A Science Shop acts as a mission-oriented intermediary unit between the scientific sphere and civil society organizations. It seeks to facilitate citizen-driven open science projects that respond to the needs of civil society organizations and which, typically, include students in the work process. We performed a thematic analysis of a systematically selected literature on Science Shops to understand how the scientific literature reflects the historical evolution of Science Shops in different settings and what factors the literature associates with the rise and fall of the Science Shop. We used the PRISMA methodology to search for scientific papers in indexed journals in eight databases published in English, French and Spanish, and employed the thematic theory approach to extract and systematize our results. Twenty-six scientific articles met the inclusion criteria. We identified three meta-categories and ten sub-topics which can serve as key pointers to guide the set-up and future work of Science Shops. Our results identify a major paradox: Science Shops incorporate public values in their scientific agendas but have difficulties sustaining themselves institutionally as they do not fit the current dominant research paradigm. Science shops represent a persuasive complementary approach to the way science is defined, executed and produced today.
Scaling-up an experimental intervention is always a challenge. On the border between French Guiana, Brazil and Suriname, an interventional study demonstrated the effectiveness of distributing self-diagnosis and self-treatment kits (Malakits) to control malaria in mobile and hard-to-reach populations. Its integration into the Suriname’s National Malaria Elimination Plan after a 2-year experiment faced numerous challenges, including human resources to cope with the additional workload of coordinators and to maintain the motivation of community health workers. The economic recession in Suriname, the Covid pandemic, and logistical issues also hampered the scale-up. Finally, thanks to the commitment of stakeholders in Suriname and French Guiana, the integration of Malakit distribution into the Surinamese national programme was proved possible.
Introduction
Chagas disease is caused by the Trypanosoma cruzi infection. It is a neglected tropical disease with considerable impact on the physical, psychological, familiar, and social spheres. The Valle Alto of Cochabamba is a hyperendemic region of Bolivia where efforts to control the transmission of the disease have progressed over the years. However, many challenges remain, above all, timely detection and health-care access.
Methods
Following the Science Shop process, this bottom-up research emerged with the participation of the civil society from Valle Alto and representatives of the Association of Corazones Unidos por el Chagas from Cochabamba. The aim of this study is to explore the social determinants in the living realities of those affected by Chagas disease or the silent infection and how families in the Valle Alto of Cochabamba cope with it. An interdisciplinary research team conducted a case study of the life stories of three families using information from in-depth interviews and performed a descriptive qualitative content analysis and triangulation processes.
Findings
Findings provide insights into social circumstances of the research subjects’ lives; particularly, on how exposure to Trypanosoma cruzi infection affects their daily lives in terms of seeking comprehensive health care. Research subjects revealed needs and shared their experiences, thus providing an understanding of the complexity of Chagas disease from the socioeconomic, sociocultural, political, and biomedical perspectives. Results enlighten on three dimensions: structural, psychosocial, and plural health system. The diverse perceptions and attitudes toward Chagas within families, including the denial of its existence, are remarkable as gender and ethnocultural aspects. Findings support recommendations to various stakeholders and translation materials.
Conclusions
Intersectional disease management and community involvement are essential for deciding the most appropriate and effective actions. Education, detection, health care, and social programs engaging family units ought to be the pillars of a promising approach.
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