Palliative care in paediatric oncology: perceptions, expertise and practices from the perspective of the multidisciplinary team

Silva, Adriana Ferreira da; Issi, Helena Becker; Motta, Maria da Graça Corso da; Botene, Daisy Zanchi de Abreu

doi:10.1590/1983-1447.2015.02.46299

Cited by 46 publications

(43 citation statements)

References 5 publications

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“…A study points to the ambivalence between feeling and acting, experienced by health professionals in child care without healing possibilities because the bond that makes them close is the same that makes these professionals suffer when death is near (9) . On the fact that the nurses interviewed have greater difficulty accepting the death of a newborn compared to an adult, the literature shows that any loss is a challenge for people.…”

Section: Discussionmentioning

confidence: 99%

“…Physical and emotional benefits are obtained with these initiatives, both for the newborn, reducing the physical symptoms that cause discomfort, and for his/her family, softening the emotional and spiritual suffering (9) . Other research reinforces the importance of having in the NICU, a placeholder for the neonatal palliative care.…”

Section: Discussionmentioning

confidence: 99%

“…One of the nurse's participant claims that there is influence of suffering in their professional performance and personal life. Research shows that, as with the family, the death of the child psychologically impacts these professionals, who seek personal means to cope optimally with the child's loss (9) . Illness is one aspect that keeps individuals always connected to the death and its variations.…”

Section: Discussionmentioning

confidence: 99%

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Taking care of the newborn dying and their families: Nurses' experiences of neonatal intensive care

Almeida

Moraes

Cunha

2016

Rev. esc. enferm. USP

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Objective To understand the experiences of nurses when caring for dying newborns and their families in the NICU; and redeem their perceptions about acting before the death and grieving process. Method A descriptive exploratory study with a qualitative approach, developed with nine nurses at the ICU of a hospital in São Paulo (SP), Brazil. Data was collected through semi-structured interviews and analyzed using the Collective Subject Discourse (CSD). Results Caring for newborns who are dying and their families is very difficult for nurses, due to the intense involvement. They seek strategies to deal with the situation and, before the newborn’s death, despite the suffering, express the feeling of accomplishment. Conclusions Facing death and grief triggers mechanisms that emerge life references, coming across painful issues. Learning to deal with these questions is a daily challenge for nurses of the NICU.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

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Taking care of the newborn dying and their families: Nurses' experiences of neonatal intensive care

Almeida

Moraes

Cunha

2016

Rev. esc. enferm. USP

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“…POSW indicated the key role of physicians in formulating treatment protocol, ignoring clients' psychosocial needs in care programs and POSW barely participated in formulation and implementation of care plans. Borland (1981); Kadushin & Kulys (1995) Silva & et al,(2015) indicated weakness among social workers to control the physician-dominated team structure.…”

Section: Discussionmentioning

confidence: 99%

Why being a social worker in pediatric oncology is stressful and exhausting? A qualitative study in Iranian context

Ostadhashemi¹,

Eghlima²,

Arshi³

et al. 2017

Preprint

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As professionals, social workers have a special position in relation to considering the needs of children with cancer and their families. Hence, it is important to recognize the experiences and challenges of social workers to improve care of their clients. This study was a qualitative content analysis that aimed to determine a comprehensive understanding of 19 pediatric oncology social workers' experiences in Iran. Data were collected using semi structured interviews and field observations, analyzed through face content analysis. Concepts extracted from social workers' experiences consisted of the nature of oncology work, lack of professional competence, low organizational support and professional inferiority that were related to main concept of "exhausting and stressful service". The results indicated that social workers' involvement in stressful and emotionally demanding situations and professional and organizational challenges caused personal exhaustion. In addition to explaining the social workers' experiences and related factors, the results emphasize the importance of taking care of service providers to prevent them becoming stressed and exhausted. It is also important to protect patients from the consequences of stressed and exhausted care providers so further research is recommended to develop specific intervention.

