The study provides a valid instrument for the research of the QOL of those families that have a child with a disability within Spanish-speaking community.
Objective: The objective of this study was to establish the psychometric properties of reliability and validity of the «Maslach Burnout Inventory-Human Services Survey» (MBI-HSS). Methods: The work was conducted by a process of translation and back-translation of the original instrument, instrument adaptation, translation and adaptation of the application manual, pilot study, and implementation of the adapted version of the instrument with 314 health professionals in Cali, according to the guidelines of the International Test Commission (ITC). Results: The results showed that the scale has good internal consistency (a=0.767); however, the dimension of «depersonalization» has the lowest internal consistency (a=0.518). Regarding validity, in comparing between the factor structure of the modified scale with the original version, we identified that the size of the validated version largely coincides with that of the original version; in the dimension of emotional fatigue, item 6 is excluded because it will be part of the depersonalization scale, items 15 and 21 were also excluded given their poor discriminatory ability. Conclusion: It is necessary to overcome the stability problems of the MBI-HSS depersonalization subscale in health professionals and reformulate the response options to make them more understandable for professionals within the Colombian context.
Cada día aumenta la expectativa de vida para personas con discapacidad intelectual (DI/RM). El objetivo de esta investigación fue describir la calidad de vida de familias de adultos con DI/RM en Cali, Colombia. La muestra estuvo conformada por 158 familias. Se utilizaron dos instrumentos de recogida de información un Cuestionario Sociodemográfi co y la Escala de Calidad de Vida Familiar (Beach Center, 2001), ésta última adaptada previamente a población colombiana (Verdugo, Córdoba & Gómez, 2005, 2006. Los principales hallazgos demostraron que la calidad de vida de las familias está afectada por la falta de oportunidades para la inclusión social de personas adultas con DI/RM. Estas difi cultades, aparentemente, desencadenan efectos en el bienestar del adulto con DI/RM y su familia. Los resultados proveen información para la defi nición de políticas sociales para estas familias. Palabras Clave: familias, calidad de vida, discapacidad intelectual, adultos.Everyday the life expectancy for people with intellectual disabilities (ID/MR) increases. The aim of this research was to describe the quality of life of the families of adults with ID in Cali, Colombia. The sample consisted of 158 families. Two instruments for gathering information were used: a Sociodemographic Questionnaire, and the Family Quality of Life Scale (Beach Center, 2001). The latter was previously adapted for the Colombian population (Verdugo, Córdoba & Gómez, 2005, 2006. The main fi ndings showed that family quality of life is affected by the lack of opportunities for social inclusion in adults with ID/MR. These diffi culties lead to repercussions on the wellbeing of the adult with ID/MR and his or her family. The results provide information for the defi nition of social policies for these families.
2011) Creencias y prácticas de mujeres con discapacidad frente al ejercicio de sus derechos, Estudios de Psicología: Studies in Psychology, 32:2, 209-226To link to this article: http://dx.
Increases in life expectancy have heightened concerns for people with intellectual disability (ID) who are growing old and who have be designated as "dually diagnosed"-that is, who have, apart from their ID, a psychiatric disorder, and who because of this conjoint condition, are subjected to social exclusion due to three factors: old age, cognitive limitation, and mental illness. The objective of this study was to describe the psychosocial factors associated with the comorbidity between ID and psychiatric disorder of adults in the city of Cali, Colombia. Subjects were 50 dyads consisting of a carer and a person with ID. The Caregivers Questionnaire and the Integral Quality of Life Scale were adapted for use in the study. The analysis of information was based on three factors: person, family, and society. In the case of the personal factor, an adequate level of physical well-being and a good level of self-care were found in more than 60% of the adults with dual diagnosis, good adherence to treatment in 82%, and medium satisfaction in the individual-context relationship in 54%. With regard to the family factor, a high level of satisfaction of needs (84%) was found. Good family functioning was observed in 86%, while family participation in rehabilitation was reported to be between moderate and deficient in 60% of the cases. With respect to the social factor, cases of support between moderate and deficient were found in 68%, and a regular inclusion was observed in 48%. The authors conclude that the family functioning aspect appeared as the major protective factor, while the inclusion and social support were shown as the main risk factors.
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