The experience of adolescents having mentally ill parents with pasung

Buanasari, Andi; Daulima, Novy Helena Catharina; Wardani, Ice Yulia

doi:10.1016/s1130-8621(18)30043-3

Cited by 10 publications

(24 citation statements)

References 18 publications

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“…Most of villagers believed that the person was possessed and dangerous, that mental illness was an evil spirit (Jin) that should be cured by spiritual or traditional healers. Some of them also thought that mental illness was a disease 5 Buanasari et al (2018) [29] Pasung use with parents with mental illness had a clear psychosocial impact on adolescents. Role changes occurred when the teenager became a breadwinner and caregiver of the parent.…”

Section: Case Control Studiesmentioning

confidence: 99%

The use of pasung for people with mental illness: a systematic review and narrative synthesis

Hidayat

Lawn

Muir‐Cochrane

et al. 2020

Int J Ment Health Syst

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Background Pasung is the term used in Indonesia and a number of other countries for seclusion and restraint of people with mental illness in the community, usually at home by their family. While pasung has been banned because it is contrary to human rights, its practice continues to exist within the community, particularly where community mental health services are limited, and in the absence of adequate social support, and pervasive negatives beliefs about mental illness. It is essential to understand the reasons for the ongoing use of pasung and to examine potential solutions. Methods A systematic review and narrative synthesis of peer-reviewed international literature was conducted to identify the socio-cultural contexts for pasung use, and interventions to address it. The analysis draws on the socio-ecological framework, which focused on relationships between the individual and their environment. Result Fifty published articles were included in the review; all studies were conducted in Asia and Africa, with 32 undertaken in Indonesia. Most studies were qualitative (n = 21). Others included one case–control study, one cross-sectional study, and seven surveys; only four studies examined the application of an intervention, and each used a pre and post methodology. Of these, two studies tested psychoeducational interventions which aimed to overcome family burden due to pasung, and each suggested a community mental health approach. The remaining two studies evaluated the intervention of ‘unlocking’; one study used a community-based culturally sensitive approach, and the other used a community-based rehabilitation program. Reasons for pasung given by family appear to be as a last resort and in the absence of other supports to help them care for the person with severe mental illness. Conclusion The findings highlight that a mixture of individual, interpersonal, community and policy interventions are needed to reduce the use of pasung. While consumer and carer involvement as part of a socio-ecological approach is understood to be effective in reducing pasung, an understanding of how to elaborate this in the management of pasung remains elusive. Review Registration CRD42020157543: CRD

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Section: Case Control Studiesmentioning

confidence: 99%

The use of pasung for people with mental illness: a systematic review and narrative synthesis

Hidayat

Lawn

Muir‐Cochrane

et al. 2020

Int J Ment Health Syst

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“…Factors originated from community includes stigma and discrimination against people with mental illness causing the increased family burden (4)(5)(6)12). Society stigma against people with mental illness and family become the highest cause of pasung (2,5,9).…”

Section: Factors Originated From Communitymentioning

confidence: 99%

“…It consider as an act of human rights violation against people with mental illness found in every places in the world including Africa (2), China (3), or Indonesia (4). Pasung conducted by chain the both legs, tied by rope, tied to the tree, confined by wood log on either hands, neck or leg and locked in the specific room (4)(5)(6). According to law, pasung is an illegal act and violating (Mental Health Act No.…”

Section: Introductionmentioning

confidence: 99%

Factors related to pasung on people with mental illness

Eka¹,

Daulima²

2019

IJNHS

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Physical restraint and confinement (pasung) by families of people with mental illness is known to occur in many parts of the world Pasung is a common human right violation on people with mental illness found on every country in the world especially in developing countries like Indonesia. In Indonesia the term pasung refers to the physical restraint or confinement of "criminals, crazy and dangerously aggressive people. Despite the classification as Human Right Violation, pasung is constantly performed in Indonesia. In 2018, around 18% people with mental ilness experienced pasung. This study aimed to identify factors related to pasung. The researcher conduct the literature review on the credible sources. Five databases were used including Science Direct, Proquest, Scopus, Ebsco, and Google Scholar. Study result identified that factors related to pasung come from person with mental illness, family and community. The pasung phenomena within the community on people with mental illness ironically have a limited sources of research especially the ethnographic study of the said phenomena. Ethnographic study on pasung is important to elucidate the social and cultural meanings of the practice in a variety of settings and cultures especially in Indonesia, which take an enourmous impact within the community including the practice of pasung on people with mental illness.

