Sida : la course aux molécules

Dalgalarrondo, Sébastien

doi:10.4000/books.editionsehess.1053

Cited by 58 publications

(14 citation statements)

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“…Several studies have shown that patients’ associations have joined established actors in the production of medical and scientific knowledge (Epstein 1995, Barbot 1998, Dalgalarrondo 2004, Rabeharisoa 2006) but such is not the case of ANI. No involvement in research has been ascribed to this organisation whose objective consists in redefining autism as another way of thinking and no longer as a disease.…”

Section: Resultsmentioning

confidence: 99%

“…Promoters of behavioural methods appreciated the actions taken by parents’ associations, their best marketing agents. Indeed, they have contributed to the expansion of an autism‐related market, which includes training for parents and professionals, exactly like the patients’ associations that foster the marketing of new drugs (Dalgalarrondo 2004, Healy 2004). Moreover, the parents’ associations extended their influence to research institutes such as The National Institute for Health and Medical Research (INSERM) in favour of greater associative involvement in medical research (Barbot 2006).…”

Section: Parents’ Mobilisation In Francementioning

confidence: 99%

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Autism and social movements: French parents’ associations and international autistic individuals’ organisations

Chamak

2008

Sociology Health & Illness

167

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The aim of this empirical investigation is to analyse the social movements brought about by autism-related issues. It is suggested that both the autism-category changes in the late 1980s, and the development of educational and behavioural methods in the United States, have given rise to a large-scale mobilisation around the changes in the definition of autism and interventions in many countries. The present paper highlights the historical dynamics of the mobilisation of French parents' associations and the engagement of autistic persons' organisations. The role of the French parents' associations has been studied over the last 40 years to show how they have contributed to shaping public policy in France and how they have favoured the American model of autism despite the French professionals' resistance. At the international level, the newly-born associations of autistic individuals have introduced new actors who sometimes reproach the parents' associations for speaking on their behalf. These new associations, such as self-help groups, have a political identity problem. Their members no longer want to be considered as patients but as individuals with a different cognitive mode of functioning. Their actions can be analysed in the broader context of the disability movement. If the disability movement is considered as the latest generation of social movements, the action of autistic persons can be viewed as the latest generation of the disability movements.

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Section: Resultsmentioning

confidence: 99%

Section: Parents’ Mobilisation In Francementioning

confidence: 99%

Autism and social movements: French parents’ associations and international autistic individuals’ organisations

Chamak

2008

Sociology Health & Illness

167

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“…48 Ces conclusions appellent à une évaluation renforcée des possibilités d'action des pouvoirs publics et des cliniciens, quant à leur influence sur la recherche pharmaceutique (Dalgalarrondo, 2004 ;Hauray, 2006 ;Urfalino, 2005). Mais elle ne prend tout son sens que si l'on tient pour acquis que la recherche pharmaceutique participe à part entière de la connaissance des pathologies.…”

Section: Les Essais Cliniquesunclassified

Influencer la recherche pharmaceutique : un enjeu pour la connaissance des pathologies

Bonetti¹

2007

rei

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L’objectif de cet article est de montrer que les enjeux autour de la conception des médicaments orientent la connaissance relative aux pathologies traitées. Cette proposition sera démontrée en prenant appui sur l’histoire de l’hypercholestérolémie et de ses traitements. Dans un premier temps, nous verrons que l’élaboration des remèdes participe pleinement de l’évolution du savoir sur les maladies. Ainsi, la résolution de l’énigme relative au rôle du taux de cholestérol dans l’organisme a progressé significativement avec la mise au point d’hypocholestérolémiants. Dans un second temps, nous nous pencherons alors sur les enjeux véhiculés par ces médicaments. Nous soulignerons l’importance des autorités sanitaires et des cliniciens-chercheurs par l’influence qu’ils exercent sur les choix de l’industrie pharmaceutique. Cependant, les objectifs financiers des firmes leur suggèrent des voies de recherche qui limitent fortement l’étendue du questionnement sur ces pathologies. Typiquement, dans le cas de l’hypercholestérolémie, la recherche a essentiellement consisté à déterminer le seuil du taux de cholestérol considéré comme pathologique.

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“…A história do tratamento da aids, segundo Dalgalarrondo (2004), introduziu elementos inéditos no universo da pesquisa e desenvolvimento de medicamentos. Os fármacos anti-HIV imprimiram velocidade e comportamento nunca antes vistos no mercado farmacêutico, no meio médico e científico, na ética em pesquisas com seres humanos e na mobilização comunitária.…”

Section: Introductionunclassified

Aids, tecnologia e acesso sustentável a medicamentos: a incorporação dos anti-retrovirais no Sistema Único de Saúde

Scheffer¹

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Sida : la course aux molécules

Cited by 58 publications

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Autism and social movements: French parents’ associations and international autistic individuals’ organisations

Autism and social movements: French parents’ associations and international autistic individuals’ organisations

Influencer la recherche pharmaceutique : un enjeu pour la connaissance des pathologies

Aids, tecnologia e acesso sustentável a medicamentos: a incorporação dos anti-retrovirais no Sistema Único de Saúde

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