Blind parents: their experience in care for their children

Pagliuca, Lorita Marlena Freitag; Uchoa, Renata Sarmento; Machado, Márcia Maria Tavares

doi:10.1590/s0104-11692009000200021

Cited by 11 publications

(20 citation statements)

References 4 publications

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“…The family should be included in monitoring their children so that assistance is safe and effective, with strengthening of its autonomy and independence [20]. Study found that the blind parents find strategies to care for their children who rely on the remaining senses (touch, smell and hearing) and the use of support networks, as a mother, sister or community was essential for assistance in caring for blind mother [21]. With this, it highlights the importance of valuing the autonomy of these women according to their limitations as well as the front Family integration to children's health.…”

Section: Discussionmentioning

confidence: 99%

Attention Model for Chronic Conditions: Blind Women and Their Sons

Oliveira¹,

Carvalho²,

Pagliuca³

et al. 2015

Health

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It aimed to analyze the assistance to the blind woman during prenatal care, childbirth, and childcare in light of the Model of Attention to Chronic Conditions. This is a descriptive, qualitative study. A collection was done through semi-structured interview and analysis of the speeches, conducted by content technique proposed by Bardin, emerging from the screening process. Ten mothers aged between 21 and 42 years old participated in the study. Three categories were identified: prescriptive and focused attention on the disease; for collaborative and focused attention on the person; uniprofessional attention to the multidisciplinary attention; establishment of relationship between the family health strategy and the specialized outpatient care. The women experienced chronic conditions according to the Model in addition to blindness. Study results show that for blind women, attention in the health service has weaknesses in service, both in the prenatal period and childbirth, and in childcare. It deems necessary transformation in assisting the blind woman.

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Section: Discussionmentioning

confidence: 99%

Attention Model for Chronic Conditions: Blind Women and Their Sons

Oliveira¹,

Carvalho²,

Pagliuca³

et al. 2015

Health

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“…That is, the blind patients use predominantly hearing as verbal communication and complementary to tact, away from non-verbal communication. The health professional must have the abilities to perceive these differences and intervene effectively [16] [17]. On the other hand, a blind mother with motor impairment, filmed while breastfeeding, showed scarce non-verbal communication, once she did not show her face to the child.…”

Section: Discussionmentioning

confidence: 99%

Model of Verbal Communication with Blind Patient: Application in Nursing Appointment

Macêdo-Costa¹,

Pagliuca²,

Sampaio³

et al. 2014

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It was aimed at validating the applicability of the Model of Verbal Communication with blind people in nursing appointment in the stages of the nursing process. A methodology of quantitative study was used with 30 nurses and 30 blind people who participated in the study, divided in control and experimental groups. 30 nursing appointments took place; they were recorded and analyzed by three judges. The experimental group had excellent performance in following protocol (95.6%); taking notes informing the reason for silence (93.4%); and avoiding long silence (100%). In interventions, it presented excellence in all the items, in the evaluation stage, there were no bad/terrible actions. In none of the actions the control group presented better performance than the experimental one. The use of the Model is recommended in nursing appointment with blind patient. Freitas Macêdo-Costa et al. 1920 fied in the research, between the nurse and the blind patient during an appointment for diabetes and it emphasizes the scarcity of experience which contemplates this population.In order to face this challenge, new paths are established in studies regarding the models of communication, which are facilitators for the acquisition of abilities and competences in nursing [2]. Due to the recognition of the peculiarities concerning the communication with the blind patients, which emphasizes verbal and tactile communication, a Model of verbal communication with the blind patient was developed, with the specific purpose to guide the nurse to verbally communicate with these people during their actions. Once made, the Model was evaluated by specialists who recommended its use during the appointment with the blind patient [1].The elaboration of the Model was developed into seven steps: 1) reception, initial contact between both; 2) data collection concerning the history; 3) diagnosis of nursing; 4) planning; 5) implementation of care; 6) evaluation of nursing; and 7) closing, in which there is the end of communication and consequently, interaction. These moments emphasized the communication according to the steps of the nursing process, so that the nurse could work in a systematized and individualized way, using their critical thought [1].The communication with the blind patient is made using universal precepts, which contemplate the specificity of such clientele. While the health professional that can see absorbs 80% of the information of the environment through his look, the blind patient uses the verbal, tactile and olfactive communication; this requires, from the nurse, special abilities to lead effective and efficient communication with the blind patient. The Model of Verbal Communication covers these universal matters of the communication with the blind, and, afterwards, details each predominant action, following the steps of the nursing appointment. So, during the reception, it is possible to observe if the nurse uses communication with sympathy, telling him/her when he has arrived and assuming the function of transmitting communi...

