2010
DOI: 10.1590/s0034-71672010000400015
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Experiência da família ao conviver com sequelas decorrentes da prematuridade do filho

Abstract: O objetivo do estudo foi conhecer como famílias de crianças nascidas prematuras e com muito baixo peso tiveram a experiência de conviver com essa criança no decorrer dos primeiros anos de vida. Trata-se de um estudo qualitativo, desenvolvido na cidade de Maringá, PR, Brasil, com a oito famílias de crianças nascidas no Hospital Universitário durante os anos de 1998 a 2000. Os dados foram coletados por meio de entrevistas abertas, realizadas no período de janeiro a junho de 2006 nos domicílios. As famílias revel… Show more

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Cited by 14 publications
(22 citation statements)
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“…Consequently, the bond between the physician and the family may be constructed and strengthened because of greater confidence. Previous studies have highlighted the problems of communication between patients' families and health professionals as a result of the use of technical language (19,(24)(25)(26)(27)(28) . According to Holditch-Davis et al (29) , the stress experienced by mothers when confronted by child prematurity can be aggravated by low education levels and socioeconomic status.…”
Section: Discussionmentioning
confidence: 99%
See 1 more Smart Citation
“…Consequently, the bond between the physician and the family may be constructed and strengthened because of greater confidence. Previous studies have highlighted the problems of communication between patients' families and health professionals as a result of the use of technical language (19,(24)(25)(26)(27)(28) . According to Holditch-Davis et al (29) , the stress experienced by mothers when confronted by child prematurity can be aggravated by low education levels and socioeconomic status.…”
Section: Discussionmentioning
confidence: 99%
“…Deficits in these children are observed and diagnosed over the years due to day-to-day living Vision-related quality of life in children with retinopathy of prematurity and medical management. There are often difficulties related to the acceptance of these impairments and mobilization of resources to deal with them (19) . Parents can have reactions of shock, despair, and/or sadness (16,18,20) , because they are often unaware of what prematurity entails and may have misconceptions about these births (16) .…”
Section: Introductionmentioning
confidence: 99%
“…É um processo que possui efeitos tanto para quem recebe quanto para quem oferece o apoio, permitindo que as pessoas ampliem sua autonomia e a sua capacidade de assumir o cuidado de si (3) . Esse apoio provém primariamente da família, considerada uma unidade de cuidado em que se efetivam os relacionamentos de pessoas que vivem juntas e comprometidas (4) .…”
Section: Introductionunclassified
“…During the schooling phase, parents became worried about possible deficits of their child; there is more knowledge about expectations of development for this age range, and parents will compare the development of their children with that of their peers with a more attentive eye (Arruda & Marcon, 2010).…”
Section: Resultsmentioning
confidence: 99%