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“…For this form of care to occur with respect, professionalism, and the appropriate techniques, the subject of palliative care must be added to the graduate healthcare curricula, including the nursing course. Moreover, chronic diseases, especially cancer, have significant demands in the entire country (5)(6) . In 2001, the National Council of Education approved the national curriculum guidelines of the graduate programme in nursing that defines the principles, foundations, conditions, and procedures of nurses' training (7) .…”

Section: Introductionmentioning

confidence: 99%

Cuidado paliativo em oncologia pediátrica na formação do enfermeiro

Guimarães

Silva

Santo

et al. 2017

Rev. Gaúcha Enferm.

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Objective: To identify and understand the view of students regarding palliative care in paediatric oncology during a graduate programme. Methods: Exploratory research with a qualitative approach conducted in a school of nursing in Rio de Janeiro. Data were collected from September to November 2014, through semi-structured interviews with 20 students enrolled in the last period of a graduate programme. The data were subjected to thematic analysis. Results:The results produced two thematic units: the (un)preparedness of nursing students regarding palliative care in paediatric oncology and how the subject of palliative care in paediatric oncology is approached in the graduate programme. The students mentioned difficulties in providing this care and their lack of exposure to the topic during their graduate studies. They stated strategies to prepare for the provision of care, and talked about how the subject should be addressed in their curricular programme. Conclusion:It is necessary to expand discussions on palliative care in paediatric oncology during the nurses' graduate programme. Keywords: Palliative care. Oncology nursing. Education, nursing. Children's healthcare. RESUMO Objetivo: Identificar e descrever a visão dos acadêmicos de enfermagem sobre os cuidados paliativos em oncologia pediátrica durante a graduação.Método: Pesquisa exploratória, abordagem qualitativa, desenvolvida em uma Escola de Enfermagem no Rio de Janeiro. A coleta de dados ocorreu de setembro a novembro de 2014, através de entrevistas semiestruturadas, com 20 acadêmicos do último período de graduação. A análise temática dos dados foi realizada.Resultados: Foram elaboradas duas unidades temáticas: o (des)preparo dos acadêmicos de enfermagem frente aos cuidados paliativos em oncologia pediátrica e a abordagem dos cuidados paliativos em oncologia pediátrica na graduação em enfermagem. Os acadêmicos apontaram dificuldades para a realização desse cuidado e a falta de contato com a temática no decorrer da graduação. Os entrevistados citam estratégias de preparo para o cuidado e propõem como o tema deve ser abordado na grade curricular.Conclusão: É necessária a ampliação da discussão sobre os cuidados paliativos em oncologia pediátrica durante a graduação do enfermeiro. Palavras-chave: Cuidados paliativos. Enfermagem oncológica. Educação em enfermagem. Saúde da criança. RESUMENObjetivo: Identificar y describir la visión de los estudiantes de enfermería en cuidados paliativos en oncología pediátrica durante la graduación.Método: Investigación exploratoria, enfoque cualitativo, desarrollado en una Escuela de Enfermería en Río de Janeiro. Los datos fueron recolectados de septiembre a noviembre de 2014, por medio de entrevistas semiestructuradas con 20 estudiantes del último período de la graduación. Se realizó análisis temático.Resultados: Dos unidades temáticas fueron preparadas, la (falta de) preparación de los estudiantes de enfermería en cuidados paliativos en oncología pediátrica y el abordaje del tema de los cuidados paliativos en oncol...

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Palliative care in paediatric oncology: perceptions, expertise and practices from the perspective of the multidisciplinary team

Cited by 46 publications

References 5 publications

Taking care of the newborn dying and their families: Nurses' experiences of neonatal intensive care

Taking care of the newborn dying and their families: Nurses' experiences of neonatal intensive care

Why being a social worker in pediatric oncology is stressful and exhausting? A qualitative study in Iranian context

Cuidado paliativo em oncologia pediátrica na formação do enfermeiro

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