Stress related to care: the impact of childhood cancer on the lives of parents

Alves, Daniela Fernanda dos Santos; Guirardello, Edinêis de Brito; Kurashima, Andréa Yamaguchi

doi:10.1590/s0104-11692013000100010

Cited by 29 publications

(32 citation statements)

References 17 publications

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“…, Alves et al . ). In addition, children are more prone to complications than adults, because they depend on parents and caregivers for the communication of their needs (Kaushal et al .…”

Section: Introductionmentioning

confidence: 97%

Nursing practice environment, job outcomes and safety climate: a structural equation modelling analysis

2016

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“…, Alves et al . ). In addition, children are more prone to complications than adults, because they depend on parents and caregivers for the communication of their needs (Kaushal et al .…”

Section: Introductionmentioning

confidence: 97%

Nursing practice environment, job outcomes and safety climate: a structural equation modelling analysis

2016

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“…The care is a constant transition that goes from overwork to privilege and, although the suffering of parents of a child with cancer results in high levels of stress and anxiety, this feeling reveals itself in commitment and dedication of family members experiencing a constant struggle for the child's life. (7) When faced with the reality of having a child with cancer, the caregivers seek a meaning for their and the child's pain. The suffering that comes from cancer sets families at the edge of life and this experience connects itself to spirituality, in an attempt to derive meaning for their suffering.…”

Section: Discussionmentioning

confidence: 99%

Concepções de cuidado e sentimentos do cuidador de crianças com câncer

et al. 2013

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Objective: To analyze the conceptions of care and the feelings which permeate the daily life of the family caregiver of children with cancer. Methods: Qualitative research conducted with nine family caregivers of children with cancer. Semi-structured interviews were performed. The empirical material was submitted to French Discourse Analysis, producing the discursive formation of the family caregiver of the child with cancer: associated feelings and emotions. Results: The comprehension of care is permeated by the legacy of dedication, selflessness and moral obligation from the perspective of parents who are caregivers. The feeling and emotions experienced in this trajectory, such as guilt, punishment and sin, were revealed between the lines of the caregiver. Conclusion: The conceptions of care are a boon, a feeling of exclusive dedication to the child with cancer. In the discourse analysis it was possible to dive into the feelings and the relationship of ambiguity experienced by the parents, who often feel overwhelmed and powerless, but who do not accept being replaced in their role as caregiver. ResumoObjetivo: Analisar as concepções de cuidado e os sentimentos que permeiam o cotidiano do cuidador familiar de crianças com câncer. Métodos: Pesquisa qualitativa realizada com nove cuidadores familiares de crianças com câncer. Foram realizadas entrevistas semiestruturadas. O material empírico foi submetido à Análise de Discurso francesa, sendo produzida a formação discursiva cuidador familiar da criança com câncer: sentimentos e emoções associados. Resultados: A compreensão do cuidar é permeada pelos legados da dedicação, abnegação e obrigação moral na perspectiva dos pais cuidadores. Os sentimentos e emoções vivenciados nessa trajetória, como culpa, castigo e pecado, se revelaram nas entrelinhas do cuidador. Conclusão: As concepções do cuidado são de uma dádiva, um sentimento de dedicação exclusiva a criança com câncer. Na análise dos discursos foi possível mergulhar nos sentimentos e na relação de ambiguidade vivenciada pelos pais que, muitas vezes, sentem-se sobrecarregados e impotentes, mas não aceitam serem substituídos na sua função de cuidador.

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“…Sementara itu penelitian di Brazil yang dilakukan oleh Alves et al (2013) menunjukkan hasil yang berbeda dimana orangtua anak dengan kanker memiliki level stres dan kecemasan yang lebih tinggi pada orangtua dengan usia dewasa muda, usia anak masih terlalu kecil, dan baru saja mengetahui kalau anaknya menderita kanker. Ketakutan terhadap kematian anak dan dampak penyakit terhadap kualitas hidup anak merupakan kondisi penuh stres yang membuat orangtua semakin stres dan cemas.…”

Section: Pembahasanunclassified

Self-Efficacy Parents in Undergoing Child Cancer Treatment at the Rumah Kanker Anak Cinta Bandung

Hendrawati¹,

Nurhidayah²,

Mardhiyah³

2019

NLJ

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The incidence of cancer in children is increasing and has entered into the top ten most prevalent diseases in children. Cancer in children have an impact both physical and psychosocial changes that can occur as a result of the disease and the side effects of treatment. The treatment for children with cancer should be done continuously and lasts a long time, so the role of parents in supporting the treatment is very important. Parents are the important factors to implementation of family centered care in the treatment and care for children with cancer. The implementation of family centered care is influenced by the self efficacy belief of parents. This study aimed to identify parental self efficacy in the treatment of children with cancer at the Rumah Kanker Anak Cinta Bandung. This study used a descriptive quantitative. The sample in this study was chosen by consecutive sampling, and found 40 samples within a month. Data collection using questionnaires developed based on Bandura theory (1997). Data was analyzed using descriptive analyzes by frequency and persentation. The results showed that the majority of parents who have children with cancer have a high self efficacy as many as 23 people (57.5%). Parents who have children with cancer in this study had a high ability or confidence (self efficacy) in treating children with cancer. So that it can be very supportive for the process of care, treatment, and cure of children, which expected to improve the quality of life for children with cancer. ABSTRAKInsidensi kanker pada anak semakin meningkat dan sudah masuk menjadi sepuluh besar penyakit terbanyak pada anak. Kanker anak memberikan dampak perubahan, baik fisik maupun psikososial yang dapat terjadi akibat perjalanan penyakit maupun efek samping pengobatan. Penanganan kanker pada anak dilakukan secara berkesinambungan dan berlangsung lama, sehingga peran orangtua dalam mendukung pengobatan sangat penting. Orangtua merupakan faktor penting dalam penerapan perawatan berpusat keluarga pada pengobatan dan perawatan anak dengan kanker. Penerapan perawatan berpusat keluarga ini sangat dipengaruhi oleh kepercayaan akan efikasi diri orangtua. Dengan demikian maka perawat harus dapat mengidentifikasi efikasi diri pada orangtua anak dengan kanker untuk membuat suatu intervensi keperawatan yang tepat untuk meningkatkan efikasi diri orangtua, sehingga dapat mendukung perawatan anak kanker. Penelitian ini bertujuan untuk mengidentifikasi efikasi diri pada orangtua dalam menjalani pengobatan kanker anak di Rumah Kanker Anak Cinta Bandung. Penelitian ini menggunakan metode deskriptif kuantitatif. Sampel dalam penelitian ini dipilih dengan cara consecutive sampling, sehingga

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Stress related to care: the impact of childhood cancer on the lives of parents

Cited by 29 publications

References 17 publications

Nursing practice environment, job outcomes and safety climate: a structural equation modelling analysis

Nursing practice environment, job outcomes and safety climate: a structural equation modelling analysis

Concepções de cuidado e sentimentos do cuidador de crianças com câncer

Self-Efficacy Parents in Undergoing Child Cancer Treatment at the Rumah Kanker Anak Cinta Bandung

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