A vivência do pai no processo de reabilitação da criança com deficiência auditiva

Abstract

Este estudo visou investigar as vivências emocionais e mecanismos de defesa de pais de crianças com deficiência auditiva. Foram entrevistados 12 genitores masculinos, de 25 a 38 anos, com escolaridade de primeiro grau incompleto a superior incompleto. Dos entrevistados, sete eram pais de filhos únicos, três, pais pela segunda vez e um pai pela terceira vez da criança com necessidade específica. As respostas foram categorizadas e analisadas com base no referencial psicodinâmico e apresentam vivências de choque, ansiedade e angústia e o uso de mecanismos de defesa frente ao diagnóstico e implicações da deficiência. As defesas constatadas foram analisadas como reações situacionalmente esperadas, podendo favorecer formas mais realistas de enfrentamento posterior. Sugere-se que, assim como mães, pais vivenciam impacto e dificuldades emocionais frente ao diagnóstico de seus filhos. Diferenças de papéis familiares facilitam ao pai um menor envolvimento na educação da criança, devendo-se valorizar a sua importância no processo de reabilitação.

Validação do questionário Parent’s Evaluation of Aural/Oral Performance of Children – PEACH em língua portuguesa brasileira

“…Children participating in the study were between 13 and 84 months old and most have been recently diagnosed (7,20) (Figure 1). As for the families who answered the questionnaire (Figure 2), it can be said that the mother (69.2%) was the person in the family that is most involved in the child's rehabilitation process, which corroborates findings of previous studies (21,22) . In other studies, researchers (23,24) added that in addition to the early intervention (7,20) , the family participation is crucial in the successful rehabilitation of children with hearing impairment.…”

Families of Children with Hearing Loss and Parental Educational Practices

“…Other authors have also found out that mothers of children with hearing loss are less spontaneous than with normative children (Brito & Dessen, 1999). Additionally, mothers of children with hearing loss are less involved in their development, being more concerned in taking basic care rather than talking to them (Canho, Neme & Yamada, 2006). However, the results of the present research do not prove that low repertoire of social skills is associated to behavior problems, a finding in agreement with some other studies (Cia & Barham, 2009;Gargiulo, 2003).…”

“…Fathers participated less intensively on the development of the children using more rational justifications, culturally more accepted, as the necessity of being absent due to work. However, fathers tend to present the same anguish and anxiety feelings reported by mothers (Canho, Neme & Yamada, 2006). The authors suggest intervention procedures geared towards the fathers in order to make them active participants in the upbringing of the children.…”

Comunicando à mãe o nascimento do filho com deficiência

“…The way parents receive the news about their child's disability can influence the parents' reactions decisively (4) , because the diagnosis of disability seems to create a critical impact situation, characterized by feelings such as pain, distress, fear, guilt and shame (5) . Health professionals often forget that the birth of a child who has special needs does not change the reality that parents are only human beings, have feelings, and experience fears and doubts (3,6) .…”