Advance Directive and End-of-Life Care Preferences Among Nursing Home Residents in Wuhan, China: A Cross-Sectional Study

Ni, Ping; Zhou, Jing; Wang, Zhao Xi; Nie, Rong; Phillips, Jane; Mao, Jing

doi:10.1016/j.jamda.2014.06.006

Cited by 59 publications

(80 citation statements)

References 25 publications

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“…Although other studies have found that a family member was the most common person to communicate with about ADs in patients in countries with East Asian cultures [28,29], this study indicated that participants tended to regard medical staff as the optimal role to communicate with about ADs. This conclusion also supports the findings of previous studies [30,31,32].…”

Section: Discussioncontrasting

confidence: 73%

The Attitudes of Chinese Cancer Patients and Family Caregivers toward Advance Directives

Qiu

Xie

et al. 2016

IJERPH

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Advance directives (ADs) have been legislated in many countries to protect patient autonomy regarding medical decisions at the end of life. China is facing a serious cancer burden and cancer patients’ quality at the end of life should be a concern. However, limited studies have been conducted locally to gather information about attitudes toward ADs. The purpose of this study was to investigate the attitudes of Chinese cancer patients and family caregivers toward ADs and to explore the predictors that are associated with attitudes. The study indicated that although there was low awareness of ADs, most cancer patients and family caregivers had positive attitudes toward ADs after related information was explained to them. Participants preferred to discuss ADs with medical staff when they were diagnosed with a life-threatening disease. Preferences for refusing life-sustaining treatment and choosing Hospice-Palliative Care (HPC) at the end of life would increase the likelihood of agreeing with ADs. This suggests that some effective interventions to help participants better understand end-of-life treatments are helpful in promoting ADs. Moreover, the development of HPC would contribute to Chinese cancer patients and family caregivers agreeing with ADs.

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Section: Discussioncontrasting

confidence: 73%

The Attitudes of Chinese Cancer Patients and Family Caregivers toward Advance Directives

Qiu

Xie

et al. 2016

IJERPH

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“…preferred to make ADs; this result is inconsistent with a previous study showing that 22.4% of patients with cancer approved of ADs [7]. This discrepancy may be attributed to the fact that in the previous study, the participants originated from different regions of China with different cultures and had different types of cancer.…”

Section: Discussioncontrasting

confidence: 77%

Advance Directives and End-of-Life Care: Knowledge and Preferences of Patients with Brain Tumours from Anhui, China

Wang

Zhang

Hong

et al. 2020

Preprint

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Abstract Background: In Mainland China, the advance directives (ADs) and end-of-life care of patients with tumours, especially patients with brain tumours who may have lost consciousness or the ability to speak at the early stage of their illness, have been poorly acknowledged. Thus, this study aims to clarify the knowledge and preferences of the ADs and end-of-life care of patients with brain tumours and to investigate the predictors of patients’ preferences.Methods: This was a population-based cross-sectional survey that was conducted via face-to-face interviews. Information on the sociodemographic factors, brain tumour illness, knowledge and preferences of the advance decisions and end-of-life care of the patients were collected.Results: A total of 88.61% of the participants had never heard of ADs, but 65.18% would like to make ADs. Knowledge of ADs, receiving surgical treatment or radiotherapy, less than 70 years old, male, educational qualifications of college or beyond, childless, had medical insurance for nonworking or working urban residents and self-payment of medical expenses were predictors of preference for making ADs. A total of 79.43% participants would like to discuss end-of-life arrangements with medical staff, and 63.29% of participants were willing to receive end-of-life care although it could not delay death. A total of 65.82% patients with brain tumours wanted resuscitation, and as high as 45.45% of the patients thought that they did not need life support if they were in a persistent vegetative state. Brain primary tumours, ages of less than 70 years old, male, educational qualification of junior middle school or below, had children, had new rural cooperative medical insurance and had medical expenses paid by children or spouses were predictors of choosing appropriate palliative care.Conclusions：ADs and end-of-life care have been poorly acknowledged amongst patients with brain tumours in mainland China. Additional efforts should be encouraged amongst patients with primary brain tumours, those are undergoing surgery and radiotherapy and those who have low socioeconomic status. Appropriate decision-making timing is encouraged to promote AD amongst Chinese patients with brain tumours.

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“…Chinese communities around the world have a low engagement with ACP services (Con, 2007; Cultural & Indigenous Research Centre Australia (CIRCA), 2008, Gao, Sun, Ko, Kwak, & Shen, 2015;Ni et al, 2014;Ting & Mok, 2011;Yonashiro-Cho et al, 2016). The reasons for this are generally attributed to cultural considerations including taboos related to end-of-life consideration and the role of the collective family in decision-making or logistical considerations including health literacy, language and access to health services.…”

Section: Discussionmentioning

confidence: 99%

Exploring the knowledge, attitudes and needs of advance care planning in older Chinese Australians

Yap

Chen

Detering

et al. 2017

Journal of Clinical Nursing

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Advance Directive and End-of-Life Care Preferences Among Nursing Home Residents in Wuhan, China: A Cross-Sectional Study

Cited by 59 publications

References 25 publications

The Attitudes of Chinese Cancer Patients and Family Caregivers toward Advance Directives

The Attitudes of Chinese Cancer Patients and Family Caregivers toward Advance Directives

Advance Directives and End-of-Life Care: Knowledge and Preferences of Patients with Brain Tumours from Anhui, China

Exploring the knowledge, attitudes and needs of advance care planning in older Chinese Australians

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