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“…Pais cegos apresentam dificuldades para cuidar dos seus filhos, especialmente quando pequenos, no âmbito da preparação de medicamentos, realização da higiene corporal e oferta dos alimentos, principalmente na fase da introdução de novos alimentos. Estudos realizados com mães e pais cegos do nordeste do Brasil evidenciaram que a oferta de novos alimentos ao filho aos seis meses, constituiu um momento de ansiedade, pois os pais reconheceram que não possuíam as competências necessárias para a preparação e introdução dos novos alimentos (Pagliuca, Uchôa, & Machado, 2009). Ao considerar-se a assistência em Enfermagem à pessoa cega, temos como uma das suas ferramentas a Tecnologia de Apoio (TA), também denominada tecnologia assistiva.…”

Section: Introductionunclassified

Complementary feeding for infants: adaptation and assessment of support technology for portuguese blind parents

Cezario¹,

Abreu²,

Pagliuca³

2014

Rev. Enf. Ref.

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Resumenpp.37-44 Resumo Revista de Enfermagem Referência A R T I G O D E I N V E S T I G A Ç Ã OAlimentação complementar do latente: adaptação e avaliação de tecnologia de apoio para pais cegos portugueses Resultados: Na adaptação cultural da tecnologia de apoio, as enfermeiras sugeriram, e foi acatado, posicionar o lactente numa cadeira ao ofertar alimento, orientar o congelamento de alimentos, inserção de alimentos portugueses; não se acatou linguagem mais formal. Nos aspetos de estrutura e apresentação online a tecnologia foi considerada apropriada pelas enfermeiras e pais cegos.Conclusão: Verificou-se que a tecnologia de apoio é uma estratégia de promoção da saúde viável para distintas realidades.Palavras-chave: nutrição infantil; pessoas com deficiência; Enfermagem.Marco contextual: Dadas las dificultades de los padres ciegos en relación a la introducción de la alimentación complementaria de sus hijos, en Brasil, se ha elaborado material sobre este tema, de acuerdo con las características de la tecnología de apoyo en línea. Objetivos: Describir la adaptación y la evaluación de la tecnología de apoyo para la cultura portuguesa. Metodología: Estudio metodológico, desarrollado en 2012 en Oporto. Se realizó una traducción del contenido al portugués utilizado en Portugal. El contenido y la apariencia (modalidad en línea) adaptados a la cultura portuguesa fueron evaluados por el personal de enfermería especializado en Salud Infantil y Pediatría, y padres ciegos. Resultados: En la adaptación cultural de la tecnología de apoyo, los enfermeros sugirieron, y se aceptó, colocar al lactante en una silla infantil al darle la comida, orientar sobre la congelación de alimentos, introducir alimentos portugueses; no se aplicó un lenguaje más formal. En cuanto a los aspectos de la estructura y la presentación en línea, los enfermeros y padres ciegos consideraron apropiada la tecnología. Conclusión: Se comprobó que la tecnología de apoyo es una estrategia de promoción de la salud viable para distintas realidades.Palabras clave: nutrición del lactante; personas con discapacidad; Enfermería.Theoretical framework: Given the difficulties of blind parents in the introduction of complementary feeding for their children, a content was developed in Brazil on this topic, observing the characteristics of online assistive technology. Aim: To describe the adaptation and assessment of the assistive technology to the Portuguese culture. Methodology: A methodological study was developed in Porto in 2012. It was translated into European Portuguese. Its content and design (online mode) were adapted to the Portuguese culture and assessed by specialist nurses in Child Health and Paediatrics and blind parents. Results: In the cultural adaptation of the assistive technology, the nurses suggested (and it was accepted) that the infant should be fed sitting in a chair, guidance on frozen food should be provided and Portuguese food should be introduced. No formal language was used. As for the aspects related to the online structure and presen...

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Blind parents: their experience in care for their children

Cited by 11 publications

References 4 publications

Attention Model for Chronic Conditions: Blind Women and Their Sons

Attention Model for Chronic Conditions: Blind Women and Their Sons

Model of Verbal Communication with Blind Patient: Application in Nursing Appointment

Complementary feeding for infants: adaptation and assessment of support technology for portuguese blind parents

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