Olsson et al, ; Vlachioti et al, ). However, it should be noted that men typically discuss body image concerns less in telephone interviews than other non‐verbal methods, such as self‐report surveys (Milton, Ellis, Davenport, Burns, & Hickie, ).…”

Section: Discussionsupporting

confidence: 91%

“…The extent to which results and clinical implications can be generalised to a broader AYA population with a diverse range of cancers is unclear. Quantitative data have shown AYA body image to worsen as a result of the cancer experience (Bellizzi et al, ), particularly in women (Olsson, Enskär, Steineck, Wilderäng, & Jarfelt, ; Vlachioti, Perdikaris, Megapanou, Sava, & Matziou, ; Zucchetti et al, ). In a Danish study, more than half of AYA patients and survivors reported that cancer had negatively affected their body image, and 45% reported that it negatively affected their feelings of being attractive (Graugaard et al, ).…”

Section: Introductionmentioning

confidence: 99%

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Impact of physical appearance changes reported by adolescent and young adult cancer survivors: A qualitative analysis

et al. 2019

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Poor body image may be one driver of distress for adolescent and young adults (AYAs) after cancer. We explored physical appearance changes reported by AYA cancer survivors to understand impacts on body image, distress, lifestyle and health behaviours. We recruited AYAs (15–25 years) who had completed cancer treatment. Using semi‐structured interviews, we asked participants about appearance changes resulting from their cancer. We used iterative thematic analyses to explain experiences. Forty‐three participants (51% male, mean age = 21 years) completed an interview. Two key themes emerged. Participants discussed physical appearance changes and psychosocial impacts including appraisal of their changed appearance. Thirty‐eight participants (n = 38/43) reported that their cancer and/or treatment changed their appearance (most commonly: alopecia [n = 15/43], scarring [n = 14/43] and weight gain [n = 11/43]). Ten participants (n = 10/43) acknowledged body dissatisfaction. Other impacts included feeling a loss of identity, not being recognised by peers and feeling helpless to change. Our results have translational significance for AYA care. Body image concerns should be considered a potential barrier to successful reintegration post‐treatment. AYAs may benefit from familial and peer support, healthy lifestyle interventions and clinical environments catering to appearance‐related sensitivities.

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Section: Discussionsupporting

confidence: 91%

Section: Introductionmentioning

confidence: 99%

Impact of physical appearance changes reported by adolescent and young adult cancer survivors: A qualitative analysis

et al. 2019

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“…It is consistent with Elnuweiry, that male was (55.5%) while female was (44.5%) that indicated male with cancer more than female [10]. In addition, the result was agree with Vlachioti et al, which found that 57.1% of the study participants are males, while 42.9% of them are females [11] and supported by Fawzy et al (2013) the result showed that the ratio of males to females was 1.8:1 among study patients [12].…”

Section: Discussionsupporting

confidence: 90%

“…This study showed that (54.1%) of the study participants were diagnosed since more than 2 years, 31 (25.4%) of them were diagnosed since below 1 years, while 25 (20.5%) were diagnosed since 1-2 years, and there is no statistically significant difference in the QOL among children between their different diagnosis years of disease, this result consistent with [11].…”

Section: Discussionsupporting

confidence: 81%

“…The result showed that there is statistically significant difference in the QOL among children between their different number of family members. This result inconsistent with Vlachioti (2016) that there is no statistically significant difference in the QOL among children between their different number of family members [11]. The researcher believes that with a lesser number of family members, parents and caregivers can pay more attention to each individual child, and especially to a child with cancer that is in need for constant care and extra effort to improve his/her QOL.…”

Section: Discussionmentioning

confidence: 91%

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Quality of Life Among Children with Cancer in Gaza Strip

Salah¹

2018

AJHR

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The study aimed to assess quality of life among children with cancer in Gaza Strip and the factors influencing their life conditions. A descriptive, analytic, cross-sectional study include 122 children with cancer whose age was between 7 to 18 years. Data collected at El Ranteesy Specialized Pediatric Hospital and European Gaza Hospital data collected by using the Pediatric Quality of Life Inventory (PedsQL 4.0 generic core scale). Participants were interviewed by the researcher and completed the questionnaire which focused on quality of life included five domains. The result showed that most of the participants have a medium level of quality of life with the mean score was 52.53%. The social function domain got the highest score with equaled (60.98%), physical function domain (52.94%), the school function domain (48.85%), and the lowest domain was emotional function domain with equaled (47.13%). Finding showed that gender, age, hospital, participants' residence, participants' father level of education, participants' mother level of education, diagnosis years for the current disease, and family history of cancer not statically significant difference in the quality of life. Providing psycho-oncology services in ministry of health together with medical treatment, anxiety reduction measurement, provide program that can enhance the level of quality of life, and psychosocial support schedule for children and their families. Finally, guiding the society of how children with cancer treated through improve the awareness and educational campaign and encourage the skills of communication for healthcare givers.

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Body image among adolescents and young adults diagnosed with cancer: A scoping review

et al. 2021

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Objective Cancer and treatment can produce temporary or permanent body changes, which may affect the body image (BI) of adolescents and young adults diagnosed with cancer (AYAs). This evidence has not been comprehensively summarized. A scoping review was conducted to explore the available evidence on BI among AYAs and identify the definitions, theories, models, frameworks, measures, and methods used to assess BI. Methods Databases MEDLINE, EMBASE, PsycINFO (via Ovid) and CINAHL and Gender Studies (via EBSCO) were searched to identify published studies from 1 January 2000 to 25 November 2019. Inclusion criteria were: qualitative, quantitative, or mixed methodology; at least one BI‐related measure or theme; published in English; and majority of the sample between 13 and 39 years at diagnosis and a mean age at diagnosis between 13 and 39 years. Two authors screened the titles, abstracts, and full‐text articles and data were extracted and summarized. Results The search yielded 11,347 articles and 82 met inclusion criteria. Articles included 45 quantitative, 33 qualitative, and four mixed‐methods studies. The majority of studies used cross‐sectional designs, while BI definitions, theories, models, frameworks, and measures were varied. Studies explored descriptive, psychological, physical, coping, and social factors, with BI being described most often as an outcome rather than a predictor. Conclusions Theory‐based research that employs a holistic BI definition and uses longitudinal or intervention study designs or a qualitative methodology is needed to better understand the BI experience of AYAs and inform the development of strategies and programs to reduce BI concerns and increase positive body experiences.

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Assessment of quality of life in adolescent patients with cancer and adolescent survivors of childhood cancer

Abstract: This research has shown that the studied population scored a sufficient QoL, especially survivors of childhood cancer ones. Moreover, their QoL seemed to be influenced by the stage of treatment, the type of cancer, sex, age, family support, and their level of education.

Cited by 12 publications

References 40 publications

Impact of physical appearance changes reported by adolescent and young adult cancer survivors: A qualitative analysis

Impact of physical appearance changes reported by adolescent and young adult cancer survivors: A qualitative analysis

Quality of Life Among Children with Cancer in Gaza Strip

Body image among adolescents and young adults diagnosed with cancer: A scoping review

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