Auf dem Prüfstand: stationäre medizinische Rehabilitation bei chronisch entzündlichen Darmerkrankungen

Hüppe, Angelika; Steimann, Gero; Janotta, M.; Langbrandtner, Jana; Eisemann, Nora; Bokemeyer, Bernd; Raspe, Heiner

doi:10.1055/s-0042-109590

Cited by 7 publications

(11 citation statements)

References 11 publications

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“…In two earlier studies, this proportion was 40%, reflecting the relevant role of primary care in both the initial work-up and long-term care. 22 , 53 …”

Section: Discussionmentioning

confidence: 99%

Quality of care in inflammatory bowel disease: results of a prospective controlled cohort study in Germany (NET<sub>IBD</sub>)

Langbrandtner¹,

Hüppe²,

Jessen³

et al. 2017

CEG

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Background/aimsPatients with inflammatory bowel disease (IBD) need comprehensive, interdisciplinary and cross-sectoral health care. In Germany, evidence-based care pathways have been developed to improve the quality of care of IBD patients. We aimed to evaluate the effects of the implementation of some of these recommendations on patient-related outcomes.MethodsIn a region of North Germany, outpatients with IBD were recruited by gastroenterologists (intervention group). Three activities based on the recommendations of the IBD pathways were implemented, namely, 1) patient participation in a questionnaire-based assessment of 22 somatic and psychosocial problems combined with individualized care recommendations (patient activation procedure); 2) patient invitation to participate in a 2-day patient education program and 3) invitation to their gastroenterologists to participate in periodic interdisciplinary case conferences. For the control group, IBD patients receiving standard care at gastroenterology practices outside the specified region were recruited by their doctors. At baseline, 6- and 12-month follow-up, study patients were invited to complete questionnaires. Generic health-related quality of life, social participation and self-management skills were the main outcomes.ResultsAt baseline, 349 patients were included in the study (intervention group: 189; control group: 160); 142 patients from the former and 140 from the latter group returned completed questionnaires at the 12-month follow-up. Over time, improvement in health-related quality of life and social participation was similar in both groups. Participants of the intervention group demonstrated improved self-management skills and more often followed steroid-free medication regimens.ConclusionIn a real-world clinical context, patient activation procedure combined with patient education and case conferences was less effective than expected. The observed beneficial effects, however, encourage the evaluation of more intensive and addressee-centered activities.

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“…In two earlier studies, this proportion was 40%, reflecting the relevant role of primary care in both the initial work-up and long-term care. 22 , 53 …”

Section: Discussionmentioning

confidence: 99%

Quality of care in inflammatory bowel disease: results of a prospective controlled cohort study in Germany (NET<sub>IBD</sub>)

Langbrandtner¹,

Hüppe²,

Jessen³

et al. 2017

CEG

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“…Die OG gleicht stärker einer CED-Studienstichprobe aus dem rehabilitativen Versorgungssektor [30]: Teilnehmende (N = 250), die zu Reha-Beginn an einem vergleichbaren PF-A teilnahmen, berichteten ebenfalls von im Mittel 4 aktiven psychosozialen Problemfeldern und vergleichbaren Häufigkeiten bei einzelnen Problemfeldern.…”

Section: Psychosoziale Problemvielfalt Und Fächerübergreifende Versorunclassified

Psychosoziales Problemfeld-Assessment bei chronisch entzündlichen Darmerkrankungen – wer nutzt die online-Version unter www.CED-aktiv-werden.de?

et al. 2021

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Zusammenfassung Ziel der Studie Die Berücksichtigung psychosozialer Problemfelder zählt zu den Merkmalen einer guten Versorgung, auch von Patienten mit Morbus Crohn (MC) oder Colitis ulcerosa (CU). Seit 2014 wird Betroffenen mit chronisch entzündlicher Darmerkrankung (CED) online ein kostenfreies fragebogengestütztes Problemfeld-Assessment mit Versorgungsempfehlungen angeboten. Primäres Ziel unserer Datenanalyse ist die vergleichende Beschreibung soziodemografischer wie krankheitsbezogener Merkmale von Nutzerinnen und Nutzern dieses Angebotes. Methodik Für eine retrospektive Datenanalyse wurde die online-Stichprobe (OG) bestehend aus 2156 MC oder CU-Kranken mit 852 Personen aus 2 CED-Versorgungsforschungsstudien verglichen (VG). Neben deskriptiven Verfahren kamen Regressions- und Kovarianzanalysen zum Einsatz. Ergebnisse Die OG unterscheidet sich hoch signifikant und teils klinisch relevant von der VG. Jeder dritte ist jünger als 30 Jahre (VG: 19%); 45% haben Abitur (VG: 36%). In der OG befinden sich weniger Kranke in Remission (OG 34%; VG 59%). Auch unter Kontrolle der Unterschiede zeigt sich die OG im Vergleich zur VG in 12 der 17 erfassten psychosozialen Problemfelder als stärker belastet. Zu 5 von 9 krankheitsbezogenen Themenbereichen äußert sie einen stärkeren Informationsbedarf. Schlussfolgerung Die internetbasierte Version des Problemfeld-Assessments wird v. a. von jüngeren, besser ausgebildeten und körperlich wie psychosozial stärker belasteten CED-Kranken genutzt. Sie weisen ein hohes Informationsbedürfnis auf. Das Problemfeld-Assessment dürfte ihnen dabei helfen, sich selbst aktiv in die eigene Versorgung einzubringen. Unsere Daten werfen weiteres Licht auf Besonderheiten von Internet-basierten Untersuchungsgruppen.

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“…In 2013, our working group started 2 longitudinal studies, REHA IBD [22] and NET IBD [21], with comparable measuring instruments and parallel time points of measurement. For evaluating the efficacy of various interventions on the course of disease, in REHA IBD , adult rehabilitants in a specialist rehabilitation clinic with CD or UC as first diagnosis, and in NET IBD , CD and UC patients treated in 28 gastroenterological specialist practices as well as 2 IBD outpatient clinics, were recruited consecutively and prospectively.…”

Section: Data Sourcesmentioning

confidence: 99%

“…For this purpose, data from 2 recent research studies on health services were reanalyzed. In both, disease activity was recorded both with the GIBDI (embedded in a patient questionnaire) and with the physician-documented activity indices pMS (in the case of UC) and HBI (in the case of CD) [21,22].…”

Section: Introductionmentioning

confidence: 99%

Validation of the “German Inflammatory Bowel Disease Activity Index (GIBDI)”: An Instrument for Patient-Based Disease Activity Assessment in Crohn’s Disease and Ulcerative Colitis

et al. 2018

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Auf dem Prüfstand: stationäre medizinische Rehabilitation bei chronisch entzündlichen Darmerkrankungen

Abstract: Complex rehab is mainly used by CED-patients with several bio-psycho-social problems. Our preliminary data do not suggest a marked additional benefit of inpatient rehab compared to specialised outpatient care. Stricter controlled trials are urgently needed.

Cited by 7 publications

References 11 publications

Quality of care in inflammatory bowel disease: results of a prospective controlled cohort study in Germany (NET<sub>IBD</sub>)

Quality of care in inflammatory bowel disease: results of a prospective controlled cohort study in Germany (NET<sub>IBD</sub>)

Psychosoziales Problemfeld-Assessment bei chronisch entzündlichen Darmerkrankungen – wer nutzt die online-Version unter www.CED-aktiv-werden.de?

Validation of the “German Inflammatory Bowel Disease Activity Index (GIBDI)”: An Instrument for Patient-Based Disease Activity Assessment in Crohn’s Disease and Ulcerative Colitis

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