Chronic disease in childhood and adolescence: continuity of care in the Health Care Network

Nóbrega, Vanessa Medeiros da; Silva, Maria Elizabete de Amorim; Fernandes, Leiliane Teixeira Bento; Viera, Cláudia Silveira; Reichert, Altamira Pereira da Silva; Collet, Neusa

doi:10.1590/s1980-220x2016042503226

Cited by 49 publications

(87 citation statements)

References 13 publications

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“…Corroborating these findings, studies on the importance of health professionals considering sociocultural conditions in addition to biological factors, in their care practice, showed that the intervention on the social network of those receiving care is not yet the focus of attention of these professionals (10)(11) .…”

Section: Discussionmentioning

confidence: 99%

“…Studies tackled the importance of social networking support for families of children with chronic diseases, demonstrating that a strengthened network contributed to coping with the chronic condition (5,7,(11)(12) . From this perspective, it is worthwhile to consider health professionals, especially nurses, to offer or support the necessary needs for care for these children in the various levels of health care, by means of a relationship of mutual trust that favors coping with adversities and therapeutic events (13) .…”

Section: Introductionmentioning

confidence: 99%

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Social network of children with cronic disease: knowledge and practice of nursing

2020

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Objectives:To identify the knowledge and practice of primary care nurses about the social network approach for fa milies of children with chronic diseases. Methods: Qualitative research, conducted by means of interviews with 23 family health nurses, from one municipality in Paraíba and one in Rio de Janeiro, from June to July of 2017. The data were interpreted using thematic analysis. Results: Social network meant institutional support offered by services outside the unit, and socioeconomic problems involved the family context. In practice, nurses find it difficult to provide comprehensive care and establish ties with families. When referring to other professionals, a weakness in the counter-referral to the family health unit is found. Final considerations: Some gaps were found regarding the knowledge and practice of nurses regarding the social network approach, which requires professional training to strengthen social relationships and the necessary support for families of children with chronic diseases.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Social network of children with cronic disease: knowledge and practice of nursing

2020

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“…Health care provided to these patients should be specific, organized in networks that provide actions and services to fulfill their needs. However, the existence of these services from care networks constitutes possibilities, but only an articulation between the services and organization of care provision with common purposes, such as compliance with principles of the Unified Health System (SUS) and care organization based on patient needs, can ensure networks of care (6) and access of these patients aiming to reduce hospital admissions.…”

Section: Introductionmentioning

confidence: 99%

Predictive model of hospitalization for children and adolescents with chronic disease

et al. 2020

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Objectives: Describe a predictive model of hospitalization frequency for children and adolescents with chronic disease. Methods: A decision tree-based model was built using a database of 141 children and adolescents with chronic disease admitted to a federal public hospital; 18 variables were included and the frequency of hospitalization was defined as the outcome. Results: The decision tree obtained in this study could properly classify 80.85% of the participants. Model reading provided an understanding that situations of greater vulnerability such as unemployment, low income, and limited or lack of family involvement in care were predictors of a higher frequency of hospitalization. Conclusions: The model suggests that nursing professionals should adopt prevention actions for modifiable factors and authorities should make investments in health promotion for non-modifiable factors. It also enhances the debate about differentiated care to these patients. RESUMOObjetivos: Descrever um modelo preditor de frequência de internação hospitalar para crianças e adolescentes com doença crônica. Métodos: Foi construído um modelo baseado em árvore de decisão, a partir do banco de dados de 141 crianças e adolescentes, com doença crônica, internados em um hospital público federal. Para construção do modelo, foram incluídas 18 variáveis e a frequência de internação foi definida como desfecho. Resultados: Obteve-se uma árvore de decisão capaz de classificar corretamente 80,85% dos participantes. A leitura do modelo proporcionou o entendimento de que as situações de maior vulnerabilidade, como desemprego, baixa renda, restrições e ausência de envolvimento da família no cuidado, foram preditoras da maior frequência de internação hospitalar. Conclusões: O modelo sugere à enfermagem e equipe ações de prevenção para os fatores modificáveis e investimentos em promoção à saúde para os fatores não modificáveis e fortalece o debate sobre o cuidado diferenciado para esse público. RESUMENObjetivos: Describir un modelo predictor de frecuencia de internación hospitalaria para niños y adolescentes con enfermedades crónicas. Métodos: Se construyó un modelo basado en árboles de decisión, utilizando un banco de datos de 141 niños y adolescentes con enfermedades crónicas internados en hospital público federal. Para elaborar el modelo fueron consideradas 18 variables, la frecuencia de internación fue definida como desenlace. Resultados: Se obtuvo un árbol de decisiones capaz de clasificar correctamente al 80,85% de los participantes. La lectura del modelo permitió entender que las situaciones de mayor vulnerabilidad, como desempleo, bajos ingresos, restricciones y ausencia de compromiso familiar para el cuidado, actuaron como predictoras de mayor frecuencia de internación hospitalaria. Conclusiones: El modelo sugiere a la enfermería y equipo acciones preventivas para aquellos factores modificables, e inversión en promoción de salud para los factores no modificables; fortaleciendo también el debate sobre el cuidado diferenciado para esta población.

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“…Thus, nurses must be sensitive to receive these families with extended, continuous, proactive and determinative care. (13,(14)(15)(16) In this context, it is imperative to prove the existence of CSHCN in adolescence, to allow their voices to be heard, understanding the care process in their daily life, and based on this, to provide differentiated care to this population.…”

Section: Introductionmentioning

confidence: 99%

Cotidiano de cuidado de adolescentes com necessidades especiais de atenção à saúde

Silveira

Neves

2019

Acta paul. enferm.

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Objective: To understand the daily care of adolescents with special health care needs. Method: Qualitative study, based on the critical and liberating pedagogy of Paulo Freire and conducted in the pediatric outpatient clinic of a teaching hospital, in the second semester of 2016. The study was based on analysis of medical records, semi-structured interviews and construction of genograms and ecomaps of 35 adolescents with some kind of health demand. After the double transcription, the interviews were submitted to Pecheux discourse analysis. Results: The daily care of these adolescents occurs through personal hygiene, physical appearance, medication use, nutrition and modifi ed habits. The discourse of the adolescents presented different levels of emancipation: sometimes care was developed by adaptation and alienation, revealed by habits and by the need to develop the care through a technical reproduction, which contributes to oppression; and at other times it is developed with the possibility of emancipation, based on refl ection on their reality and on the action of positioning themselves. Conclusion: The daily care of these adolescents is full of possibilities and abilities at different levels of emancipation. The absence of dialogue, exchange of knowledge and refl ection can contribute to the process of oppression. Nursing professionals need to enable the exchange of knowledge and refl ection, so that the adolescent can transitions from a naive to critical conscience.

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Chronic disease in childhood and adolescence: continuity of care in the Health Care Network

Cited by 49 publications

References 13 publications

Social network of children with cronic disease: knowledge and practice of nursing

Social network of children with cronic disease: knowledge and practice of nursing

Predictive model of hospitalization for children and adolescents with chronic disease

Cotidiano de cuidado de adolescentes com necessidades especiais de atenção à saúde

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