Patient portals and human values

Abstract

This paper reports quantitative and qualitative findings from a systematic literature review of user studies of patient portals. A deductive content analysis was performed using six human values identified in a prior study: privacy, confidentiality, security, trust, transparency and agency. Each of the 52 articles in the corpus included invocations of at least one of these human values, supporting their salience for understanding the user experience of patient portals. The paper concludes with a discussion of the implications of this analysis for value-sensitive design of patient portals, including indicating potential future research directions.

Factors influencing users’ perceived value of Electronic Health Record Patient Portals

“…Typically the trust of EHR portals could be summarized into two categories including trust in the systems itself or trust in the health information provided in the EHR systems (Simons, Fleischman, Zhan, Gao, & Xi, 2017). Patients' trust in EHR portals may be impacted by information accuracy, the speed at which information is updated, and the frequency of system downtime or system maintenance (Simons et al, 2017). Patients' trust in the EHR portals may potentially impact their engagement with and routine use of their patient portals.…”

“…Trust in the EHR portals is another commonly examined factor to understand how patient portals are used (Lyles et al, 2013;Sieck, Hefner, & McAlearney, 2018). Typically the trust of EHR portals could be summarized into two categories including trust in the systems itself or trust in the health information provided in the EHR systems (Simons, Fleischman, Zhan, Gao, & Xi, 2017). Patients' trust in EHR portals may be impacted by information accuracy, the speed at which information is updated, and the frequency of system downtime or system maintenance (Simons et al, 2017).…”