Use of the self- and family management framework and implications for further development

Feder, Shelli; Montano, Anna‐Rae; Batten, Janene; Tan, Hui; Hoang, Kimberly; Grey, Margaret

doi:10.1016/j.outlook.2021.05.009

Cited by 8 publications

(12 citation statements)

References 131 publications

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“…(11) RCTs using the Framework that have included an e-health component and have focused on dementia or health disparities are limited, and few quantitative studies that have used the Framework have enrolled family caregivers. (21) The CommunityRx trials also highlight the relevance of the Self-and Family Management Framework in times of crisis. During the COVID-19 pandemic, the importance of the patientfamily relationship came to the fore.…”

Section: Discussionmentioning

confidence: 99%

“…The conceptual model underlying the CommunityRx interventions was drawn from Grey and colleagues' Self-and Family Management Framework, an evidence-based framework widely used to study interventions that promote chronic condition management. (11,21) The Framework has been adapted for the CommunityRx-Hunger and -Dementia trials (Fig. 1) to include factors identi ed by Fundamental Cause Theory (e.g., socioeconomic status and stigma) among other known facilitators and barriers of self-and family management.…”

Section: The Communityrx Interventionmentioning

confidence: 99%

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Two concurrent randomized controlled trials of CommunityRx, a social care intervention for family and friend caregivers delivered at the point of care

Abramsohn

Ornelas

Borson

et al. 2023

Preprint

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Background CommunityRx is an evidence-based social care intervention delivered to family and friend caregivers ("caregivers") at the point of healthcare to address health-related social risks (HRSRs). CommunityRx-Hunger is a double-blind randomized controlled trial (RCT) that enrolls caregivers of hospitalized children. CommunityRx-Dementia is a single-blind RCT that enrolls caregivers of community-residing people with dementia. Clinical trials that enroll caregivers face recruitment barriers, including caregiver burden and lack of systematic strategies to identify and track caregivers. COVID-19 pandemic-related visitor restrictions exacerbated these barriers and prompted the need for iteration of the CommunityRx protocols from in-person to remote operations. This study describes the novel methods used to iterate existing RCT protocols and factors contributing to their successful iteration. Methods CommunityRx uses individual-level data to generate personalized community resource referrals for basic, health and caregiving needs. Our research program uses an asset-based, community-engaged approach including study-specific community advisory boards (CABs). In early 2020, both RCT protocols were pre-tested in-person. In March 2020, when pandemic conditions prohibited enrollment during clinical encounters, both protocols were iterated to efficient, caregiver-centered remote operations. Iterations were enabled in part by the Automated Randomized Controlled Trial Information-Communication System (ARCTICS), a trial management system innovation engineered to integrate the data collection database (REDCap) with community resource referral (NowPow) and SMS texting (Mosio) platforms. Results Enabled by engaged CABs and ARCTICS, both RCTs quickly adapted to remote operations. Designed before the pandemic, we had planned to launch both trials by March 2020 and complete enrollment by December 2021. The pandemic postponed launch until November (CommunityRx-Hunger) and December (CommunityRx-Dementia) 2020. Despite the delay, 65% of all planned participants (CommunityRx-Hunger n = 417/640; CommunityRx-Dementia n = 222/344) were enrolled by December 2021, halfway through our projected enrollment timeline. Both trials enrolled 13% more participants in 12 months than originally projected in-person. Conclusions Our asset-based, community-engaged approach combined with widely accessible institutional and commercial information technologies facilitated rapid migration to remote trial operations. Remote or hybrid RCT designs for social care interventions may be a viable, scalable alternative to in-person recruitment and intervention delivery protocols, particularly for caregivers and other groups that are under-represented in traditional health services research. Trial Status Both studies are registered on ClinicalTrials.gov: CommunityRx-Hunger (NCT04171999); CommunityRx for Caregivers (NCT04146545); My Diabetes My Community (NCT04970810)

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Section: Discussionmentioning

confidence: 99%

Section: The Communityrx Interventionmentioning

confidence: 99%

Two concurrent randomized controlled trials of CommunityRx, a social care intervention for family and friend caregivers delivered at the point of care

