Apoios e relações entre mães e avós de crianças com deficiência: falando sobre solidariedade intergeracional familiar

Trindade, Thalita Rosa; Hayashi, Maria Cristina Piumbato Innocenntini; Lourenço, Gerusa Ferreira; Figueiredo, Mirela de Oliveira; Silva, Carla Regina; Martinez, Claudia Maria Simões

doi:10.4322/2526-8910.ctoar1951

Cited by 8 publications

(15 citation statements)

References 26 publications

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“…In this context, grandparents are a key source of support for the family, although there are few studies that specifically focus on the experience of this family subsystem and are from the grandparents’ own perspective. Some authors [ 18 ] reinforce the importance of the grandparents’ role in PPC contexts, recognizing their constant presence for their sick grandchildren but also for their own children and healthy grandchildren, culminating in a triple concern [ 16 , 19 ]. Indeed, their participation in the family’s life cycle has the potential to improve the care and attention provided to both generations of offspring [ 20 ].…”

Section: Introductionmentioning

confidence: 99%

The Psychological Experience of Grandparents: Proposal of a Qualitative Clinical Assessment Tool in Pediatric Palliative Care

Nogueira,

Ribeiro

2024

Clinics and Practice

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In Portugal, there are over 7800 children with life-limiting conditions. The context of pediatric palliative care represents a complex and distressing experience for families. Compared to parental caregivers and healthy siblings, grandparents are underexplored in the literature and clinical practice. The aim of the present study is to propose a psychological experience assessment tool of grandparents in this context. It consists of a sociodemographic and clinical data sheet and a semi-structured interview based on sharing a testimony with other grandparents. On the basis of the latter, 10 dimensions were explored through the grandparents’ own perspective: representation of the illness; representation of the sick grandchild; changes in routine and life; family impact; grandparents’ contributions to the family system; social support and coping strategies; emotional impact; triple concern; needs identification; and post-traumatic growth. The tool can be used in person or remotely and may be combined with other instruments. Its application enables a personalized identification of needs and challenges for each family, promoting the adjustment of the clinical intervention to their wellbeing and resilience from an eco-systemic perspective. The clinical tool is presented in detail and its importance in the context of research and systemic intervention is discussed.

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Section: Introductionmentioning

confidence: 99%

The Psychological Experience of Grandparents: Proposal of a Qualitative Clinical Assessment Tool in Pediatric Palliative Care

Nogueira,

Ribeiro

2024

Clinics and Practice

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“…Segundo Trindade et al (2021), em uma revisão integrativa, identificaram que o apoio das avós às mães de filhos com deficiência contribui para o alivio de estresse, ajudam na busca de estratégias, informações e serviços para lidar com as crianças e estão sempre prontos para escutar os pais e assim proporcionar apoio emocional.…”

Section: Introductionunclassified

O processo de adaptação e desempenho ocupacional de mães de crianças no transtorno do espectro autista

Roiz

Figueiredo

2023

Cad. Bras. Ter. Ocup.

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Resumo Introdução A adaptação a um filho no Transtorno do Espectro do Autismo (TEA) pode impactar o desempenho ocupacional das mães em razão dos cuidados demandados, que podem dificultar a realização das suas ocupações. Objetivo Investigar a adaptação e o desempenho ocupacional das mães de filhos com TEA. Método Estudo descritivo transversal de abordagem quantiqualitativa com 11 mães de filhos no TEA com idade entre 2 e 9 anos. Os dados foram coletados por meio da Escala Parental de Adaptação à Deficiência (EPAD) e da Medida Canadense de Desempenho Ocupacional (COPM). Os dados da EPAD foram analisados pela soma dos escores de cada participante e cálculo da média geral e os da COPM a partir dos valores atribuídos para o desempenho e satisfação. Resultados As mães estavam em adaptadas a seus filhos; entretanto, avaliaram a presença de problemas funcionais para o desempenho ocupacional após o nascimento deles. Problemas na categoria produtividade, especificamente para trabalhar, por conta das demandas de cuidados com o filho, foram referidos pela maioria das mães. Na categoria autocuidado, algumas mães referiram problemas para ir ao salão de beleza e tomar banho. Na categoria lazer, algumas mães indicaram problemas para realizar leitura, atividade física, viajar e/ou visitar amigos. Conclusão As mães deste estudo demostraram que a adaptação a seus filhos envolve fatores como transmissão do diagnóstico, informação, características dos filhos, condições socioeconômicas, resiliência, crenças e expectativas pessoais. Conclui-se que as mães de filhos no TEA investigadas apresentaram problemas funcionais para o desempenho ocupacional após o nascimento desses filhos.

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“…According to Trindade et al (2021), in an integrative review, identified that the support of grandmothers to mothers of children with disabilities contributes to stress relief, helps in the search for strategies, information and services to deal with children and is always ready to listen to parents and thus provide emotional support.…”

Section: Introductionmentioning

confidence: 99%

Adaptation process and occupational performance of mothers of children with autism spectrum disorders

Roiz

Figueiredo

2023

Cad. Bras. Ter. Ocup.

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Introduction Adapting to a child with Autism Spectrum Disorder (ASD) can impact the occupational performance of mothers because of the care they demand, which can lead to difficulties in carrying out their occupations. Objective To investigate the occupational performance and adaptation of mothers to their children with ASD. Method Cross-sectional, descriptive, quantitative and qualitative study conducted with 11 mothers of children with ASD aged 2-9 years. Data were collected using the Parental Disability Adaptation Scale (EPAD) and the Canadian Occupational Performance Measure (COPM). EPAD data were analyzed by adding the scores of each participant and calculating the general average, whereas COPM data were analyzed from the values assigned to performance and satisfaction. Results The mothers were well adapted to their children; however, they evaluated the presence of functional problems for occupational performance after their birth. Functional problems in the productivity category, specifically in work performance due to the demands of caring for the children, were mentioned by most mothers. In the self-care category, some mothers reported problems related to going to the salon and taking a shower. In the leisure category, some mothers indicated problems with reading, physical activity, traveling and/or visiting friends. Conclusion The mothers in this study reported that adapting to their children with ASD involves factors such as transmission of the diagnosis, information, children characteristics, socioeconomic conditions, resilience, and personal beliefs and expectations. In conclusion, the mothers of children with ASD investigated presented functional problems regarding their occupational performance after the birth of these children.

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Apoios e relações entre mães e avós de crianças com deficiência: falando sobre solidariedade intergeracional familiar

Cited by 8 publications

References 26 publications

The Psychological Experience of Grandparents: Proposal of a Qualitative Clinical Assessment Tool in Pediatric Palliative Care

The Psychological Experience of Grandparents: Proposal of a Qualitative Clinical Assessment Tool in Pediatric Palliative Care

O processo de adaptação e desempenho ocupacional de mães de crianças no transtorno do espectro autista

Adaptation process and occupational performance of mothers of children with autism spectrum disorders

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