Effect of Psoriatic Arthritis According to the Affected Categories of the International Classification of Functioning, Disability and Health

Taylor, William J.; Mease, Philip J.; Adebajo, Adewale; Nash, Peter; Feletar, Marie; Gladman, Dafna D.

doi:10.3899/jrheum.091315

Cited by 33 publications

(19 citation statements)

References 20 publications

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“…Similarly, people with PsA reported reduced ability to fulfil personal roles, limitations in their social life and work 20. Taylor et al similarly found that, while people with PsA experienced difficulties in many areas in the ICF domains of Activities and Participation, these domains mapped poorly to existing ‘participation’ and HRQoL measures that include subscales related to social functioning 21. The findings of Taylor et al confirmed previous work by Stamm et al 22…”

Section: Introductionsupporting

confidence: 55%

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Measuring participation in people with spondyloarthritis using the social role participation questionnaire

et al. 2011

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Section: Introductionsupporting

confidence: 55%

“…Boonen et al also reported work disability in people with AS3 4 and Wallenius et al reported work disability in people with PsA aged 19–40 years 6. Finally, the domains included in the SRPQ reflect common problems experienced by people with AS19 and PsA 21…”

Section: Discussionmentioning

confidence: 98%

Measuring participation in people with spondyloarthritis using the social role participation questionnaire

et al. 2011

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“…The prevalence of PsA is 0.01–0.47% in the general population2 and, depending on classification methods, 11–34%2–5 among people with psoriasis. The heterogeneity of clinical manifestations (eg, oligoarthritis and polyarthritis, and spinal, ligamentous and tendon involvement) complicates assessment of PsA outcomes and broadens its impact on daily life 6. PsA has been shown to negatively impact health-related quality of life (HRQL) independently of psoriasis skin manifestations 7.…”

Section: Introductionmentioning

confidence: 99%

Systematic literature review of domains assessed in psoriatic arthritis to inform the update of the psoriatic arthritis core domain set

Kalyoncu

Ogdie

Campbell³

et al. 2016

RMD Open

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The objectives of this systematic literature review (SLR) were to identify domains and outcome measures used in psoriatic arthritis (PsA) studies in the past 5 years, and to compare the measurement of the Outcome Measures in Rheumatology (OMERACT) 2006 PsA Core Domain Set in studies published in 2010–2015 vs those published in 2006–2010. We performed a systematic literature search in two databases, PubMed and Embase, to identify randomised controlled trials (RCTs) in PsA. We also identified PsA longitudinal observational studies (LOS). Three patient research partners provided input into study conception, and data collection and interpretation. We identified 41 studies representing 22 unique RCTs, 27 LOS and 12 registries. Across all studies, we identified 24 domains and 169 outcome measures. In addition to the PsA Core Domain Set (6 domains), the following domains were also assessed in more than 30% of RCTs: acute phase reactants, dactylitis, enthesitis, fatigue and work productivity. We identified a range of 1–15 outcome measures per domain with a mean (SD) of 7 (4.7) per domain. The complete PsA Core Domain Set was assessed in 59% of RCTs in 2010–2015 compared to 23.5% RCTs in 2006–2010. There has been increased measurement of the PsA Core Domain Set in RCTs and LOS in the past 5 years. Numerous additional outcomes were also measured. The PsA Core Domain Set needs an update to standardise PsA outcome assessments. This SLR will inform the development of an updated PsA Core Domain Set with patient research partner input.

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“…PsA may present with ≥ 1 clinical subtype, including peripheral joint inflammation, enthesitis, dactylitis, axial spondylitis, and varying severity of nail and skin changes; the heterogeneous aspect of this disease makes diagnosis and treatment challenging 4,5 . Some patients with PsA may experience destruction of the joints, and functional and psychosocial impairments are common 6,7,8 . Additionally, PsA is associated with an increased prevalence of comorbidities such as metabolic and cardiovascular disease, further complicating management of the disease 9 .…”

mentioning

confidence: 99%

Evaluation of Self-reported Patient Experiences: Insights from Digital Patient Communities in Psoriatic Arthritis

Sunkureddi

Doogan²,

Heid³

et al. 2018

J Rheumatol

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Objective.To evaluate the types of experiences and treatment access challenges of patients with psoriatic arthritis (PsA) using self-reported online narratives.Methods.English-language patient narratives reported between January 2010 and May 2016 were collected from 31 online sources (general health social networking sites, disease-focused patient forums, treatment reviews, general health forums, mainstream social media sites) for analysis of functional impairment and 40 online sources for assessment of barriers to treatment. Using natural language processing and manual curation, patient-reported experiences were categorized into 6 high-level concepts of functional impairment [social, physical, emotional, cognitive, role activity (SPEC-R), and general] and 6 categories to determine barriers to treatment access (coverage ineligibility, out-of-pocket cost, issues with assistance programs, clinical ineligibility, formulary placement/sequence, doctor guidance). The SPEC-R categorization was also applied to 3 validated PsA patient-reported outcome (PRO) instruments to evaluate their capacity to collect lower-level subconcepts extracted from patient narratives.Results.Of 15,390 narratives collected from 3139 patients with PsA for exploratory analysis, physical concepts were the most common (81.5%), followed by emotional (50.7%), cognitive (20.0%), role activity (8.1%), and social (5.6%) concepts. Cognitive impairments and disease burden on family and parenting were not recorded by PsA PRO instruments. The most commonly cited barriers to treatment were coverage ineligibility (51.6%) and high out-of-pocket expenses (31.7%).Conclusion.Patients often discussed physical and emotional implications of PsA in online platforms; some commonly used PRO instruments in PsA may not identify cognitive issues or parenting/family burden. Nearly one-third of patients with PsA reported access barriers to treatment.

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Effect of Psoriatic Arthritis According to the Affected Categories of the International Classification of Functioning, Disability and Health

Cited by 33 publications

References 20 publications

Measuring participation in people with spondyloarthritis using the social role participation questionnaire

Measuring participation in people with spondyloarthritis using the social role participation questionnaire

Systematic literature review of domains assessed in psoriatic arthritis to inform the update of the psoriatic arthritis core domain set

Evaluation of Self-reported Patient Experiences: Insights from Digital Patient Communities in Psoriatic Arthritis

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