The mothers' experiences in the pediatrics hemodialysis unit

Abstract

The results of the study allow us to provide a theoretical ground for planning an assistance that meets the real needs of the mothers, identifying aspects that require intervention.

“Immersion in an ocean of psychological tension:” The voices of mothers with children undergoing hemodialysis

“…The findings are consistent with those of other investigations, in which the parents of children with chronic kidney diseases were found to endure considerable tension and emotional pressure. [ 9 11 ] Aside from parenting, mothers assume health care providing roles, which can significantly affect their lives and compel them to endure tremendous agony and suffering. [ 11 ] Mieto and Bousso (2014), who conducted her study in Brazil, indicated that the psychological, emotional, and social tension experienced by mothers is caused by adjustments to life routines based on hemodialysis sessions, resignation from work and loss of social status, dietary restrictions on children, limited participation in school activities and leisure time with other children, and the inability to change these conditions.…”

“…Children undergoing hemodialysis are considered individuals with special health care needs and depend heavily on creating greater demands for care and supervision. [ 9 ] Child accompaniment three times a week, resignation from work and loss of social status, adjustments to life routines based on hemodialysis sessions, feelings of concern with regard to water and dietary restrictions on child, observation of the pain and suffering of the child, and the management of care role interference with other roles result in negative effects on the physical and emotional health of the parents. [ 7 9 10 ]…”

“…Mothers have the role of primary caregivers for children undergoing hemodialysis,[ 9 ] and they have lower levels of quality of life in terms of health, physical functioning, and daily performance, and higher levels of psychosocial stresses compared to fathers. [ 8 ] When a child undergoes hemodialysis, the mother faces severe changes in her daily life.…”

“…The feeling of being imprisoned along with the child by the hemodialysis machine, the need for job abandonment, loss of social status, feeling anxiety about dietary restrictions, sadness along with feeling imminent death of the child, severe isolation, and their inability to change these conditions lead to psychological, emotional, and social stress in mothers. [ 9 ]…”

Quality of life in children with kidney transplant: Systematic review

“…The main causes of ESKD in the pediatric population are chronic glomerulonephritis, urological malformation (posterior urethral valves), renal dysplasia and CKD of unknown etiology, however the most frequent are septicemia, acute kidney injury, diarrhea, malaria and hemolytic uremic syndrome. Other factors such as high blood pressure, obesity and low birth weight are also regarded as a cause for the development of ESKD (2)(3) .…”