Ocultamento e silenciamento familiares no cuidado à criança em terapia antiretroviral

Abstract

The aims of this paper were unveiling the caregiver's everyday life of caring for children under antiretroviral therapy (ARVT), and analyzing the dimensions of care them. Qualitative research was conducted with a creative-sensitive method including seven family members and data were treated through discourse analysis. These family members' everyday life in the medication implementation was marked by concealing and silencing. The first one was represented by linguistic regularities, as expressions and acronyms do not appear in their enunciation, and also in the way their lives are organized facing stigma and bias related to the ARVT. The last one occurred in the relationship with children, as when family members were questioned about the medication, they answered in an evasive way. Concealing and silencing related to child HIV/AIDS are themes which need to be approached by nurses in their caring and health education interventions.

Condições de produção do discurso de enfermeiros na prática educativa com adolescentes

“…As falas proferidas durante as dinâmicas foram gravadas e transcritas, materializando, assim, o corpus do estudo, em que se conferiu a materialidade linguística ao texto para dessuperficialização do corpus discursivo 11 .…”

<b>Vivências da criança com HIV/Aids</b> doi: 10.4025/cienccuidsaude.v11i4.19481

“…Desse modo, crianças e seus cuidadores/familiares optam pelo ocultamento e silenciamento da doença, forma encontrada para proteger a criança de atitudes preconceituosas (8) . Nesse sentido, revelar a condição de saúde para alguém implica ter coragem de se expor, sem saber de que modo o outro irá receber e interpretar tal informação.…”

Criança com HIV/AIDS: percepção do tratamento antirretroviral

“…However, from the 1990s, pediatric AIDS began presenting significant epidemiological data changing the HIV/Aids profile (1) . In the period between 1980 and 2010, 14,926 cases of HIV-infected children aged between zero and twelve years of age were reported being 7,402 males and 7,524 females.…”

“…The family caregiver seeks a routine that allows the naturalization of antiretrovirals, and often hides the disease, stimulating the child's imagination from the perspective of making the intake of medicine inherent in the family's daily and normal life (1) . Given the complexity involved in the experiences of children with HIV/AIDS in relation to ART, we performed a multicenter study entitled Impact of Adherence to antiretroviral therapy in children and adolescents, from the family, child and adolescent perspective, in the municipalities of Porto Alegre and Santa Maria/RS, under contract No.…”