A systematic review of the literature on consumers' use of patient portals: Preliminary results

Yan, Zhang; Fleischmann, Kenneth R.; Gao, Jin; Xie, Bin

doi:10.1002/pra2.2015.1450520100142

Cited by 5 publications

(8 citation statements)

References 11 publications

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“…Our investigation extends prior work, which discussed the challenges of PHIM [23]. Our review also adds to previous literature reviews on PHIM tools [25,28], by examining the various types of PHIM tools used by older adults and the information they manage. We also extended the findings of earlier work [29] by corroborating the role that caregivers and other stakeholders play in older adults' PHIM.…”

Section: Implications Of the Studysupporting

confidence: 57%

“…While limited PHIM literature reviews that attempt to consolidate extant knowledge on the topic do exist, with each one from a different perspective [4,[23][24][25][26][27], few have focused on older adults (a previous study is an example of this research [28]). More so, those reviews did not provide a system view of the various factors that play a role in older adults' PHIM.…”

Section: Introductionmentioning

confidence: 99%

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Personal Health Information Management Among Older Adults: Scoping Review

2021

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Background Older adults face growing health care needs and could potentially benefit from personal health information management (PHIM) and PHIM technology. To ensure effective PHIM and to provide supportive tools, it is crucial to investigate the needs, challenges, processes, and tools used by this subpopulation. The literature on PHIM by older adults, however, remains scattered and has not provided a clear picture of what we know about the elements that play a role in older adults’ PHIM. Objective The goal of our review was to provide a comprehensive overview of extant knowledge on PHIM by older adults, establish the status quo of research on this topic, and identify research gaps. Methods We carried out a scoping review of the literature from 1998 to 2020, which followed the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR) framework. First, we executed a broad and structured search. We then carried out a qualitative analysis of papers pertinent to the topic taking into consideration the five elements of the patient work system as follows: (1) personal-level factors, (2) PHIM tasks, (3) tools used, (4) physical settings of PHIM activities, and (5) socio-organizational aspects. Results The review included 22 studies. Consolidated empirical evidence was related to all elements of the patient work system. Multiple personal factors affected PHIM. Various types of personal health information were managed (clinical, patient-generated, and general) and tools were used (electronic, paper-based, and others). Older adults’ PHIM was intertwined with their surroundings, and various individuals participated. The largest body of evidence concerned personal factors, while findings regarding the physical environment of PHIM were scarce. Most research has thus far examined older adults as a single group, and scant attention has been paid to age subgroups. Conclusions Opportunities for further PHIM studies remain across all elements of the patient work system in terms of empirical, design science, or review work.

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Section: Implications Of the Studysupporting

confidence: 57%

Section: Introductionmentioning

confidence: 99%

Personal Health Information Management Among Older Adults: Scoping Review

2021

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“…Interest in electronic health records (EHRs), patient portals, and electronic personal health records (ePHRs) has increased in recent years [ 4 - 6 ]. Ancker et al (2016) [ 6 ] conducted a survey of New York State residents to understand the rate of patient portal and personal health records (PHRs) adoption over time.…”

Section: Introductionmentioning

confidence: 99%

Patient Portal Use and Experience Among Older Adults: Systematic Review

Sakaguchi-Tang¹,

Bosold²,

Choi³

et al. 2017

JMIR Med Inform

118

167

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BackgroundThe older adult population (65 years or older) in the United States is growing, and it is important for communities to consider ways to support the aging population. Patient portals and electronic personal health records (ePHRs) are technologies that could better serve populations with the highest health care needs, such as older adults.ObjectiveThe aim of this study was to assess the existing research landscape related to patient portal and ePHR use and experience among older adults and to understand the benefits and barriers to older adults’ use and adoption of patient portals and ePHRs.MethodsWe searched six pertinent bibliographic databases for papers, published from 2006 to 2016 and written in English, that focused on adults 60 years or older and their use of or experience with patient portals or ePHRs. We adapted preferred reporting items for systematic reviews and meta-analyses (PRISMA) guidelines to review papers based on exclusion and inclusion criteria. We then applied thematic analysis to identify key themes around use, experience, and adoption.ResultsWe retrieved 199 papers after an initial screening and removal of duplicate papers. Then we applied an inclusion and exclusion criteria, resulting in a final set of 17 papers that focused on 15 separate projects. The majority of papers described studies involving qualitative research, including interviews and focus groups. They looked at the experience and use of ePHRs and patient portals. Overall, we found 2 main barriers to use: (1) privacy and security and (2) access to and ability to use technology and the Internet. We found 2 facilitators: (1) technical assistance and (2) family and provider advice. We also reported on older adults’ experience, including satisfaction with the system and improvement of the quality of their health care. Several studies captured features that older adults wanted from these systems such as further assistance managing health-related tasks and contextual health advice and tips.ConclusionsMore research is needed to better understand the patient portal experience among older adults from initial use to adoption. There are also opportunities to explore the role of design in addressing barriers and supporting facilitators to patient portal and ePHR use. Finally, the future use of these systems by older adults should be anticipated and considered in the design process.

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“…However, the degree to which this promise is being achieved currently remains unclear (Goldzweig et al, 2013;Kruse et al, 2015). While providers have been quick to adopt patient portals, patients have not always followed suit (Zhang et al, 2015). Moreover, among patients who have used patient portals, many only logged into the system once and never returned, or used the portals only for viewing information, but not for more interactive functions (e.g., secure messaging) that are intended to enhance patient-provider communication (Jones, Weiner, Shah, & Stewart, 2015).…”

Section: Human Values In the Design And Use Of Patient Portalsmentioning

confidence: 99%

“…Advanced portals also allow patients to communicate with providers in various ways, such as contacting caregivers, requesting prescription refills, and scheduling appointments (Office of the National Coordinator, 2015). In most cases, patient portals are tethered to health care institutions' existing EHR; the health information in a patient portal is therefore typically owned and maintained by the managing health care organizations (Zhang, Fleischmann, Gao, & Xie, 2015).…”

Section: Patient Portalsmentioning

confidence: 99%

Patient portals and human values

Simons

Fleischman

Zhan

et al. 2017

Proc. Assoc. Info. Sci. Tech.

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This paper reports quantitative and qualitative findings from a systematic literature review of user studies of patient portals. A deductive content analysis was performed using six human values identified in a prior study: privacy, confidentiality, security, trust, transparency and agency. Each of the 52 articles in the corpus included invocations of at least one of these human values, supporting their salience for understanding the user experience of patient portals. The paper concludes with a discussion of the implications of this analysis for value-sensitive design of patient portals, including indicating potential future research directions.

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A systematic review of the literature on consumers' use of patient portals: Preliminary results

Cited by 5 publications

References 11 publications

Personal Health Information Management Among Older Adults: Scoping Review

Personal Health Information Management Among Older Adults: Scoping Review

Patient Portal Use and Experience Among Older Adults: Systematic Review

Patient portals and human values

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