Intervention in informal caregivers who take care of older people after a stroke (InCARE): study protocol for a randomised trial

Abstract

The InCARE programme will highlight new ways to understand the feasibility of a large trial, which supports caregivers who take care of older people after a stroke. It will be expected that the level of burden decreases, thus helping informal caregivers enhance their quality of life. Also, it is expected that older people's functionality will be improved and that hospital readmission or institutionalization may be avoided.

Training informal caregivers to care for older people after stroke: A quasi‐experimental study

“…In addition, the InCARE programme provided informal caregivers telephone counselling and support on stroke rehabilitation as well as practical skills, at home, on the 3rd, 6th, 8th and 10th weeks, to help in their decision‐making. This study is registered at clinicaltrials.gov with ID number NCT02074501 and was published by the authors (Araújo, Lage, Cabrita, & Teixeira, ).…”

“…The 32 items of ECPICID‐AVC (Araújo et al., ) present a total internal consistency of 0.83, with the lower value associated to factor 5 (0.67) and the greatest value associated to factor 1 (0.98). The eight factors of the scale determined through the Kaiser normalization explain 77.4% of the total variance.…”

Content Validation of Nursing Outcomes in Relation to Family Caregivers: Content Validation by Brazilian and Colombian Experts

“…The stress experienced by family caregivers due to deprivation, responsibilities and care demands can result in anger, guilt, resentment, sorrow 23 and a desire to get rid of the cause of stress by sending the recipient of care to an instituion. [24][25] The responsibility to provide can also cause a sense of loss of identity, lower levels of self-esteem, constant concern or uncertainty. 26 On the other hand, feelings of spiritual well-being can decrease the perception of burden among caregivers and are positively related to the caregivers' mental health.…”

Nursing home care educational intervention for family caregivers of older adults post stroke (SHARE): study protocol for a randomised trial

“…Some studies have described models of educational intervention directed to caregivers of stroke survivors at home after discharge, using telephone or educational groups conducted by nurses or multidisciplinary teams [8, 22–24]. They focus on the training of technical skills for care, resulting in beneficial results for the older adults and their caregivers [5, 25]. …”