Cultural adaptation of the Family Management Measure among families of children and adolescents with chronic diseases

Abstract

Objectives to perform the cultural adaptation of the Family Management Measure into the Brazilian Portuguese language. Method the method complied with international recommendations for this type of study and was composed of the following steps: translation of the instrument into the Portuguese language; reaching consensus over the translated versions; assessment by an expert committee; back translation; and pretest. Results these stages enabled us to obtain conceptual, by-item, semantic, idiomatic, and operational equivalences, in addition to content validation. Conclusion the Family Management Measure is adapted to the Brazilian Portuguese language and that version is named Instrumento de Medida de Manejo Familiar.

Translation, cultural adaptation and preliminary psychometric evaluation of the “Family Management Measure” among Iranian families with a child with a chronic disease

“…Knafl et al described family management as efforts put in by family members in order to integrate subsequent expectations of the disease and the needs of a child with chronic disease within a family's everyday life (5). Comparing the findings of the present study with other similar studies, including the research by Ichikawa et al (9) and Hutton et al (6), such a result was not found, which is likely due to the close proximity of the culture of the two countries and the main study country related to the tool design. At the quantitative CV stage, the score of all questions in the CVR stage was larger than the Lawshe Table number, which indicated the necessity and importance of the tool questions.…”

“…Among the 53 tool statements, according to the opinion of the main tool designer and the committee of experts, all the statements that included the word "chronic condition" were changed into the statements with the word "chronic disease" that could be better understood. Similar to the present study, Ichikawa et al also used the word "chronic disease" in their translation (9). Most parents were confused about the concept of "living away from home" in the statement "in spite of the disease we expect in the future that our child lives away from home".…”

“…Nursing studies have emphasized the importance of implementing family-centered nursing interventions in order to provide a supportive environment for the patient (8). Nurses supporting and promoting the health of the child with chronic disease and his/her family, are required to adapt to the needs of the disease and the types of resources available to the family (9). Under all conditions, what is important in collecting information is the choice of research tool.…”

“…Thus, although the translation of the tool with the observance of cultural adaptation is a complicated process, it increases the quality of work and allows the comparison of the results in the culture of the target community with the culture of the source community (13). One of the reliable and valid tools used to identify family management in childhood chronic disease is Family Management Measure (FaMM) which reliability and validity have been reported as good in studies outside of Iran (3,5,9). This tool was first designed and measured by Knafl et al with a 2011 study on parents of children with various chronic diseases in the United States, and the results indicated the tool's desired reliability and validity.…”

Questionário para identificação de crianças com condições crônicas (QuICCC-R): tradução e adaptação

“…The need for these adaptations was mentioned in other studies, the adaptation process being described as "a combination of literal translation of words and phrases from one language to another and an adaptation that contemplates the cultural context and lifestyle of the target population." (18,19,25) In question five, we chose to omit the word counselor, a term that refers to the counselor who can act in school, health or legal services, and who can be a psychologist, pedagogue, psycho-pedagogue, physician, lawyer, social worker, among others. In Brazil, in the case of the health area, psychologists and social workers are professionals who, in most cases, take on the role of counseling.…”