APOIO INTERGERACIONAL EM FAM&amp;#205;LIAS COM CRIAN&amp;#199;AS COM DEFICI&amp;#202;NCIA

Yamashiro, Juliana; Matsukura, Thelma Simões

doi:10.1590/1413-73722419312

Cited by 12 publications

(5 citation statements)

References 20 publications

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“…However, there is a strong commitment to care tasks among the immediate family circle, especially grandmothers, who become a source of family support in the form of cooperation in caregiving tasks, direct performance of these tasks, or economic support for the family environment. The literature has proven that grandmothers play a crucial role in the support of mothers and other family members, which is related to practical, economic, emotional, and affective support [46][47][48][49].…”

Section: Discussionmentioning

confidence: 99%

Mothers Who Take Care of Children with Disabilities in Rural Areas of a Spanish Region

Cantero-Garlito

Miralles

Martos

2020

IJERPH

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The purpose of this research is to describe how the mothers of children with disabilities in rural areas of Extremadura perceive care tasks and the subjective impact that these tasks have on their daily life and health, as well as the subjective assessment that these mothers make of the benefits and services of the Spanish welfare policy. An interpretative paradigm was selected, using a qualitative approach and a phenomenological design. Twelve mothers were included. Data were collected through semi-structured interviews. A discourse analysis of the narrative information was performed using open, axial, and selective coding processes and the constant comparative method. Three topics have been extracted from the findings of the analysis: (1) extensive care responsibilities, (2) impacts upon well-being and daily life, and (3) resources that “barely” help. The care tasks performed by mothers of children with disabilities in rural areas have an enormous impact on their daily life and health. This involvement in caregiving generates a significant occupational imbalance which has an impact on their mental health, and which causes economic and social problems.

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Section: Discussionmentioning

confidence: 99%

Mothers Who Take Care of Children with Disabilities in Rural Areas of a Spanish Region

Cantero-Garlito

Miralles

Martos

2020

IJERPH

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“…Some grandparents pointed to the importance of faith and belief. This corresponded with Yamashiro and Matsukura (2014) and Lehmann et al (2011), who agreed with this idea as an important element of learning and/or a tool for coping with having a grandchild with a disability. Most reported changes in their lives since their grandchildren's birth, and one can compare this narrative to other studies (Woodbridge et al, 2011;Miller et al, 2012;Findler, 2014;Kresak et al, 2014;Yang et al, 2018) that describe how grandparents often delayed their life goals.…”

Section: Discussionmentioning

confidence: 56%

Nurturing Grandchildren With Down Syndrome: A Qualitative Study on Grandparents’ Needs Using Digital Tools†

et al. 2021

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Grandparents who have grandchildren with disabilities are an underrepresented group in existing research related to the field. This qualitative phenomenological study’s general purpose is to analyze, from a personal perspective, the situations and needs of grandparents who have grandchildren with Down syndrome. The participants’ ages range from 65 to 85, and the ages of their grandchildren with Down syndrome range from 3 to 21 years. All participants had one grandchild with a disability, except for two, who each had two. A sociodemographic questionnaire was administered, and individual interviews were conducted, using open questions, through phone and/or video calls. An analysis of the participants’ speech was carried out, which implied the development of a system of meta-categories and categories. This analysis was developed manually, given the COVID-19 environment. The results indicate a substantial change from negative feelings caused by the knowledge of the diagnosis to feelings related to positive experiences expressed currently. The participants see themselves as a fundamental source of support (informal, instrumental, practical, social, emotional, and economic) for their families and, mainly, for their grandchildren with Down syndrome. A need for information and training was observed when the grandparents talked about first being informed of the diagnosis and their concerns about the future of these grandchildren and their siblings. They made social demands, such as greater government involvement or more significant opportunities to access resources and rights for their grandchildren. The results are discussed, as are possible future research directions.

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“…Entende-se que as formas de comunicação entre as gerações influenciam a qualidade da relação familiar, as quais permitem que o indivíduo se realize como ser social. Por meio desses relacionamentos, os vínculos familiares se estabelecem, e os diferentes papéis geracionais são construídos com influências de gênero, socioeconômicas, culturais, de proximidade geográfica, de frequência de contato, dentre outras (36). Percebe-se, então, que os familiares representam uma rede de apoio social, principalmente as gerações mais antigas por estarem balizadas por conhecimento pregresso, sabedoria e tradição (37).…”

Section: Resultsunclassified

Experiências migratórias e intergeracionais sobre a amamentação no espaço familiar: um estudo de representações sociais

Moreira¹,

Paiva²,

Ramos³

et al. 2018

Aquichan

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Objetivos: analizar las experiencias intergeneracionales de mujeres migrantes de la misma familia sobre la lactancia; se aprehende las representaciones sociales de esa población a lo largo de las generaciones sobre la experiencia de amamantar. Material y métodos: investigación cualitativa, fundamentada en la Teoría de las Representaciones Sociales y realizada con 63 mujeres de la misma familia y de diferentes generaciones, 21 tríadas en total. Se utilizó, para la recolección de los datos, la Prueba de Asociación Libre de Palabras y, para el análisis de éstos, el software Tri-Deux-Mots. Resultados: para las mujeres migrantes, la práctica de amamantar permanece ligada a beneficios fisiológicos y emocionales para el hijo, exigiendo abnegación y satisfacción. En la lactancia, las mujeres que se desplazan a nuevos territorios son más vulnerables como consecuencia de la adaptación geográfica, sociocultural y afectiva a la que serán sometidas. El proceso migratorio puede influir en la lactancia y estar en el origen de conflictos de maternidad, especialmente entre generaciones más jóvenes, pues éstas necesitan referencias familiares que, muchas veces, permanecen distantes o ausentes. Conclusiones: la diversidad sociocultural y el territorio influencian gran parte de las mujeres migrantes que amamantan, haciéndose necesario comprender los determinantes regionales y culturales, y las influencias familiares y generacionales que permean ese proceso.

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APOIO INTERGERACIONAL EM FAMÍLIAS COM CRIANÇAS COM DEFICIÊNCIA

Cited by 12 publications

References 20 publications

Mothers Who Take Care of Children with Disabilities in Rural Areas of a Spanish Region

Mothers Who Take Care of Children with Disabilities in Rural Areas of a Spanish Region

Nurturing Grandchildren With Down Syndrome: A Qualitative Study on Grandparents’ Needs Using Digital Tools†

Experiências migratórias e intergeracionais sobre a amamentação no espaço familiar: um estudo de representações sociais

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