2015
DOI: 10.5935/1414-8145.20150039
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Quality of life among children with cancer: agreement between child and parent reports

Abstract: Objective: To describe the health-related quality of life (HRQoL) among children with cancer; assess agreement between self and proxy-report and identify influencing factors of the differences in self and proxy-report. Methods: A descriptive cross-sectional study was conducted in two pediatric oncology units of two Portuguese hospitals. The study involved hospitalized children with cancer (8-17 years old) and their parents. Results: The child's perception of their HRQoL was 66.0 ± 13.3 and parents' perception … Show more

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Cited by 11 publications
(16 citation statements)
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“…The result of this study showed that (55.7%) are below 9 years, 40 (32.8%) are between 10 and 13 years old, while (11.5%) are between 14 and 18 years old. The highest percentage was observed among child aged below 9 years, while the lowest was observed among child aged 14-18 years, and the result showed that there is no statistically significant difference in the QOL between different age groups of the children, this result consistent with Al Gamal and long (2016) that there was no statistically significant differences between age of the child and total scale QOL [13], and consistent with Batalha et al (2015) indicated that statistically significant differences between the QOL and gender [14]. Here, the researcher explains that the percentage of cancer among children with cancer above 13 years is low compared with younger child on account of the nature of the disease and its complications which led to death with increasing age.…”
Section: Discussionsupporting
confidence: 81%
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“…The result of this study showed that (55.7%) are below 9 years, 40 (32.8%) are between 10 and 13 years old, while (11.5%) are between 14 and 18 years old. The highest percentage was observed among child aged below 9 years, while the lowest was observed among child aged 14-18 years, and the result showed that there is no statistically significant difference in the QOL between different age groups of the children, this result consistent with Al Gamal and long (2016) that there was no statistically significant differences between age of the child and total scale QOL [13], and consistent with Batalha et al (2015) indicated that statistically significant differences between the QOL and gender [14]. Here, the researcher explains that the percentage of cancer among children with cancer above 13 years is low compared with younger child on account of the nature of the disease and its complications which led to death with increasing age.…”
Section: Discussionsupporting
confidence: 81%
“…Moreover, this study showed that there is no statistically significant difference in the QOL between male and female children in the GS which is inconsistent with Al-Gamal and long (2016), that indicated that boys experienced better total QOL and better physical functioning than girls [13], and consistent with Batalha et al (2015) conducted a study to describe HRQOL among children with cancer [14], and indicated that there is no statistically significant difference in the QOL and gender. Additionally, this study also showed that (77.0%) of the study participants do not have family history of cancer, while (23.0%) of them have family history of cancer, and there is no statistically significant difference in the QOL among children between those who have family history of disease and who do not.…”
Section: Discussioncontrasting
confidence: 63%
“…Os dados do presente estudo se aproximam mais dos resultados encontrados no cenário português, em termos da média da QVRS percebida pela criança (66,0 ± 13,3), não obstante se distanciem no que tange à avaliação dos pais (60,3 ± 15,0) 17 . Ou seja, os pais portugueses reportam uma QVRS de seus filhos com câncer, bem mais depreciada do que as mães brasileiras.…”
Section: Discussionunclassified
“…Os estudos mencionados não se referem à realidade do TMO, procedimento que reconhecidamente implica em prejuízos na QV do paciente e do familiar imediatamente após sua realização [1][2][3][4][5][6][7][8][9][10][11][12][13][14][15][16][17][18][19] . Esse comprometimento é de tal magnitude que os autores desenvolveram um módulo da PedsQL™ específico para TMO, levando em consideração as implicações e complicações do próprio procedimento 20 não está disponível para uso na língua portuguesa.…”
Section: Discussionunclassified
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