Introduction: chronic kidney disease-DRC generates physical, social, and emotional constraints with serious repercussions on the patient's life. Many have their lives limited to the treatment and refrain from an active and functional life. However, professional practices of assistance are focused on the clinical aspects of the disease, and some consider the patients' experience with the illness. Objective: to understand the perception of DRC carriers in their productive phase about the limitations resulting from the illness. Methods: this was a qualitative study conducted from January to July of 2010. We interviewed nine people in their productive stage and on dialysis treatment in the HUUF-MA. The saturation criterion was used for samples and interviews were analyzed using the thematic analysis. Results: the thematic units in this study were: to have chronic kidney disease-perceptions about the limitations of kidney disease; pilgrimage-in search of diagnosis; and a new family organization. The experience of the chronic kidney disease patient occurs in the disease universe and treatment. Most of them understand the DRC from negative elements, probably due to the incorporation of the restrictive features of dialysis, while others experience this with the perception of some gains. Conclusion: