What are we talking about when we talk about education and Chagas? A systematic review of the issue

Sanmartino, Mariana; Mateyca, Celeste; Pastorino, Isabel Cecilia

doi:10.1016/j.bbadis.2020.165691

Cited by 10 publications

(4 citation statements)

References 27 publications

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“…Therefore, also improving the awareness of healthcare workers is essential so that they can provide adequate information to the population at risk [30]. A comprehensive approach is essential if we are to go beyond the biomedical aspects and address the multidimensional nature of the issue, while promoting an educational approach that allows individuals and communities to analyse and lead contextualised prevention and health promotion initiatives [33].…”

Section: Discussionmentioning

confidence: 99%

Key Chagas disease missing knowledge among at-risk population in Spain affecting diagnosis and treatment

et al. 2021

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Background Chagas disease is endemic in Latin America and, over the last few decades, due to population movements, the disease has spread to other continents. Early diagnosis and treatment are critical in terms of improving outcomes for those living with Chagas disease. However, poor knowledge and awareness is one of barriers that affects access to Chagas disease diagnosis and treatment for the population at risk. Information regarding immigrants’ knowledge concerning Chagas disease control and prevention is insufficient in non-endemic countries and, therefore, this study sought to assess Chagas disease knowledge and awareness within the Bolivian community residing in Madrid. Methods This cross-sectional study was carried out in March–August 2017. A total of 376 Bolivians answered a structured questionnaire. A knowledge index was created based on respondents’ knowledge about transmission, symptoms, diagnosis, and place to seek treatment. Multivariate logistic regressions analyses were performed to assess the factors associated with respondents’ knowledge of Chagas disease. Results A total 159 (42.4%) of Bolivians interviewed about their knowledge of Chagas disease were men and 217 (57.6%) were women. Vinchuca was mentioned as mode of transmission by 71% of the Bolivians surveyed, while only 9% mentioned vertical transmission. Almost half of the Bolivians did not know any symptom of Chagas disease and only 47% knew that a specific blood test is necessary for diagnosis. Most of Bolivians were aware of the severity of Chagas disease, but 45% of Bolivians said that there is no cure for Chagas and 96% did not know any treatment. Based on the index of knowledge generated, only 34% of Bolivians had a good knowledge about Chagas disease transmission, symptoms, diagnosis and treatment. According to the multiple logistic regression analysis, knowledge regarding Chagas disease, diagnosis and treatment was significantly higher amongst older Bolivians who had secondary education at least, as well as amongst those who had already been tested for Chagas disease. Conclusions This study found that most of the Bolivian population living in Spain had poor knowledge about Chagas disease transmission, symptoms, diagnostic methods and treatment. A poor understanding of the disease transmission and management is one of the most important barriers when it comes to searching for early diagnosis and appropriate care.

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Section: Discussionmentioning

confidence: 99%

Key Chagas disease missing knowledge among at-risk population in Spain affecting diagnosis and treatment

et al. 2021

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“…Educational actions need to demystify and destigmatize, as well as raise awareness, while providing access to comprehensive health care for all ages. Other authors have emphasized the impact of participatory educational perspectives that allow communities to analyze, decide, and lead prevention and health promotion actions [ 55 , 89 , 90 ]. Pardo et al demonstrated the effectiveness and easily implemented viability of a Peer Education Program conducted in the Bolivian Chagas Platform in Punata [ 55 ].…”

Section: Discussionmentioning

confidence: 99%

Social determinants in the access to health care for Chagas disease: A qualitative research on family life in the “Valle Alto” of Cochabamba, Bolivia

et al. 2021

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Introduction Chagas disease is caused by the Trypanosoma cruzi infection. It is a neglected tropical disease with considerable impact on the physical, psychological, familiar, and social spheres. The Valle Alto of Cochabamba is a hyperendemic region of Bolivia where efforts to control the transmission of the disease have progressed over the years. However, many challenges remain, above all, timely detection and health-care access. Methods Following the Science Shop process, this bottom-up research emerged with the participation of the civil society from Valle Alto and representatives of the Association of Corazones Unidos por el Chagas from Cochabamba. The aim of this study is to explore the social determinants in the living realities of those affected by Chagas disease or the silent infection and how families in the Valle Alto of Cochabamba cope with it. An interdisciplinary research team conducted a case study of the life stories of three families using information from in-depth interviews and performed a descriptive qualitative content analysis and triangulation processes. Findings Findings provide insights into social circumstances of the research subjects’ lives; particularly, on how exposure to Trypanosoma cruzi infection affects their daily lives in terms of seeking comprehensive health care. Research subjects revealed needs and shared their experiences, thus providing an understanding of the complexity of Chagas disease from the socioeconomic, sociocultural, political, and biomedical perspectives. Results enlighten on three dimensions: structural, psychosocial, and plural health system. The diverse perceptions and attitudes toward Chagas within families, including the denial of its existence, are remarkable as gender and ethnocultural aspects. Findings support recommendations to various stakeholders and translation materials. Conclusions Intersectional disease management and community involvement are essential for deciding the most appropriate and effective actions. Education, detection, health care, and social programs engaging family units ought to be the pillars of a promising approach.

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“…However, different studies note that educational "interventions" for Chagas have been mainly developed in school environments from rural contexts, employing a limited, biomedically centered viewpoint and disregarding the knowledge and experiences provided by the indi-viduals considered merely "recipients" of such interventions. (24) Paradoxically, the current landscape demands that IEC initiatives for Chagas be contemplated in all possible contexts: areas with or without vector transmission; inside and outside of Latin America; rural, periurban, and urban areas; formal (all educational levels, including professional formation) and no formal contexts (fairs, museums, social organisations, clubs, cultural events, waiting rooms, the media). These observations also apply to strategies and resources of information and communication, where often technical themes are emphasised or fragmented outlooks are reproduced, frequently utilising language that reproduces stereotypes and reinforces stigmatisation of people and places "affected" by Chagas.…”

Section: Information Education and Communication: Main Considerations...mentioning

confidence: 99%

The multidimensional comprehension of Chagas disease. Contributions, approaches, challenges and opportunities from and beyond the Information, Education and Communication field

Sanmartino

Forsyth

Avaria

et al. 2022

Mem. Inst. Oswaldo Cruz

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Chagas is a complex, multidimensional phenomenon in which political, economic, environmental, biomedical, epidemiological, psychological, and sociocultural factors intersect. Nonetheless, the hegemonic conceptualisation has long envisioned Chagas as primarily a biomedical question, while ignoring or downplaying the other dimensions, and this limited view has reinforced the disease's long neglect. Integrating the multiple dimensions of the problem into a coherent approach adapted to field realities and needs represents an immense challenge, but the payoff is more effective and sustainable experiences, with higher social awareness, increased case detection and follow-up, improved adherence to care, and integrated participation of various actors from multiple action levels. Information, Education, and Communication (IEC) initiatives have great potential for impact in the implementation of multidimensional programs of prevention and control successfully customised to the diverse and complex contexts where Chagas disease persists.

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What are we talking about when we talk about education and Chagas? A systematic review of the issue

Cited by 10 publications

References 27 publications

Key Chagas disease missing knowledge among at-risk population in Spain affecting diagnosis and treatment

Key Chagas disease missing knowledge among at-risk population in Spain affecting diagnosis and treatment

Social determinants in the access to health care for Chagas disease: A qualitative research on family life in the “Valle Alto” of Cochabamba, Bolivia

The multidimensional comprehension of Chagas disease. Contributions, approaches, challenges and opportunities from and beyond the Information, Education and Communication field

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