Quality of Life Among Children with Cancer in Gaza Strip

Salah, Motasem

doi:10.11648/j.ajhr.20180605.12

Cited by 6 publications

(5 citation statements)

References 9 publications

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“…Fragmented healthcare services may negatively affect the treatment regimens and daily living activities of patients [ 25 ]. Several studies have underscored a high prevalence of distress and poor QOL among Palestinian patients with life-threatening diseases, including cancer [ 26 , 27 ]. This might be attributed to the limited services tailor-made to meet the healthcare needs of this specific patient group.…”

Section: Discussionmentioning

confidence: 99%

Gathering policymakers’ perspectives as an essential step in planning and implementing palliative care services at a national level: an example from a resource-limited country

2022

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Background Despite increasing recognition of the role played by palliative care (PC) services, the priorities of policymakers in supporting PC remain unclear and have sometimes engendered controversy. There are few studies exploring policymakers’ perspectives towards PC services, with most shedding light on obstacles to PC development. Furthermore, no study has explored policymakers’ perspectives towards providing PC at the national level in resource-limited countries. This study provides a platform for providing PC as part of the Palestinian healthcare system (HCS) by exploring policymakers’ perspectives on PC, an essential step to developing a PC programme. Methods A descriptive qualitative study design was employed using semi-structured interviews. Participants were those identified as responsible for making executive and legislative decisions about health services (including PC) in the HCS. Data were analysed using qualitative content analysis. Results Twelve decision and policymakers participated in the study. Four categories were generated from the content analysis: (1) the nature of current PC healthcare services, (2) the potential benefits of PC, (3) challenges to providing PC, and (4) considerations in providing PC. The current PC services provided to Palestinian patients with life-limiting illnesses and their families are not comprehensive, and are limited to symptom management. There is a Palestinian national strategic plan for developing PC; however, the development goals are not clearly defined, and the plan’s capabilities are inadequate. Several challenges to the provision of PC were found to relate to issues of education and training, the allocation of funding, and the availability of medications. Conclusions Integrating PC into the Palestinian university curricula as a compulsory course and establishing higher degree programmes in PC to overcome the shortage of PC specialists is required. Developing policies aligned with national laws could help enhance health services to patients and their families and resolve several challenges. Cooperating with national and international institutions in seeking funding could boost PC development and medication availability.

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Section: Discussionmentioning

confidence: 99%

Gathering policymakers’ perspectives as an essential step in planning and implementing palliative care services at a national level: an example from a resource-limited country

2022

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“…A study conducted in the same settings as ours by Salah M and his colleagues [14] , but limited to pediatric with cancer only, found that most of the participants had a medium level of quality of life with the mean score was 52.53% using Pediatric Quality of Life Inventory (PedsQL 4.0 generic core scale). They recommended to raise awareness among health care professionals on the importance of communication skills.…”

Section: Discussionmentioning

confidence: 64%

Assessment of Quality of life Among Children with Cancer, Children Undergoing Hemodialysis and Children with Thalassemia: A Comparative Study

Afifi¹,

Khamis²,

Baraka³

et al. 2020

Preprint

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Purpose This study aims to evaluate health-related quality of life among children with different chronic conditions and make a comparison among them. In addition, the study will draw a comparison between children’s perspective about their quality of life and parents’ perspective. Furthermore, the study will address the associations between quality of life with disease severity, duration and the presence of other co-morbidities. Methods This was a prospective, analytical, correlational study design in which Pediatric Quality of Life Inventory (PedsQL 4.0 generic core scale) was administered to assess quality of life on 110 children; 50 children with cancer, 30 children with thalassemia and 30 children undergoing hemodialysis. Researchers interviewed children as well as their parents. Results Results showed that children with Thalassemia had the lowest scores and suffered from poor quality of life compared to the other two groups of children. Interestingly, quality of life level among children undergoing dialysis was lower than children with cancer. However, there were marked discrepancy between child’s and parents’ answers on scale questions. The level of quality of life, in all children, were statistically significant in relation with family size, income and parents’ education. Conclusion We identified high prevalence of poor level of health-related quality of life among children included in this study. The findings support that the quality of life among children with chronic conditions should receive more attention in our local medical settings.

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“…A study conducted in the same settings as ours by Salah M and his colleagues, but limited to pediatric with cancer only, found that most of the participants had a medium level of quality of life with the mean score was 52.53% using Pediatric Quality of Life Inventory (PedsQL 4.0 generic core scale) [14]. They recommended to raise awareness among health care professionals on the importance of communication skills.…”

Section: Discussionmentioning

confidence: 74%

Assessment of Quality of life Among Children with Cancer, Children Undergoing Hemodialysis and Children with Thalassemia: A Comparative Study

2022

IJCMER

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Background: Diagnosing a child with cancer has devastating physical, mental, and psychosocial consequences on the child’s life as well as the whole family. It is estimated that two hundred thousand children and adolescents suffer from different types of cancer worldwide yearly, with the majority living in low and middle-income countries which translates to a high mortality rate in these countries. Objective: This study aims to evaluate health-related quality of life among children with different chronic conditions and make a comparison among them. In addition, the study will draw a comparison between children’s perspective about their quality of life and parents’ perspective. Furthermore, the study will address the associations between quality of life with disease severity, duration and the presence of other co-morbidities. Methods: This was a prospective, analytical, correlational study design in which Pediatric Quality of Life Inventory (PedsQL 4.0 generic core scale) was administered to assess quality of life on 110 children; 50 children with cancer, 30 children with thalassemia and 30 children undergoing hemodialysis. Researchers interviewed children as well as their parents. Results: Results showed that children with Thalassemia had the lowest scores and suffered from poor quality of life compared to the other two groups of children. Interestingly, quality of life level among children undergoing dialysis was lower than children with cancer. However, there were marked discrepancy between child’s and parents’ answers on scale questions. The level of quality of life, in all children, were statistically significant in relation with family size, income and parents’ education. Conclusion: We identified high prevalence of poor level of health-related quality of life among children included in this study. The findings support that the quality of life among children with chronic conditions should receive more attention in our local medical settings.

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Quality of Life Among Children with Cancer in Gaza Strip

Cited by 6 publications

References 9 publications

Gathering policymakers’ perspectives as an essential step in planning and implementing palliative care services at a national level: an example from a resource-limited country

Gathering policymakers’ perspectives as an essential step in planning and implementing palliative care services at a national level: an example from a resource-limited country

Assessment of Quality of life Among Children with Cancer, Children Undergoing Hemodialysis and Children with Thalassemia: A Comparative Study

Assessment of Quality of life Among Children with Cancer, Children Undergoing Hemodialysis and Children with Thalassemia: A Comparative Study

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