Strenghts and Limits in the Daily Life of the Adherence to Rehabilitation of People With Spinal Cord Injury and Their Families

Abstract

Objective: to understand the strengths and limits in the daily life of the adherence to rehabilitation of people with spinal cord injury and their families. Method: an interpretive study of a qualitative nature, based on Comprehensive and Everyday Life Sociology, involving 21 participants, 12 individuals with spinal cord injury and 9 family members, in a Specialized Rehabilitation Center in southern Brazil. The sources of evidence were individual and collective interviews, adopting the strategy of workshops for data validation. The Atlas.ti software was used for data collation and organization. Data analysis involved the following stages: preliminary analysis, ordering, key links, coding, and categorization. Results: the following categories and subcategories were found: Strengths in the adherence to rehabilitation - welcoming and walking side by side; rehabilitation: a return to life; coexistence that brings the family together, as well as practicing faith. Limits on the adherence to rehabilitation - (d)efficiency of the health professionals in health care. Conclusion: rehabilitation was evidenced as a possibility of returning to life, which enables coexistence among equals and stimulates self-care and adaptation. The family rescues the desire to live, and faith is a mechanism of hope and optimism. It is noteworthy that the welcoming deficit in Primary Health Care and the scarcity of rehabilitation care services in the hospital determine the onset of avoidable complications, in addition to the lack of guidance and/or referrals, characterizing a gap in the Referral and Counter-Referral System.

Suicidal Ideation in People with Traumatic Spinal Cord Injury

“…Authors define rehabilitation as a limited process carried out by a multi-professional team that jointly implements healthcare actions. These actions aim to achieve a high degree of physical, functional, mental, and social development, allowing the individual to set and achieve new goals [4].…”

“…The main causes of TSCI are motor accidents, gunshot and knife wounds, falls, sports, work accidents, and diving into shallow water [2]. Most patients are young males and most of these cases lead to complications, especially involving fecal incontinence, sexual dysfunction, and reduced or absent sensory reflexes that negatively affect quality of life (QOL), way of life, and the capacity to live a healthy lifestyle [2][3][4][5].…”

Experiencing the education process in physical rehabilitation

“…In view of this, the observation of difficulty in adherence to treatment calls for professionals to critically reflect on the posture, role and performance of the multidisciplinary team in the context of health education, which may be disconnected from reflective listening and from cultural and psychosocial demands that interfere with daily praxis. Adherence difficulties may reveal the necessary confrontations for people with disabilities, when recognizing that changes are slow, gradual, and with possibilities for advances and setbacks (23) .…”

Neurogenic Dysfunction of the Lower Urinary Tract: Construction and Validation of an Instrument for Nursing Consultation

“…NANDA-I domains facilitate the dissemination and use of standardized terminology for nursing and highlight problems and situations, making the consultation tool objective and clear 12 . They also bring greater precision and detail in care planning, serving as a basis for selecting interventions, aiming at better quality and continuity in nursing care for people in the rehabilitation process 13 .…”