Life experiences of people who stutter, and the perceived impact of stuttering on quality of life: personal accounts of South African individuals

Klompas, Michelle; Ross, Eleanor

doi:10.1016/j.jfludis.2004.10.001

Cited by 218 publications

(179 citation statements)

References 25 publications

(24 reference statements)

Supporting

Mentioning

129

Contrasting

Unclassified

Order By: Relevance

“…This finding agrees with the proposition that stuttering can affect more than just the ability of the person to produce the necessary fluency, as the qualiy of life is an important factor to be considered for its multidimensional characteristics (7)(8)(9)18,(20)(21)(22)(23)30) .…”

Section: Discussionsupporting

confidence: 90%

See 1 more Smart Citation

Brazilian version of the Overall Assessment of the Speaker's Experience of Stuttering - Adults protocol (OASES-A)

Bragatto¹,

Osborn²,

Yaruss

et al. 2012

J. Soc. Bras. Fonoaudiol.

View full text Add to dashboard Cite

PURPOSE: To verify the applicability of the protocol Overall Assessment of the Speaker's Experience of Stuttering - Adults (OASES-A), translated into Brazilian Portuguese, in a sample of adults who stutter. METHODS: The Brazilian Portuguese version of the OASES-A protocol was individually applied to 18 people who stutter. The classification of stuttering severity was based on the Stuttering Severity Instrument for Children and Adults (SSI-3) protocol. Translation and back-translation processes were carried out by specialists, considering semantic, conceptual, cultural, and idiomatic equivalences. RESULTS: There was no correlation between the severity degrees of stuttering assessed by the SSI-3 protocol and the self-assessment performed using the OASES-A. Subjects reported impairments in perceived fluency; speech ability; level of knowledge about stuttering and treatment options; use of confrontational techniques; quality of life. They also mentioned having difficulty coping with emotional states such as anxiety and embarrassment, and with communication in daily situations. CONCLUSION: The OASES-A protocol is useful in the assessment and treatment of stutterers, as it provides specialized speech-language pathologists with sutterers' self-perception regarding their communication difficulties and the impact of stuttering on their quality of life.

show abstract

Section: Discussionsupporting

confidence: 90%

“…Most studies do not show any significant differences in the self-evaluation of stuttering for male and female stutterers (16)(17)(18)(19)(20)(21)(22)(23) , however, when more precise themes are studied differences can be identified.…”

Section: Discussionmentioning

confidence: 92%

Brazilian version of the Overall Assessment of the Speaker's Experience of Stuttering - Adults protocol (OASES-A)

Bragatto¹,

Osborn²,

Yaruss

et al. 2012

J. Soc. Bras. Fonoaudiol.

View full text Add to dashboard Cite

show abstract

“…Stuttering is an unpredictable disorder (Bloodstein, 1995;Guitar, 2005;Manning, 2001;Shapiro, 1999) with conflicting and variable responses from fluent communication partners and reported negative communication experiences (Bebout & Bradford, 1992;Ham, 1990;Ruscello, Lass, Schmitt, & Pannbacker, 1994;Turnbaugh, Guitar, & Hoffman, 1979;Woods & Williams, 1971). Data from qualitative studies suggest suffering, helplessness, shame, and stigma may be core experiences for some adults who stutter (Corcoran & Stewart, 1998;Crichton-Smith, 2002;Klompas & Ross, 2004). These experiences may make persons who stutter more susceptible to negative emotional responses, poorer self-esteem, and higher anxiety levels (Guitar, 2005;Manning, 2001;Shapiro, 1999;Silverman, 2004;Van Riper, 1982).…”

Section: Introductionmentioning

confidence: 99%

Anxiety levels in adolescents who stutter

Blood

Maloney

et al. 2007

Journal of Communication Disorders

View full text Add to dashboard Cite

High levels of anxiety can negatively affect the lives of children and adolescents. Thirty-six adolescents who stutter and 36 adolescents who do not stutter were administered standardized scales for anxiety and self-esteem. Significant differences were found for the total T-scores for Revised Children's Manifest Anxiety Scale for the two groups, although both groups mean T-scores were within normal range. Eighty-three percent of adolescents who stutter and 95% of adolescents who do not stutter earned scores in the normal range. No significant differences were found on the self-esteem scale, with 86% of adolescents who stutter and 97% of adolescents who do not stutter earning scores in the normal/positive range. Adolescents who stutter with co-occurring disorders displayed significantly higher levels of anxiety than adolescents who stutter with no co-occurring disorders. No significant differences were found between groups on ethnicity, socioeconomic class, gender and anxiety levels. A positive, significant correlation between anxiety scores and self-esteem scores was found for both groups.Learning outcomes: Readers will learn about and understand (a) the role of anxiety and selfesteem in stuttering; (b) the methods used to evaluate anxiety and self-esteem in adolescents; and (c) the similarities between adolescents who stutter and adolescents who do not stutter on anxiety and self-esteem scales. #

show abstract

“…The SI analyze their involvement in the therapy as responsible, to a greater or lesser degree, for their unsuccessful experiences. They attributed their lack of involvement to insufficient Self-perception and stuttering treatments CoDAS 2014;26 (5): knowledge about the problem (in biopsychosocial terms); the permanence of negative reactions from external listeners over the course of the treatment; pessimistic emotions about achieving success with the treatment; the restrictions on their natural lifestyle imposed by the use of techniques; negative relationships between the patient and the therapist; and insecure or inconstant therapists, among others (16)(17)(18)(19) . The results of our study for Question 2 indicate that the reactions of the participants in the study presented here are similar to those described in the literature.…”

Section: Discussionmentioning

confidence: 99%

Self-perception of people who stutter regarding their experiences and results of stuttering treatments

Andrade

Cunha

Juste

et al. 2014

CoDAS

View full text Add to dashboard Cite

Purpose:To investigate the opinion about stuttering treatments in people who stutter, based on their answers to two open questions.Methods:The participants were 40 adults of both genders, with self-reported stuttering. During the first phase of the research, we contacted two Brazilian nongovernmental organizations: the Brazilian Stuttering Association (ABRAGAGUEIRA) and the Brazilian Fluency Institute (IBF). These associations agreed to participate and were responsible for sending the research questions to their members via electronic mail. The first contact with the participants elucidated the purpose and method of our research and, after obtaining informed consent from participants, the two questions were sent. The research questions involved their opinion about cure, treatments to which the participants had been submitted, and their outcome.Results:After analysis, the answers obtained indicated that people who stutter believe in a cure for stuttering; that the ideal therapy would be the one that led to the disappearance of the symptoms; and the most frequently reported professional to treat the disorder is the speech-language pathologist. The results also indicated that although most of the participants had undergone speech-language treatment for stuttering, neither significant improvements were observed nor satisfaction was positive.Conclusion:The results indicate that the answers presented by the participants were not based on scientific knowledge about the disorder but on their wish that "something could happen" to make stuttering "disappear." Although in this study we did not investigate the type of treatment to which the patients were submitted, the results suggest that the factors that contribute to an effective treatment are contentious.

show abstract

Life experiences of people who stutter, and the perceived impact of stuttering on quality of life: personal accounts of South African individuals

Cited by 218 publications

References 25 publications

Brazilian version of the Overall Assessment of the Speaker's Experience of Stuttering - Adults protocol (OASES-A)

Brazilian version of the Overall Assessment of the Speaker's Experience of Stuttering - Adults protocol (OASES-A)

Anxiety levels in adolescents who stutter

Self-perception of people who stutter regarding their experiences and results of stuttering treatments

Contact Info

Product

Resources

About