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“…Worries occur due to schizophrenia patients wandering and doing violence to themselves (the risk of suicide), families, and the surrounding environment, both physically and verbally (Hall et al, 2019;Laila, Mahkota, Krianto, & Shivalli, 2018;Laila et al, 2019;Nihayati, Mukhalladah, & Krisnana, 2016;Puteh, Marthoenis, & Minas, 2011;Subu, Holmes, & Elliot, 2016;Yusuf, Tristiana, & Purwo, 2017). Feelings of pity and fear by the family are also related to the risk of violence to schizophrenia patients by other people (Asher et al, 2017;Buanasari, Daulima, & Wardani, 2018;Hall et al, 2019;Subu et al, 2016) and also the risk of sexual violence (Asher et al, 2017). Based on that risk, the family tries to protect schizophrenia patients by doing pasung (Asher et al, 2017;Laila et al, 2018).…”

Section: Resultsmentioning

confidence: 99%

“…Burn-out is felt aggravated by feelings of helplessness (Asher et al, 2017;Nihayati et al, 2016;Yunita et al, 2019), no support (Asher et al, 2017), and a long-term treatment process (Dewi, Daulima, & Wardani, 2019;Nurhayati et al, 2020). Families with pasung cases continue to feel responsible for meeting the basic daily needs of schizophrenia patients (Buanasari et al, 2018;Hall et al, 2019) and still have hope for their recovery (Yusuf et al, 2017). Concerning the burden of objective family care, financial burdens and damage due to violent behavior are burdens experienced in the family, which led to the decision to pasung (Dewi et al, 2019).…”

Section: Resultsmentioning

confidence: 99%

Family Burden of Schizophrenia in Pasung During COVID-19 Pandemic: A Scoping Review

Ilmy

Noorhamdani

Windarwati

2020

INJEC

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Introduction: The long-term care in schizophrenia patients can cause care burdens, which will relate to the family's decision to do pasung. The perceived burden will be even heavier because of the COVID-19 pandemic. This review aims to identify the family care burden affecting pasung in schizophrenic patients during the COVID-19 pandemic. Methods: This scoping review was conducted by searching four databases, namely ProQuest, Science Direct, and EBSCO, and Google Scholar in the past ten years. This study uses the PRISMA 2009 protocol in filtering articles from the database. Researchers summarize based on the significance value for quantitative research, based on themes’ qualitative research, and discussed factors mentioned which may influence the family. Thus, we obtained 15 articles for final review. Results: The results obtained that the subjective burden felt by the family is a feeling of worry and sadness due to the patient's aggressive behavior and the safety of the patient, family, and environment. The objective burdens most felt by families are financial burdens, both medical costs, transportation to reach mental health services, and the cost of daily living. The COVID-19 pandemic will affect both types of care burdens, thereby affecting the quality of care for families with schizophrenia patients in pasung. Conclusion: Schizophrenia patients are one of the populations that are vulnerable to COVID-19. Nurse plays a role in the ability to overcome the burden of schizophrenia care and improve adaptation to the current pandemic to create optimal mental health in the community.

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The experience of adolescents having mentally ill parents with pasung

Cited by 10 publications

References 18 publications

The use of pasung for people with mental illness: a systematic review and narrative synthesis

The use of pasung for people with mental illness: a systematic review and narrative synthesis

Factors related to pasung on people with mental illness

Family Burden of Schizophrenia in Pasung During COVID-19 Pandemic: A Scoping Review

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