Quality of life concerns and end‐of‐life care preferences of aged persons in long‐term care facilities

Chan, Helen Yue Lai; Pang, Samantha Mei‐che

doi:10.1111/j.1365-2702.2006.01891.x

Cited by 65 publications

(96 citation statements)

References 35 publications

(36 reference statements)

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“…The Chinese Version of the Cumulative Illness Rating Scale (CIRS) 6 was used to capture comorbid conditions, which were confirmed by the medical record. Physical functional status was collected using the Chinese version of Personal Activity of Daily Living (P-ADL) and Instrumental Activity of Daily Living (I-ADL); the score of P-ADL or I-ADL was the sum value of all 8 items in each scale which range from 8 to 24.…”

Section: Data Collectionmentioning

confidence: 99%

“…7 Another Hong Kong study identified that many nursing home residents were uncertain or uncomfortable when asked about stating their preferences for life-sustaining treatment, with many leaving this question unanswered. 6 In traditional Chinese culture, death is a very sensitive issue, and a topic to be avoided, with those who do mention death considered sacrilegious. 8 Most older Chinese people consult their relatives, especially their oldest son, before making health care decisions.…”

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confidence: 99%

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Advance Directive and End-of-Life Care Preferences Among Nursing Home Residents in Wuhan, China: A Cross-Sectional Study

Zhou

Wang

et al. 2014

Journal of the American Medical Directors Association

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Objectives: To describe Chinese nursing home residents' knowledge of advance directive (AD) and end-oflife care preferences and to explore the predictors of their preference for AD. Design: Population-based cross-sectional survey. Settings: Nursing homes (n ¼ 31) in Wuhan, Mainland Southern China. Participants: Cognitively intact nursing home residents (n ¼ 467) older than 60 years. Measures: Face-to-face questionnaire interviews were used to collect information on demographics, chronic diseases, life-sustaining treatment, AD, and other end-of-life care preferences. Results: Most (95.3%) had never heard of AD, and fewer than one-third (31.5%) preferred to make an AD. More than half (52.5%) would receive life-sustaining treatment if they sustained a life-threatening condition. Fewer than one-half (43.3%) chose doctors as the surrogate decision maker about lifesustaining treatment, whereas most (78.8%) nominated their eldest son or daughter as their proxy. More than half (58.2%) wanted to live and die in their present nursing homes. The significant independent predictors of AD preference included having heard of AD before (odds ratio [OR] 9.323), having definite answers of receiving (OR 3.433) or rejecting (OR 2.530) life-sustaining treatment, and higher Cumulative Illness Rating Scale score (OR 1.098). Conclusions: Most nursing home residents did not know about AD, and nearly one-third showed positive attitudes toward it. AD should be promoted in mainland China. Education of residents, the proxy decision maker, and nursing home staff on AD is very important. Necessary policy support, legislation, or practice guidelines about AD should be made with flexibility to respect nursing home residents' rights in mainland China.With the aging of China's population, the demand for nursing home care is increasing.1 In Wuhan, a southern city in Hubei province, Mainland China, there are approximately 9.79 million people.

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Section: Data Collectionmentioning

confidence: 99%

mentioning

confidence: 99%

Advance Directive and End-of-Life Care Preferences Among Nursing Home Residents in Wuhan, China: A Cross-Sectional Study

Zhou

Wang

et al. 2014

Journal of the American Medical Directors Association

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“…A survey of Chinese residents found that most respondents were neutral, rather than negative, toward passive euthanasia (Ming- Lin Chong & Shiu-Yeu, 2009); and in contrast to the traditional Chinese preference for elders of a family to make decisions for the patient, the patient was thought of as the main decision maker in decisions about euthanasia (Ming- Lin Chong & Shiu-Yeu, 2009). In a survey of residents of Hong Kong long-term care facilities, Chan and Pang (2007) found that respondents were willing to discuss death and dying, although they had not made end-of-life care plans, and wanted to defer to their physicians to make these decisions for them. Finally, a 2007 survey of Hong Kong residents found that only a minority adhered to traditional views about death and dying, but still only 10% were interested in receiving information about hospice (Mjelde-Mossey .…”

Section: Hospice Care In Hong Kongmentioning

confidence: 97%

A Cross-National Comparison of Hong Kong and U.S. Student Beliefs and Preferences in End-of-Life Care: Implications for Social Work Education and Hospice Practice

Reese

Chan

et al. 2010

Journal of Social Work in End-Of-Life & Palliative Care

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In this mixed methods study, the authors explored differences and similarities in beliefs about death and dying as well as end-of-life care preferences among social work students in Hong Kong and the United States. A convenience sample of 176 social work students from Hong Kong and 58 from the United States was recruited to complete a quantitative questionnaire with three open-ended questions. Findings revealed differences as well as similarities in beliefs about death and dying and that a larger proportion of Hong Kong students as compared to U.S. students preferred curative rather than palliative care. Implications for social work education and hospice practice in both countries include the need for social work student and practitioner self-awareness in order to prepare for culturally competent practice and policies that are relevant across cultures.

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“…16,17 To the authors' knowledge, none has been done with focus also on health care assistants (HCA), comparing them with the professional staff in old age homes. Therefore, the objective of this study would be to explore and compare in depth the needs, knowledge and readiness, and key concerns of old age home staff before providing palliative care.…”

Section: Introductionmentioning

confidence: 98%

The Needs, Current Knowledge, and Attitudes of Care Staff Toward the Implementation of Palliative Care in Old Age Homes

Kwan

Lau

et al. 2009

Am J Hosp Palliat Care

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This study aims to explore in depth the needs, current knowledge, and attitudes of all ranks of old age home staff. A large-scale qualitative study with 13 semistructured focus groups was conducted in Hong Kong. Key themes were extracted by framework analysis. Three major themes were extracted, including role as a service provider, current knowledge, and attitude toward palliative care. There was a marked difference in familiarity with the concept of ''palliative care'' between different groups of staff, yet both shared the motivation for enhancement. The biggest concerns for the staff were elderly residents' readiness to accept palliative care, manpower, and resources. Care staff, regardless of rank, seemed to welcome and be ready to adopt a palliative care approach in caring for old age home residents, though not without worries and concerns.

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Quality of life concerns and end‐of‐life care preferences of aged persons in long‐term care facilities

Cited by 65 publications

References 35 publications

Advance Directive and End-of-Life Care Preferences Among Nursing Home Residents in Wuhan, China: A Cross-Sectional Study

Advance Directive and End-of-Life Care Preferences Among Nursing Home Residents in Wuhan, China: A Cross-Sectional Study

A Cross-National Comparison of Hong Kong and U.S. Student Beliefs and Preferences in End-of-Life Care: Implications for Social Work Education and Hospice Practice

The Needs, Current Knowledge, and Attitudes of Care Staff Toward the Implementation of Palliative Care in Old Age Homes

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