Repercussões no cotidiano dos pacientes pós-transplante cardíaco

Abstract

Objective: To learn the repercussions on the daily living of patients that underwent heart transplantation. Methods: A descriptive and qualitative study was conducted in a transplantation center in the Brazilian Northeast region. Nine patients who underwent heart transplantation participated in the study. Data were collected using the focus group technique, facilitated in four meetings. The excerpts of their statements resulted in two thematic categories: being a heart transplantation patient -before and after; and feelings and perceptions on heart transplantation. Results: The people submitted to transplantation identified positive changes achieved after the surgery, but suffered with the countless prohibitions that directly interfered on their daily living; the limitations resulting from transplantation were highlighted and hindered patients from feeling effectively healed. Conclusion: Participants recognized heart transportation as a solution for their clinical symptoms, but with a significant loss of autonomy that compel them to intensive adaptation efforts. ResumoObjetivo: Conhecer as repercussões no cotidiano de pacientes submetidos a transplante cardíaco. Métodos: Trata-se de estudo descritivo, qualitativo, conduzido em um centro de transplantes do nordeste brasileiro. Nove pacientes submetidos ao transplante cardíaco participaram do estudo, tendo sido utilizada para coleta dos dados a técnica de grupo focal, facilitada em quatro reuniões. Os recortes de suas falas resultaram em duas categorias temáticas: ser transplantado cardíaco -o antes e o depois; e sentimentos e percepções sobre o transplante cardíaco. Resultados: A pessoa submetida ao transplante identificou as modificações positivas obtidas após o procedimento, porém ressentiu-se com as inúmeras proibições, com interferência direta em seu cotidiano; as limitações decorrentes do transplante ganharam destaque e não permitiram que os pacientes se sentissem realmente curados. Conclusão: Os participantes reconheceram o transplante cardíaco como uma solução para seus sintomas clínicos, contudo, com significativa perda de autonomia, obrigando-os a um intenso esforço adaptativo.

Quality of Life, Depression, Anxiety and Coping Strategies after Heart Transplantation

“…Studies have shown that patients achieve significant improvements in their quality of life when they have greater social, family and spiritual support [6] .…”

“…It is therefore indicated for those patients with worse prognosis and without alternatives of clinical treatments [5,6] .…”

Mensuração da não-adesão aos medicamentos imunossupressores em receptores de transplante de fígado

“…Treatment adherence behavior may be affected by the presence of other associated comorbidities and limitations, which may contradict the patient's expectations of overall medical improvement upon transplantation, thereby directly affecting adherence rates. Perception of transplantation as a modality of treatment, not a cure, may lead patients away from recognizing its positive effects and reduce patient motivation regarding treatment over the post-transplantation period, (36) which in turn contributes to the high non-adherence rate seen in this study.…”

“…(33) Given the family and social setting can be characterized as a significant support network, it is possible to suggest that related variables can directly affect an individual's life and consequently, their adherence. (36) The consequences of IMS NA are multiple. For patients, they include some of the worst transplantation prognoses, with an increase in rejection rate, graft loss, and mortality.…”

Cuidado clínico de enfermagem fundamentado em Parse: contribuição no processo de transcendência de transplantados cardíacos

“…The demand for care that will make subjects the protagonists of their own health is relevant, above all when this care is provided to patients who need to change habits, such as is the case with heart transplant patients. The complexity of the changes involving the transplant cause alterations in the transplanted individual's usual life style and may directly affect their well-being (3) . In these cases, nursing care needs to go beyond guaranteeing survival, it is necessary to transcend to the pursuit of quality of life during that survival.…”