Quality of Life Reported by Pre-School Children and their Primary Caregivers

Vieira, Martina Estevam Brom; Formiga, Cibelle Kayenne Martins Roberto; Linhares, Maria Beatriz Martins

doi:10.1007/s12187-017-9518-z

Cited by 3 publications

(2 citation statements)

References 52 publications

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“…Furthermore, there have been few studies on the SWB of younger children, with most research conducted with those aged above 10 years (Andresen et al 2019;Rees 2019). Work that has been completed with very young children (aged 4-6) has demonstrated that their perceptions of their quality of life may not correlate with their caregivers' perceptions, emphasising the need to ask young children themselves (Vieira et al 2018).…”

Section: Methodsmentioning

confidence: 99%

“I wish someone would explain why I am in care”: The impact of children and young people's lack of understanding of why they are in out‐of‐home care on their well‐being and felt security

Staines

Selwyn

2020

Child & Family Social Work

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Section: Methodsmentioning

confidence: 99%

“I wish someone would explain why I am in care”: The impact of children and young people's lack of understanding of why they are in out‐of‐home care on their well‐being and felt security

Staines

Selwyn

2020

Child & Family Social Work

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“…Children with communication disorders may find it difficult to accurately report their own experience concerning HRQoL [26,28,29]. However, there are studies suggesting that five-year-old children or even younger children may be able to express their subjective view on HRQoL and well-being [29,30]. Above all, in medical care and child research, it is highly recognized that children's self-reporting of HRQoL is of high value [31].…”

Section: Introductionmentioning

confidence: 99%

Health-Related Quality of Life in Kindergarten Children with Developmental Language Disorder: Child–Mother Agreement

Boukouvala,

Hyphantis,

Koullourou

et al. 2023

Behavioral Sciences

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Language disorders are associated with difficulties in various aspects of life, such as academic and social functioning, resulting in impaired health-related quality of life (HRQoL). Most studies use a parent proxy method to assess HRQoL. Since HRQoL refers to the subjective experience of an individual, it is necessary to assess children’s perspectives along with their mothers’. The aim of the current study is to explore HRQoL rating agreement between children and their mothers, since the literature on other conditions suggests that discrepancies seem to reflect their different perspectives. Thus, 53 Greek-speaking children diagnosed with DLD attending kindergarten and their mothers completed, respectively, self-report and parent proxy PedsQLTM questionnaires. Mothers reported significantly better HRQoL than their children with developmental language disorder (DLD) in all HRQoL domains (p < 0.001). Poor agreement was revealed after comparing the scores from both responders, both in abstract domains, such as emotional functioning, as well as in more observable ones, such as physical health (ICC ranged from −0.05 to 0.07). Bland–Altman plots also showed poor agreement on HRQoL. Our results expand on the already known, from other conditions, importance of evaluating children’s subjective experience of their HRQoL in kindergarten children with DLD. A multi-informant approach is ideal, and clinicians should prioritize children’s view about their lives even when they are kindergarten-age. This approach could inform interventions focusing not only on language skills but also on other areas where it is necessary, depending on the child’s subjective experience combined with the maternal perspective.

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“Hear my Voice”: Subjective Well-Being Scale for Young Children (SWB-YC)

Gündoğan

2021

Child Ind Res

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Quality of Life Reported by Pre-School Children and their Primary Caregivers

Cited by 3 publications

References 52 publications

“I wish someone would explain why I am in care”: The impact of children and young people's lack of understanding of why they are in out‐of‐home care on their well‐being and felt security

“I wish someone would explain why I am in care”: The impact of children and young people's lack of understanding of why they are in out‐of‐home care on their well‐being and felt security

Health-Related Quality of Life in Kindergarten Children with Developmental Language Disorder: Child–Mother Agreement

“Hear my Voice”: Subjective Well-Being Scale for Young Children (SWB-YC)

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