Hanseníase: Sentidos E Facetas Do Convívio Para Adolescentes Com a Doença E Seus Familiares

Marinho, Fabiana Drumond; Avellar, Luziane Zacché; Souza, Luiz Gustavo Silva; Nardi, Susilene Maria Tonelli; Coutinho, Gilma Corrêa

doi:10.4322/2526-8910.ctoao1251

Cited by 6 publications

(6 citation statements)

References 8 publications

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“…Living with a person suffering from leprosy is felt differently by his family [ 26 ], especially for adolescents [ 6 ] and based on the results of the Systematic Literature Review, this feeling will increase suffering for patients and family [ 44 ] and reduce family self-esteem [ 11 , 33 ]. Although the family has acted to overcome the illnesses and changes that occur in patients to recover quickly, it is also necessary to improve life control in improving self-concept as reported by previous studies [ 87 ].…”

Section: Discussionmentioning

confidence: 99%

“…But the atmosphere has been hampered by the attitude of the family, who are still struggling to deal with emotional responses related to traumatic events, sadness, feelings of shame, confusion, where these elements are also faced by people with leprosy [ 5 ]. Some literature reviews find the attitude of family members who are vulnerable to disharmony in the family, including teens show an excessive fear response to contracting leprosy [ 6 ], and for women, the psychological burden is felt far more painful [ 7 – 10 ], and families trying to hide their illness from their family environment to protect them [ 11 ].…”

Section: Introductionmentioning

confidence: 99%

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The life experience of leprosy families in maintaining interaction patterns in the family to support healing in leprosy patients in Indonesian society. A phenomenological qualitative study

et al. 2022

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Background Family involvement in overcoming the severity of leprosy is very important in the life of leprosy sufferers in communities who experience the clinical and, psychological, social and behavioral consequences of the disease. However, this need, psychosocial, is felt to be not optimal. This study is to identify how the experiences of family members as caregivers provide assistance to lepers in improving healing and maintaining patterns of interaction in the family. Methods The design uses qualitative research with in-depth, face-to-face interviews with family members in a semi-structured manner with the hope of obtaining complete data. Using purposive sampling with Participatory Interpretative Phenomenology analysis, there are 12 families with 15 family members consisting of 4 men and 11 women. Results This study produced a family theme that tried to follow what would happen to lepers, with four sub-categories: 1) Using various coping alternatives to recognize the disease, 2) Family members in the shadow of leprosy, 3) Trying to empathize with other family members. sick, 4) Caring for the emotional response of the family and seeking support. Conclusions This analysis shows that deficiency in cognitive aspects can be closed by maintaining a lifestyle in the family through efforts to understand, support, establish communication, increase maximum involvement in restoring self-confidence, especially in lepers with psychosocial problems in the family. The results of this study can be used as psychosocial support in maintaining communication between family members to support treatment programs and accelerate the recovery of leprosy.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

The life experience of leprosy families in maintaining interaction patterns in the family to support healing in leprosy patients in Indonesian society. A phenomenological qualitative study

et al. 2022

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“…These results are in line with the findings of a survey conducted in the city of Belém (PA), which sought to know nurses' SR about the tuberculosis patient (29) . A relationship was observed between these data and individuals' anchoring to the obligation of chronic treatment in all its modalities, as evidenced in the literature (30) , under penalty of aggravation or even death otherwise.…”

Section: Discussionmentioning

confidence: 63%

“…This process takes on a different pattern, depending on the clinical evolution, the individual's support network and the place he occupies in his social group. That is, if the condition reaches the key elements for family maintenance (e.g., father or mother), it is understood that the global repercussions for the family will be potentially more significant (30,32) . A study carried out in six European countries, with people who were diagnosed with diabetes, showed that, in health conditions that require long-term monitoring, the closer and more diversified the support network, the better the offer/mobilization of support for meaningful management is likely to be (33) .…”

Section: Discussionmentioning

confidence: 99%

Knowledge and practices of Primary Care professionals on diabetic neuropathy: study of social representations

et al. 2021

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Objectives: to analyze the knowledge and practices of Primary Health Care professionals about diabetic neuropathy through their social representations. Methods: a qualitative, descriptive study, anchored in the procedural aspect of the Theory of Social Representations. It was carried out in four Family Health Units in Belém-Pará, with 31 professionals from four health teams. Data were produced by individual semi-structured interviews, and the corpus was submitted to content analysis. Results: two thematic categories were defined, showing the participants’ understanding and imagination about neuropathy, as well as the biopsychosocial repercussions of this complication in patients’ daily lives. The multidisciplinary practices developed in the context of disease treatment/prevention and the consequences of this performance were also shown. Final Considerations: professionals’ representations are anchored in neuropathy occurrence due to the deficient standard of care for themselves by patients, which results in the team’s surpassing care attitude as an alternative to illness’ challenges.

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“…More than one family member can be diagnosed with leprosy, and when this is the case, those stigmatized tend to have similar experiences regarding their disease and experience similar changes in their self-image 11 . When the experience is shared within the family or their social circle, the suffering and fear of the unknown are shared again, and the ill family member needs the support of the family to cope with any setback during the disease process 20 .…”

Section: The Daily Life Of the Sick Family: Going Through Dark Timesmentioning

confidence: 99%

Effects on the daily lives of children and teenagers who lived with leprosy

et al. 2022

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The study aims to understand the effects of the disease on the daily lives of children and teenagers affected by leprosy. This was a qualitative research based on the theoretical framework of ‘The Sociology of Erving Goffman’. We interviewed 14 participants individually, nine children and five teenagers, who underwent treatment for leprosy and were cured. A semi-structured interview was used, covering sociodemographic information and guiding questions about the participants’ experiences with the disease, family, social aspects, and perceptions derived from the experiences. The data were analyzed by the sociology of Erving Goffman. The narratives emphasized the effects on daily life related to leprosy discovery, interaction networks, such as family and health professionals, health care, overcoming strategies and expectations. It was verified that the predominant element of the research is anchored in the fear of being discovered and discredited, in the perspective of having their identity of health resignified, by the illness, and by the evidence in view of the participant’s experience due to prejudice, anonymity, and secret. This symbolically suggests that the participants experienced a certain construction of negative social life around leprosy. The illness directly interferes with their daily life and development, especially in the participant’s social relationships.

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Hanseníase: Sentidos E Facetas Do Convívio Para Adolescentes Com a Doença E Seus Familiares

Cited by 6 publications

References 8 publications

The life experience of leprosy families in maintaining interaction patterns in the family to support healing in leprosy patients in Indonesian society. A phenomenological qualitative study

The life experience of leprosy families in maintaining interaction patterns in the family to support healing in leprosy patients in Indonesian society. A phenomenological qualitative study

Knowledge and practices of Primary Care professionals on diabetic neuropathy: study of social representations

Effects on the daily lives of children and teenagers who lived with leprosy

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