Family network of children with special health needs: implications for Nursing

Abstract

Objective: to describe appropriate sources and resources for caregivers of children with special health needs in the community. Method: A qualitative study that used the creativity and sensitivity dynamics speaking map, part of the sensitive creative method, involving 11 caregivers of children with special health needs who are assisted in a university hospital located in the South of Brazil. Results: the maps graphically represented through the genogram and ecomap showed that the caregiving women consistently and regularly use the resources of the internal and external family network; they eventually and irregularly access the community social network for physical and psychological support. Conclusion: the reclusive nature of care for these children inside the family circle contributes to their social invisibility. Based on this new information, it is recommended that Nursing participate in the care that is focused on these children's families, with particular attention to their socio-cultural conditions.

Factors associated with involuntary hospital admissions in technology-dependent children

“…The high cost may be the result of accompaniment by specialists, frequent surgery, and attention given by tertiary care services (4) . In relation to Brazil, there is no estimate of the number of CSHN, but only isolated records of incidence in certain locations, of which the most significant have been studies in Rio de Janeiro, in the state of Rio de Janeiro, and Santa Maria, is the state of Rio Grande do Sul (6) . As a result of their fragile state of health, these children need frequent admissions to hospital (7) .…”

Busca ativa de crianças com necessidades especiais de saúde na comunidade: relato de experiência

“…As ações devem incluir: acolhimento as CRIANES e suas famílias; empoderamento da criança para o autocuidado (respeitando suas limitações) e da família, para assim, diminuir a dependência pelo serviço de saúde; ações integrais para cuidar da criança e da família; o cuidado assistencial desenvolvido por profissionais de saúde no domicílio; atendimento em serviço de referência para condições agudas; e fornecimento de materiais necessários para cuidar a nível domiciliar. 4,8,9,12 -CRIANES III: Observa-se para esta criança: demanda de cuidados habituais modificados, necessitando de ajuda para o autocuidado e também para as tarefas diárias; demanda de cuidados tecnológicos, por necessitar de cadeira de rodas; demanda de cuidado medicamentoso; demanda de desenvolvimento, por precisar de estímulos para o seu desenvolvimento.…”

Nurses' Knowledge in Child Health Primary Care Primary

“…20 In child health, in PHC, the nurses are also confronted with care situations in which they need to put in practice different and comprehensive knowledge, including knowledge that involves children with special health needs and/ or children coming from intensive care units, who require continuing nursing care. 21 That indicates the longitudinality principle of care, emphasizing the continuity of actions over time, guided by the growth and development process of childhood and decision making by and with the families, 15 in order to enrich nursing care and apprehend it in an integrative perspective. 18 The narratives on the limits for the expansion of family care show concerns with interventions that are able to cope with the family and social vulnerabilities, which imply the expansion of nurses' knowledge and skills.…”