Paralisia cerebral: faixa etária e gravidade do comprometimento do filho modificam o estresse e o enfrentamento materno

Abstract

Abstract

Motor abilities, activities, and participation of institutionalized Brazilian children and adolescents with cerebral palsy

“…Independent mobility is important for activities and participation as it reduces the burden on caregivers and the need for supportive environments. Children with significant mobility problems who cannot walk or get around independently are at risk of secondary related delays in additional mobility 42,43 , since early-onset muscle shortening and difficulty in breathing and swallowing reduce the chances of motor function and ADLs independence in adult life 44 . Furthermore, with the exception of wheelchairs (all in need of repair), rehabilitation resources (e115; e120), such as orthoses and/or assistive technologies, are not used at the institution.…”

Rede de apoio social da família para o cuidado da criança com paralisia cerebral

“…Estudo ressaltou que mães de crianças relataram a importância do apoio recebido para a superação de adversidades e readaptação aos cuidados da criança. Os dados demonstraram várias fontes de estresse e escassez de recursos, assim como a influência da falta de apoio na saúde física e emocional das participantes 10 .…”

“…Estudo demonstrou a importância do apoio do marido e demais membros da família para a adaptação e reorganização da vida. São recursos usados pelas mulheres para facilitar o desempenho do papel materno, enfrentar desafios e minimizar o estresse 10 .…”

Coparental Relationship and Self-Efficacy of Caregivers of Children with Cerebral Palsy

“…Cerebral palsy (CP) stands out as the most common cause of deficiencies among the diagnoses that affect child development (Ribeiro, Vandenberghe, Prudente, Vila, & Porto, 2016). CP is part of a group of permanent disorders that affect especially the neuromotor development, which, although not progressive, compromises the posture and movement of the individuals (Rosenbaum et al, 2007).…”

“…Mothers usually assume the role of principal caregivers, abdicating their prior routine with the birth of their children (Ribeiro et al, 2016). Given this context, parental stress arises as one of the main risk factors for both caregivers and children, and for the entire family (Ribeiro, Sousa, Vandenbergh, & Porto, 2014).…”