Abramsohn

Ornelas

Borson

et al. 2023

Preprint

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“…As nurses assess facilitators and barriers and processes and One of the benefits of linkages of SNT and theoretical frameworks is the strengthening the comprehensiveness of the plan of care for patients with chronic diseases and retrieving standardized nursing practice data in a computerized information system (Chae et al, 2020;Johnson et al, 2011). There is fast-growing demand for the reuse of clinical data and electronic health interventions for highquality health care and population health management (Meystre et al, 2017;Schulman-Green, Feder, Montano, et al, 2021) is used with the SFMF and coded in electronic health records (EHRs), nursing data can be included in national EHR datasets and can be analysed to determine the value of nursing care to improve practice (Chae et al, 2020;Johnson et al, 2011;Macieira et al, 2019).…”

Section: Advantages Of Linkage Work For Clinical Nursing Practicementioning

confidence: 99%

“…The SFMF was originally developed by a group of faculty at the Yale School of Nursing in 2006 (Grey et al, 2006 ) and was revised in 2015 (Grey et al, 2015 ). Schulman‐Green and colleagues have continued to refine the SFMF (Schulman‐Green et al, 2012 ; Schulman‐Green et al, 2016 ; Schulman‐Green, Feder, Dionne‐Odom, et al, 2021 ; Schulman‐Green, Feder, Montano, et al, 2021 ). The SFMF has been used to guide research and practice on self‐ and family management of chronic diseases such as diabetes, cancer, heart failure and HIV/AIDS internationally (Schulman‐Green, Feder, Montano, et al, 2021 ).…”

Section: Introductionmentioning

confidence: 99%

Linking nursing outcomes classification to the self‐ and family management framework

Chae

Oberfrank

et al. 2022

Journal of Advanced Nursing

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Aim Establish linkages between components of the Self‐ and Family Management Framework and outcomes of the Nursing Outcomes Classification to evaluate the comprehensiveness of outcomes addressing self‐ and family management in the Nursing Outcomes Classification. Design Descriptive study. Methods Experts conducted a six‐step process to establish linkages: (1) preliminary mapping of all relevant nursing outcomes to the framework; (2) development of checklists for team members serving as ‘identifiers’ and ‘reviewers’; (3) mapping all relevant nursing outcomes to the framework; (4) final agreement on mapped outcomes; (5) establishment of inter‐rater reliability; and (6) discussion of findings with authors of the Self‐ and Family Management Framework. Results Three hundred and sixty‐three nursing outcomes were identified as related to the management of chronic disease across all components of the framework: outcomes related to patient self‐management (n = 336), family functioning (n = 16) and family caregivers (n = 11). Conclusion The Nursing Outcomes Classification outcomes comprehensively address self‐management, and, less so, family functioning, and caregivers. Implications: Established linkages can be used by nurses to track and support patient and family management outcomes across the care continuum. Patient or public contribution Linking standardized nursing outcomes to the Self‐ and Family Management Framework can assist in goal setting and measurement of nursing care during chronic disease management. This work can help describe to funders, policy makers and others invested in health care reform the specific contributions of nurses to self‐ and family management of chronic disease. Impact This paper demonstrates the linkages between components of the Self‐ and Family Management Framework and Nursing Outcomes Classification outcomes. The results of this study offer the opportunity to quantify the impact of nursing care and enhance nursing practice for patients with chronic conditions as well as contribute to developing Nursing Outcomes Classification outcomes that consider self‐management processes.

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“…ALTHOUGH EDUCATION for self-care and family caregiving is gaining importance for clinical practice and research,1 it is woefully lacking in theory of teaching and learning. Without teaching and learning theory, we do not have concepts and relationships among them for design of teaching-learning programs and for examination of the focus of the education, its processes, and outcomes.…”

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confidence: 99%

Guided Participation for Clinical Practice

Pridham

Limbo

2022

Advances in Nursing Science

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Theory of guided participation for clinical practice presents teaching and learning in the context of the teacher and learner relationship. The teacher functions as a guide bringing the learner as a participant into a reciprocal, dynamic process that addresses issues learners are working on, acknowledging and directing learning activity to personal and clinical goals. Outcomes of this process are competencies in health-related functions. The process proceeds with understanding of the learner's internal working model (IWM) of self, other, and relationships. The IWM goals, intentions, and expectations formulate guided participation processes for development of competencies specific to the learner's cultural and personal situation and health need.

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Use of the self- and family management framework and implications for further development

Cited by 8 publications

References 131 publications

Two concurrent randomized controlled trials of CommunityRx, a social care intervention for family and friend caregivers delivered at the point of care

Two concurrent randomized controlled trials of CommunityRx, a social care intervention for family and friend caregivers delivered at the point of care

Linking nursing outcomes classification to the self‐ and family management framework

Guided Participation for Clinical Practice

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