Empoderamento da mulher cuidadora de crianças com necessidades especiais de saúde

Abstract

A demanda de cuidados às crianças com necessidades especiais de saúde promove desgaste físico e mental da cuidadora. Para analisar as implicações dessas demandas sobre o empoderamento da cuidadora, desenvolveu-se uma pesquisa qualitativa. Onze cuidadoras acompanhantes, de um hospital do sul do Brasil, foram organizadas em três grupos, entre 2004-2005. Utilizou-se a análise de discurso no relatório de três dinâmicas do método criativo-sensível. O empoderamento individual das cuidadoras foi construído no enfrentamento das situações-limites dos cuidados e no encontro com os profissionais de saúde. O papel de boa mãe e de cuidadoras dedicadas, abnegadas levou-as a abdicar de sua condição feminina, gerando isolamento social, sofrimento e estresse. O empoderamento individual opressivo as distanciou do empoderamento coletivo libertador; a cuidadora foi valorizada em sua condição materna e não na feminina. As práticas de empoderamento individual, centradas na abnegação e dedicação, possibilitam a reflexão e ação no processo de empoderamento coletivo.

Chronic disease in childhood and adolescence: continuity of care in the Health Care Network

“…In the first phase of the study, the parents or legal guardians of children and adolescents with chronic diseases were identified in a referral hospital for these diseases. This decision was made because a study (7) indicated the distancing of these users from FHS services. The criteria for inclusion of family members were: being the parents or legal guardians of children and adolescents with chronic diseases and being older than 18 years of age.…”

“…In this context, the Family Health Strategy (FHS) aims to reorganize Primary Health Care (PHC) and coordinate care (6) to ensure its continuity from the perspective of longitudinality. However, it has not adequately addressed the demands of children and adolescents with chronic illness and their families, resulting in dissatisfaction and disregard of that service as a trusted source of care (7) . Studies (6,8) indicate that limitations in the continuity of care include gaps in the system of reference and counter reference and the limited coordination of Unified Health System (Sistema Único de Saúde -SUS) as a whole because of the inefficient communication between services and network professionals.…”

Criança com HIV/AIDS: percepção do tratamento antirretroviral

“…It is still possible to highlight the importance of this knowledge acquisition by the children as a first step toward self-care (19) . This information can be useful as tools for transitivity of consciousness, causing them to become aware of their health condition and subsequently individual empowerment (20) to continue the treatment during adolescence and adulthood.…”

Vivências de familiares de crianças internadas em um Serviço de Pronto-Socorro

“…The constant surveillance of the child's health condition and the events experienced by the caregiver and the child represent potential risks of psychological weariness in the family sphere, leading caregivers to manifest feelings that accrue from the difficulty of dealing with the situation (21) .…”

“…Internal pressure includes factors intrinsic to the individual such as: anxiety, loneliness and guilt, among others (21) . Emotional changes were identified among the interviewed.…”