Background: Dialysis patients experience multiple symptoms impairing their quality of life. A relationship seems to exist between the cultural context and the burden of symptoms. In this study, the prevalence and severity of 30 symptoms and their relationship with quality of life among hemodialysis patients in Switzerland is explored. Methods: A cross-sectional correlation design was used with a convenience sample of 119 patients from five dialysis units. Presence and severity of symptoms were assessed with the Dialysis Symptom Index and quality of life with the WHOQOL-Bref questionnaire. Multivariate linear regressions were used to examine the relationship between the prevalence and severity of symptoms, respectively, and quality of life. T-tests and Fisher's tests were used for the international comparisons. Results: On average, patients reported 10 symptoms and often rated these as "somewhat bothersome". The most frequent were: lack of energy, dry skin, trouble falling asleep, trouble staying asleep, and muscle cramps. Average symptoms prevalence and severity levels were both observed to decrease patients' quality of life, items related to physical health and psychological state having the greatest impact. Prevalence and severity of psychological symptoms and prevalence of sex-related symptoms seem to be influenced by patients' cultural context. Conclusions: These results demonstrate that patients on chronic hemodialysis present several symptoms that affect their quality of life. Healthcare professionals should develop strategies to identify more properly these symptoms, especially sex-related and psychological symptoms.
Hemodialysis patients represent a fragile population experiencing many symptoms (e.g., pain, fatigue) that impact their quality of life. The presence and severity of these symptoms are significantly underestimated by health professionals. The purpose of this study is to describe and compare the symptoms perceived by hemodialysis patients versus those detected by nurses and to discuss the possible causes of the disparity observed. A total of 123 patients and 70 nurses working in six hemodialysis centers were included in this study. The results show that participating nurses detected less than 50% of symptoms perceived by patients. The concordance between the hemodialysis patients and the nurses' responses on the presence and severity of all symptoms is very low (Kappa<0.4). Therefore, improving the knowledge and skills of hemodialysis nurses in detecting the symptoms of hemodialysis patients they treat appears to be one of the central areas for effective intervention and improved quality of care.
Depuis 2008, un regroupement international soutient la promotion d’une meilleure réponse aux besoins fondamentaux des personnes soignées. Ce regroupement propose un cadre sur les fondamentaux des soins. Ce cadre est centré sur la relation entre l’infirmier, la personne soignée et ses proches ainsi que sur la réponse aux besoins physiques, psychosociaux et relationnels. Un processus pratique soutient l’application concrète de ce cadre. Le but de cet article discursif est de présenter la traduction française du cadre des fondamentaux des soins et de son processus pratique. Pour commencer, le processus de traduction sera brièvement expliqué. Ensuite, le cadre sur les fondamentaux des soins et les étapes de son processus pratique seront présentés. Afin de permettre une meilleure appropriation du contenu par le lecteur, une illustration clinique présente la situation de M. Perron, atteint d’une maladie d’Alzheimer, et de sa conjointe, qui est sa proche aidante. Enfin, la discussion aborde l’utilité du cadre des fondamentaux des soins et de son processus pratique au niveau des quatre grands axes de la discipline infirmière, soit la pratique, la gestion, la formation et la recherche. Cet article ouvre la voie au développement de connaissances sur les fondamentaux des soins au niveau de la francophonie.
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