Nursing interventions in monitoring the adolescent with Cystic Fibrosis: a literature review

Abstract

Objectives:to search for nursing interventions focused on the improvement of quality of life and promotion of self-care of adolescents suffering from the Cystic Fibrosis. Method:literature review. The inclusion criteria were: primary studies and studies with interventions developed by nurses in the adolescent population with Cystic Fibrosis, using Portuguese, Spanish, French and English with no time limit, and supported by the databases Scopus, Web of Science and CINAHL. The search expressions were: nursing AND care AND adolescent AND "Cystic Fibrosis" AND ("quality of life" OR "self-care"). Results:a total of 59 articles was retrieved; 8 matched the criteria chosen. Nursing interventions targeted at adolescents with Cystic Fibrosis and their family members were identified. These interventions were organized according to the nurses' role, namely caregiver, coordinator, counsellor, researcher, trainer and care partner. Conclusions:nursing interventions targeted at following up the adolescent during the entire therapeutic process, involving the presence of parents/significant others, since both the adolescent and family have to be responsible for self-care. Healthcare professionals should be capable of identifying the specific needs of patients with chronic disease and their family, permitting a better understanding and adaptation to the health-disease transition process.

The experience of living with and managing cystic fibrosis related diabetes: a qualitative review

“…Cystic fibrosis was often viewed as the most important illness because it is life-limiting; however, the importance in optimising the management and support of people with CFRD needs addressing because the presence of CFRD is associated with increased morbidity and mortality (Lewis et al, 2015). This review’s findings also echo nursing guidance for CF care, specifically the profession’s need to understand different phases of the disease process, with its ability to offer phase-specific interventions that support adaptation to the health-disease process (CFT, 2001; Reisinho and Gomes, 2016). Our findings suggest there are intervention opportunities for nurses and allied health professionals at three stages in the CFRD phase: pre-diagnosis, at the point of diagnosis and ongoing management.…”

“…Nurse specialists are responsible for patient advocacy, clinical management, advice and support, education, research and management, including the co-ordination of some teams (CFT, 2001). However, CF care is also delivered by non-specialists in ward and community-based services including registered nurses with responsibilities for child or adult care (Reisinho and Gomes, 2016).…”

Experiences of family members of children with cystic fibrosis under the light of Callista Roy

“…It is known that the task of caring for someone does not directly lead to symptoms of depression, health problems, or social isolation for the caregiver. An alternative to the desired rest and psycho-emotional health care would be the help of family members to take turns in healthcare tasks, and the training of the health team on how to deal with specific aspects of the pathology and the degree of dependence of the patient (20) .…”

Possible Solutions as a Concept in Behavior Change Interventions

“…Nursing interventions are actions taken by nurses to assist patients reach predetermined goals (Rice, Heath, Livingstone‐Banks, & Hartmann‐Boyce, ). As such, nurses at the bedside and those in advance practice roles utilize critical thinking, knowledge, judgment, and experience to maintain, improve, and restore health and wellness (Reisinho & Gomes, ). Since nursing is philosophically grounded in the tenets of holistic care, nursing practice is patient‐centered, and nursing interventions are individualized to help the patient achieve optimum health outcomes (Lauver et al., ; Pender, Murdaugh, & Parson, ).…”