O (não)dito da AIDS no cotidiano de transição da infância para a adolescência

Paula, Cristiane Cardoso de; Cabral, Ivone Evangelista; Souza, Ívis Emília de Oliveira

doi:10.1590/s0034-71672011000400005

Cited by 21 publications

(15 citation statements)

References 11 publications

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“…In addition to the difficulty in disclosing the diagnosis, there is also the fear of sharing this information with other people 28 . Non-disclosure of HIV diagnosis may give rise to delayed physical and emotional development of the adolescent, generating, for example, a childish behavior 29 .…”

Section: Resultsmentioning

confidence: 99%

“…It is worth noting that some legal representatives demonstrated concern as to the diagnosis disclosure to people other than the health team and family members. Such attitude is based on the ethics of care and their rights, because their desire is that there is no labeling arising from the disease and that the treatment is not carried out differently because of HIV infection 29 .…”

Section: Resultsmentioning

confidence: 99%

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Ética na pesquisa com adolescentes que vivem com HIV/Aids

et al. 2015

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The article have sought to portray the experience of ensuring observance of the ethical aspects involved in data gathering with adolescents living with HIV/Aids. Data gathering in two studies is reported: one , using a quantitative approach with a cross-sectional design, with 23 adolescents, and another with a qualitative focus, with 8 adolescents. For both, the criteria for participation included current use of anti-retroviral therapy, awareness of their diagnosis, and being subject to outpatient monitoring at a specialized care service. Guaranteeing the ethical principles -autonomy, doing no harm, beneficence and justice involved: how to approach the adolescents to invite them to participate in the survey, the adolescents' fears regarding the research, the protection of family members and caregivers, the revelation of the diagnosis to the adolescent and to third parts, and confidentiality. The report of our experience aims to contribute to the discussion of issues involving the guarantee of ethical aspects in research. Keywords: Acquired Immunodeficiency Syndrome. HIV. Adolescent health. Research ethics. Nursing. Resumo Ética na pesquisa com adolescentes que vivem com HIV/AidsCom o presente trabalho, objetivou-se relatar a experiência de garantir os aspectos éticos envolvidos na etapa de coleta de dados com adolescentes que vivem com HIV/aids. Trata-se de relato de coleta de dados de duas pesquisas: uma, de abordagem quantitativa e delineamento transversal, com 23 adolescentes, e outra, de enfoque qualitativo, com 8 adolescentes. Para ambas, os critérios de participação dos adolescentes incluíram: estar em uso de terapia antirretroviral, ter conhecimento de seu diagnóstico e manter seguimento ambulatorial em serviço especializado. A garantia dos principios éticos -autonomia, não maleficência, beneficência e justiça -envolveram: a forma de abordagem para participar da pesquisa, os receios dos adolescentes quanto à pesquisa, a proteção dos familiares/cuidadores, a revelação do diagnóstico ao adolescente e a terceiros e o sigilo. O relato da experiência pretende contribuir para a discussão acerca das questões que envolvem a garantia dos aspectos éticos nas pesquisas. Palavras-chave: Síndrome da imunodeficiência adquirida. HIV. Saúde do adolescente. Ética em pesquisa. Enfermagem. ResumenÉtica en la investigación con adolescentes que viven con el VIH/SIDA El presente trabajo tiene como objetivo informar la experiencia de garantizar los aspectos éticos involucrados en la etapa de recolección de datos de los adolescentes que viven con el VIH/SIDA. Esto es un relato de la recolección de datos de dos investigaciones; una de un enfoque cuantitativo y diseño cruzado con 23 adolescentes y otra de enfoque cualitativo con 8 adolescentes. Para ambas, los criterios de participación de los adolescentes incluyen: estar en uso de la terapia anti-retroviral, saber sobre su diagnóstico y estar bajo tratamiento de servicio especializado. La garantía de principios éticos -autonomía, no maleficencia, beneficencia y justicia i...

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Ética na pesquisa com adolescentes que vivem com HIV/Aids

et al. 2015

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“…Revealing the diagnosis involves not only the relatives and/or caregivers, but those who are part of daily care, such as the health professionals. [13][14] Hence, the objective is to understand the adolescent's existential movement in view of the diagnostic disclosure experience of HIV.…”

Section: -12mentioning

confidence: 99%

Experience of Diagnosis Disclosure for Teenagers With Hiv

Brum

Paula

Padoin

et al. 2016

Texto contexto - enferm.

