Oti̇zm Spektrum Bozukluğu Tanisi İle Yaşamak: Ai̇leleri̇n Deneyi̇mleri̇

Akkuş, Pınar; Saygan, Bahar Bahtiyar; Bahadur, Evin İlter; Cak, Tuna; Özmert, Elif Nursel

doi:10.12956/tchd.731752

Cited by 6 publications

(1 citation statement)

References 26 publications

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“…Some studies reveal the effects of ASD diagnosis on family relationships, social life, and work life. In such studies, the difficulties experienced by the child diagnosed with ASD and their parents in daily life, school life, and health care were determined (Zengin-Akkus et al, 2020). In some studies, it has been determined that teachers' selfefficacy about their students with ASD is an important determinant of their knowledge and awareness levels.…”

Section: Introductionmentioning

confidence: 99%

A case study on the educational evaluation and diagnosis process of children with autism spectrum disorder

Küçükgöz

Özaydın

2023

PEDAGOGICAL RES

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The aim of this study is to examine the educational evaluation and diagnosis process of individuals with autism spectrum disorder (ASD). This study, which was implemented in the Guidance and Research Center (GRC) in Dulkadiroglu District of Kahramanmaras in 2019, was carried out with participants consisting of two administrators, seven teachers and seven parents with children with ASD. The research adopts the phenomenological approach, which is one of the qualitative research methods. Interview techniques were used in accordance with this model. The findings obtained from the data analyzed with content analysis were explained with six themes as medical diagnosis, ambient, personnel competence, measurement tools, individuals with ASD and parents. Difficulties in the evaluation process of children with ASD in GRC are stated as evaluation based on medical diagnosis, lack of diagnostic authority of GRCs, not communicating with individuals with ASD before evaluation, uniform assessment environment, instant evaluation. In addition, it was stated that the inexperience of the staff about ASD and the insufficient knowledge of using measurement tools negatively affected the evaluation process. The suggestions of the participants to improve the process were not to make evaluations based on medical diagnosis, to communicate with individuals with ASD before the evaluation, to diversify the evaluation environments and to extend the time, and to enrich the observations with various environments. Increasing personnel competence with in-service training, planning in undergraduate programs, developing a measurement tool for individuals with ASD, shortening the waiting period for families and facilitating appointment were among the suggestions.

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Section: Introductionmentioning

confidence: 99%

A case study on the educational evaluation and diagnosis process of children with autism spectrum disorder

Küçükgöz

Özaydın

2023

PEDAGOGICAL RES

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Parenting Challenges in Families of Children with a Diagnosis of Autism Spectrum Disorder: A Qualitative Research Study in Istanbul

2023

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Introduction This qualitative research study examines problems experienced by families with children who have received a diagnosis of autism spectrum disorder (ASD) living in Turkey. Background In recent years, Turkey has moved to expand services to children who have received a diagnosis of ASD and their families. However, families still experience hidden issues that are crucial to consider while developing appropriate policies. Method In this study, we interviewed 10 families whose children attended special education schools in the Bağcılar and Bahçelievler districts of Istanbul. We used semistructured interviews conducted via phone, WhatsApp video chat, and Zoom and a phenomenological approach to gain an in-depth understanding of the caregivers’ experience. Themes were obtained by utilizing descriptive analysis. Results Parents expressed a variety of concerns including financial burden, intrafamilial conflict, mental health problems, and community-related issues. Conclusions Moving forward, the emerging social work profession should assist children who have been given a diagnosis of ASD and their parents in accessing mental and behavioral health and community-level resources, especially mothers, as they often bear the most responsibilities in Turkey.

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Özel Gereksinimli Çocuğa Sahip Ebeveynlerin Tipik Gelişim Gösteren Çocuklarından Beklentileri

ELUMAR

Sani-Bozkurt

2023

Erzincan Üniversitesi Eğitim Fakültesi Dergisi

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Aileye katılan her birey, diğer aile bireyleri üzerinde etkiye sahip olmaktadır. Söz konusu aileye yeni katılan birey özel gereksinimli olduğunda ebeveynlerin ve ailedeki diğer bireylerin yaşam döngülerini ve bakış açılarını değiştirebilmektedir. Bu araştırmanın amacı, özel gereksinimli çocuğa sahip ebeveynlerin özel gereksinimli ilk çocuklarından sonra ikinci çocuğa sahip olma fikrine ilişkin bakış açılarının belirlenmesi ve ebeveynlerin özel gereksinimli çocukları hakkında tipik gelişim gösteren kardeşlerinden beklentilerinin neler olduğunun açıklanmasıdır. Araştırmada nitel araştırma yöntemlerinden fenomenoloji deseni kullanılmıştır. Araştırmaya özel gereksinimli ve tipik gelişim gösteren çocuğa sahip 11 ebeveyn katılmıştır. Katılımcılarla yarı yapılandırılmış görüşmeler gerçekleştirilmiştir. Katılımcılardan elde edilen veriler Nvivo12 programı ile analiz edilmiştir. Araştırma bulgularında ebeveynlerden bazılarının duygusal tükenmişlik yaşarken, bazılarının psikolojik iyilik halinde oldukları görülmektedir. Duygusal tükenmişlik yaşayan ebeveynlerin otizm spektrum bozukluğuna sahip çocukların ebeveynleri olduğu görülürken; psikolojik iyilik halinde bulunan ebeveynlerin Down sendromlu ya da hafif zihinsel yetersizliği olan çocukların ebeveynleri olduğu göze çarpmaktadır. Ebeveynlerin tipik gelişim gösteren kardeşlerden beklentilerinin kardeşlerini sahiplenmesi ve onları koruması olduğu araştırma bulgularının önemli bulgularından biridir. Araştırma sonucunda, özel gereksinimli çocuğa sahip ailelerin her iki çocuklarıyla da nitelikli vakit geçirebilmeleri için psikolojik destek hizmetlerine ihtiyaç duydukları ifade edilmektedir.

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Oti̇zm Spektrum Bozukluğu Tanisi İle Yaşamak: Ai̇leleri̇n Deneyi̇mleri̇

Cited by 6 publications

References 26 publications

A case study on the educational evaluation and diagnosis process of children with autism spectrum disorder

A case study on the educational evaluation and diagnosis process of children with autism spectrum disorder

Parenting Challenges in Families of Children with a Diagnosis of Autism Spectrum Disorder: A Qualitative Research Study in Istanbul

Özel Gereksinimli Çocuğa Sahip Ebeveynlerin Tipik Gelişim Gösteren Çocuklarından Beklentileri

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