Motherhood and HIV: reproductive desire, ambivalent feelings and a/an (not) offered care

Abstract

Objective: To identify in the scientific literature the feelings of women living with HIV in relation to reproduction and motherhood, as well as the care provided by health professionals regarding reproductive health as a right. Method: Integrative review carried out in 2017, in the databases LILACS, PUBMED, BDENF and SciELO Virtual Library. We analyzed 30 articles. Results: As feelings, the motivation for reproduction and self-care, fears, uncertainties and hopes were evidenced. As care, services that support reproductive decisions were evidenced, but, predominantly, the disregard for the desire and care incipience for reproductive planning. Conclusion: There is no comprehensive and humanized work on the reproductive issues of these women, either through the neglect of the desire and viability of gestation or by the incipient care to the ambivalent emotional experiences. There is a need to qualify the care model in order to configure it, in fact, as care, aiming at guaranteeing reproductive rights.

Significado de cuidado en las relaciones de personas que viven con VIH/SIDA

“…En este estudio un punto crítico también fue la maternidad, ya que el ciclo vital en el que se tiene una alta incidencia es la conformación familiar, encontrando mujeres con VIH/SIDA en gestación o con sus recién nacidos, que evidencia la feminización del VIH. Según Godoy (23) , Silva (24) y Leiva-Moral (25) esta fase no está exenta de los factores del contexto antes mencionados como la discriminación por la decisión de continuar su embarazo siendo portadora. Además estar en esta fase es un motivador de superación, por quien viene en camino como forma de protegerlo y la relación con el personal de salud (médico) puede ser significativa porque se atienden necesidades de educación y apoyo para desarrollar el potencial que no conocían estas mujeres sobre sí mismas.…”

Experience of pregnancy and maternity by adolescents/young people born infected with HIV

“…The concern with the possibility of VT seems to contribute to a personal implication of women to "do everything that is right", from prenatal care until after birth. A study carried out in São Paulo, points out that the act of generating a seronegative child provides women with a brief sensation of completeness, as they fulfill their "mission" (4) , and express the feeling of "duty accomplished", pointing out good adherence to HIV VT prophylaxis.…”

“…At the beginning of the epidemic, HIV-infected women were discouraged from getting pregnant and strongly censored by the health team, which resulted in abortion or abandonment of treatment (3) . Social norms and stereotypes about the epidemic, represented by neglect and the lack of reproductive planning in the care of women with HIV, constitute obstacles to the exercise of reproductive rights (4) . Even today, health services, despite working adequately for the prevention of VT, incur inattention to comprehensive care for women, especially regarding conceiving them as a person with rights, as the historical prioritization of fragmented care persists, that is, focused on the child at the expense of the woman (1) .…”

Mulheres com HIV: percepção sobre uma futura gestação

“…It is evident that there is still a gap in specialized services on reproductive planning and monitoring of these women and there is much to be done in structuring specialized services in the care of women who want to become pregnant, thus offering comprehensive humanized services to these women. 25 It is concluded that women living with HIV, who participated in the study, have the desire to become pregnant even with their positive diagnosis for HIV, however, the fear of transmitting the virus to their child during pregnancy is the main concern of them, as well as the mother's concern with society's prejudice towards her son.…”