Chronic kidney disease patients in the productive phase: perception of limitations resulting from illness

Abstract

Introduction: chronic kidney disease-DRC generates physical, social, and emotional constraints with serious repercussions on the patient's life. Many have their lives limited to the treatment and refrain from an active and functional life. However, professional practices of assistance are focused on the clinical aspects of the disease, and some consider the patients' experience with the illness. Objective: to understand the perception of DRC carriers in their productive phase about the limitations resulting from the illness. Methods: this was a qualitative study conducted from January to July of 2010. We interviewed nine people in their productive stage and on dialysis treatment in the HUUF-MA. The saturation criterion was used for samples and interviews were analyzed using the thematic analysis. Results: the thematic units in this study were: to have chronic kidney disease-perceptions about the limitations of kidney disease; pilgrimage-in search of diagnosis; and a new family organization. The experience of the chronic kidney disease patient occurs in the disease universe and treatment. Most of them understand the DRC from negative elements, probably due to the incorporation of the restrictive features of dialysis, while others experience this with the perception of some gains. Conclusion:

The body marked by the arteriovenous fistula: a phenomenological point of view

“…The body marked by the arteriovenous fistula: a phenomenological point of view Silva DM, Silva RMCRA, Pereira ER, Ferreira HC, Alcantara VCG, Oliveira FS. and, in some cases, their speech attempts to deny such effects by "conformity," frequently, in the halls of hemodialysis clinics and in the life-world, as evidenced by other studies (21)(22) . Conformity is generally characterized by passivity and resignation before the disease and the treatment.…”

Quality of life of patients on peritoneal dialysis and its impact on the social dimension

“…Dialytic treatment can lead to intense transformations in the lives of these patients, so that they end up having repercussions on social and psychological dimensions, interfering in social and family relations, being necessary to relearn to live and coexist with a routine permeated by technical procedures, queries. Faced with conflicts and emotional instabilities, studies conducted with the same profile of patients, about the limitations resulting from illness, indicate that many patients become socially affected, opting for social isolation, moving away from friends and relatives [14][15][16] .…”

“…A raised inference about social discrimination can be due to the fear of contagion in the face of the population's disinformation regarding the non-transferability of this disease and its causes and, in this sense, the health team plays a fundamental role in clarifying the family 16 .…”

“…The presence of a chronic illness in the family can encourage members to come together to support and assist in providing care. Family support becomes an essential element in the context of peritoneal dialysis, ensuring compliance with treatment and promoting a better QoL 4,16 . Participants expressed satisfaction with the dedication of their relatives, which can also be observed in the results of the application of the QoL tool, which points out repercussions in the areas: Patient Satisfaction (85.0), Social Function (78, 75) and Social Support (75), whose items make reference to social activities and the degree of satisfaction regarding family support, kindness and care received.…”

“…The results in the KDQOL-SF questionnaire showed an extremely low score in the Work Situation (10.0) domain, as well as low scores in the Physical Functioning (48.5) and Kidney Disease Load (54.38). Studies [4][5]16 indicate that, in fact, these are factors that impede the accomplishment of the working day or the accomplishment of the labor activities.…”