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Phenomenological study with the objective of understanding the existential movement of teenagers in their experience of the disclosure of the human immunodeficiency virus diagnosis. The field research was undertaken at a university hospital in the South of Brazil, including phenomenological interviews with 12 teenagers. The analysis was based on Martin Heidegger's reference framework. The results appointed that the teenagers showed they have rules and limits for having something that the others do not have and accept taking their medication. They keep busy with their treatment due to family members' dominant solicitude. Over time, they learn to take care of themselves. By understanding the reasons for the treatment, based on the liberating request of their relatives and/or health professionals, they are concerned with taking care of themselves. Professional actions need to contemplate the biological and subjective dimension, with a view to going beyond the prescription, in order to commit the teenagers to their care.

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“…Após aprovação pelos Comitês de Ética em Pesquisa de três hospitais do Rio de Janeiro (protocolos de aprovação EEAN/UFRJ 096/06; IPPMG/UFRJ 09/07; HUGG/UNIRIO 36/07), entrevistou-se 11 meninos (as) de 12 a 14 anos, que conheciam seu diagnóstico (8)(9)(10)(11) . A aprovação pelo Comitê de Ética da(s) instituição(ões) que compõe(m) o(s) cenário(s) para produção dos dados é imprescindível, por tratar-se de pesquisa envolvendo seres humanos, conforme a Resolução brasileira nº 196/96.…”

Section: Modos De Conducción De La Entrevista En La Investigación Fenunclassified

Driving modes of the interview in phenomenological research: experience report

Paula¹,

Padoin²,

Terra³

et al. 2014

Revista Brasileira De Enfermagem

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RESUMOO objetivo deste artigo é relatar a experiência dos modos de condução da entrevista na produção de dados em pesquisa fenomenológica. O estudo proposto trata de um relato de experiência de uma investigação fenomenológica na qual as pesquisadoras apresentam sua experiência com crianças, tendo como suporte a entrevista como encontro existencial. Para tanto, descrevem-se os modos de condução da entrevista em suas dimensões ôntica e ontológica. A ôntica se refere aos fatos relacionados à entrevista, presentes no pesquisador, no sujeito pesquisado e no ambiente, tanto no seu planejamento quanto no seu desenvolvimento. A ontológica é fundada na empatia e intersubjetividade. A entrevista possibilita o acesso a estruturas significantes para a compreensão do ser, de modo a construir possibilidades investigativas / assistenciais que permitam desvelar o ser do humano. Descritores: Entrevista; Coleta de Dados; Pesquisa Qualitativa. ABSTRACTThis paper aimed to report the experience of driving modes of an interview on data production in phenomenological research. The proposed study is an experience report of a phenomenological investigation in which the researchers present their experience with children, considering the interview as an existential encounter. It describes ways of conducting the interview in its ontic and ontological dimensions. The ontic dimension refers to the facts related to the interview, presented in the researcher, in the researched subject and in the environment; both in its planning and its development. The ontological dimension is based on empathy and intersubjectivity. The interview enables the access to meaningful structures to comprehend the being, as a way of building investigative/assistance possibilities that enable to reveal the being of the human. Key words: Interview; Data Collection; Qualitative Research. RESUMENEl objetivo del presente artículo es informar la experiencia de los modos de conducción de la entrevista en la producción de datos en investigación fenomenológica. El estudio propuesto es un relato de experiencia de una investigación fenomenológica en que las investigadoras presentan su experiencia con los niños, apoyada por la entrevista como encuentro existencial. Describe los modos de conducción de la entrevista en sus dimensiones óntica y ontológica. La óntica se refiere a los hechos relacionados a la entrevista, presente en el investigador, en el sujeto investigado y en el ambiente, tanto en su planeamiento cuanto en su desarrollo. La dimensión ontológica se basa en la empatía y la intersubjetividad. La entrevista posibilita el acceso a estructuras significantes para la comprensión del ser, de modo a construir posibilidades investigador/asistenciales que permiten desvelar el ser del humano.

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O (não)dito da AIDS no cotidiano de transição da infância para a adolescência

Cited by 21 publications

References 11 publications

Ética na pesquisa com adolescentes que vivem com HIV/Aids

Ética na pesquisa com adolescentes que vivem com HIV/Aids

Experience of Diagnosis Disclosure for Teenagers With Hiv

Driving modes of the interview in phenomenological research: experience report

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